ENDO Messages for July, 2008: Re: Surgery results at CEC

Re: Surgery results at CEC - diaphragm endo questions

From: anonymous (anonymous@obgyn.net)
Thu Jul 31 00:59:21 2008

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At Wed, 18 Jul 2007, left210 wrote: >
>I didnt realize I had endo on my diaphragm. I like you just passed off
>my shoulder pain to overdoing it at home, work, etc never ever linking
>it to endo until recently when doing some research before my surgery did
>I read some info that endo on the diaphragm can cause shoulder pain. My
>shoulder pain was primarily on the left side. I too also had times when
>I would feel pain if I took a deep breath kind of like I was short of
>breath. I also had many of the same symptoms as you mentioned but not
>sure if that was from the endo on my diaphragm or just the totality of
>all of my condition. You know it may not just be endo. For me I had
>the endo in many many places but also adhesions that had one ovary
>adhered to my pelvic side wall, other organs adhered to each other,
>multiple cysts and both of my ovaries so diseased that they had to
>remove 50% of them. Not sure which dr. you are going to but CEC does
>all of this by laparoscopy and no mention of laparotomy. Thanks for the
>support. I do hope to feeling up to 100% really soon - actually I feel
>pretty close and have talked to CEC and they said dont overdo it even if
>I am feeling so much better because there is still alot of healing going
>on inside. I dont want to mislead anyone that you do have pain from
>your recovery but it just seems like it went so well for me but after
>all they told me about how much they removed and all the post op
>diagnosis I would have expected my recovery to be much lengthier than it
>was. Yeah for me. Good luck and I wish pain free days for you too!
>
>At Wed, 18 Jul 2007, D wrote:
>>
>>I'm so sorry about your grandmother! That's an awful lot to deal with
>>along with surgery - and it sounds like they did a lot of work on you,
>>too. I have to say, you sound like a strong person to have gone through
>>so much and managed so well! :)
>>
>>I'm curious about the endo on your diaphragm - what were your symptoms
>>like before surgery? One thing that has confounded most of my doctors
>>(until now) is that I've had a lot of upper abdominal pain, but it's
>>been mostly left-sided and endo on the diaphragm usually causes pain on
>>the right. I do get shoulder pain on the right and left, very sharp and
>>like it comes from deep in my shoulder, but I also had problems a few
>>years ago with carpal tunnel and repetitive stress injuries in my arms
>>and shoulders, so I always laid it off to that. The pain is often a
>>dull ache in my abdomen - sometimes I say it feel like someone (small)
>>is standing on my stomach. Walking and activity can aggravate it, and
>>sometimes it feels like a cramp from being out of breath but more often
>>it's kind of a pulling sensation. Was yours anything like this? And
>>they didn't have to convert to a laparotomy to remove it all? That's
>>what I'm most nervous about, because I'm looking for a teaching job and
>>the recovery time from an open surgery would probably keep me from
>>getting a class this year.
>>
>>Thanks so much - it's very reassuring to hear things are going well for
>>you - I'm sure you'll be back to 100% very soon! (and I imagine that
>>after dealing with endo pain, it will seem like being at 200% - or more)
>>Here's to pain-free days for everyone!
>>
>>At Wed, 18 Jul 2007, left210 wrote:
>>>
>>>I was still pretty sedated when I first woke up. I was still in pain at
>>>first. I had an unusual situation because my grandmother passed away a
>>>few days before my surgery and I traveled home (7 hours) the day after
>>>surgery so I could be home for the funeral services. I slept most of
>>>the way but did get sick along the way because crazy me drank a
>>>milkshake on the way and it did not settle with my stomach. The binder
>>>they give you was a blessing. It really holds things tight so you do
>>>not feel as much. I recommend anyone having the surgery to use it. I
>>>had surgery on Thurs., traveled home on Fri., slept most of the day on
>>>Sat. By Sunday I was still feeling tired and sore but was up and was
>>>able to make two memorial boards for my Grandmothers funeral. On the
>>>Mon. & Tues. following my surgery I was on my feet most of the day for
>>>the funeral services. Again the binder helped tremendously during this.
>>>I do not recommend this for others but only mention it because I felt it
>>>probably hindered my recovery slightly and given that my recovery has
>>>gone so well even with this minor setback. I do think that I was able
>>>to be up for that long because of adreneline and emotions because I was
>>>very close to my grandmother and I would not have missed it for the
>>>world. I almost cancelled my surgery but family members encouraged me
>>>not to because my grandmother would have wanted me to go ahead with it.
>>>In the end I am glad I did not reschedule. I did not feel an instant oh
>>>I feel better and all of the pain is gone. It was a gradual daily
>>>improvement that the soreness was better each day. With regards to the
>>>endo pain, I did have an instant improvement with regards to shoulder
>>>pain. I had endo on my diaphragm and did not feel the shoulder pain
>>>from that once I came out of the anesthesia. I just feel better overall
>>>whereas before I was very tired all of the time, general achy feeling, a
>>>tender sore feeling in my abdomen, etc. That is all gone. Now that I
>>>have started back to work, I do tire out a little bit by the end of the
>>>day but I think that is more from just getting back to work from being
>>>off for 2 weeks, etc. My most severe pain before the surgery was during
>>>ovulation and my periods so that will be the true test of how much my
>>>pain has resolved. I will be on BCP for 3 months so 3 months pain free
>>>and we will see how it goes from there. The only thing going on right
>>>now is I have a bruised feeling near my belly button. I did not have
>>>this until Monday and that is the day I returned to work. Honestly I
>>>think it is from wearing regular clothes again and it must still be
>>>tender on the inside. I had mostly been wearing stretchy waistbands and
>>>I think wearing regular waistbands may be irritating it abit. So all in
>>>all things are going very well for me. Any other questions, please feel
>>>free to ask or email me at mustangdan@peoplepc.com.
>>>
>>>At Tue, 17 Jul 2007, D wrote:
>>>>
>>>>Congratulations! And thank you for coming back to share your results!
>>>>That's great that you are already back to work - how did you feel when
>>>>you first woke up? I'm curious, sometimes people say they can tell as
>>>>soon as they come to that the pain is gone, or did you have to wait for
>>>>the post-op pain to go down to feel a difference?
>>>>
>>>>Please do keep us updated!
>>>>
>>>>At Tue, 17 Jul 2007, left210 wrote:
>>>>>
>>>>>I wanted to thank all of you who recommended CEC. I had surgery there
>>>>>on June 28th. I am doing great after my surgery. The first week after
>>>>>surgery was a little rough but honestly it wasnt as bad as I had
>>>>>thought. I had two prior laps and it really wasnt any worse than a
>>>>>normal recovery and they did way more surgery than ever before. I had
>>>>>stage 4 endo with lots of other stuff going on with adhesions, cysts,
>>>>>endo all over the place and had partial removal of ovaries on both
>>>>>sides. The doctors there were so nice and thorough and took the time
>>>>>with me. I was in surgery for 6 hours with all three doctors from CEC
>>>>>working on me. I cannot say enough great things about them. I am about
>>>>>2 1/2 weeks out from surgery and am back to work and doing well. I
>>>>>guess the true test will be when I have my first period & ovulation but
>>>>>right now I am on BCP for 3 months until my ovaries heal. If anyone has
>>>>>any questions, please feel free to ask. If it wasnt for others
>>>>>answering my questions I would not be where I am today. Keep the faith!
>>>>
>>>>--
>>>>Find an endo specialist in the ERC's EndoDocs group:
>>>>http://groups.yahoo.com/group/EndoDocs/
>>>>
>>>>Try an excellent endo support group:
>>>>http://groups.yahoo.com/group/erc/
>>>>
>>>>Info on pain management:
>>>>http://www.painfoundation.org/
>>>>
>>--
>>Find an endo specialist in the ERC's EndoDocs group:
>>http://groups.yahoo.com/group/EndoDocs/
>>
>>Try an excellent endo support group:
>>http://groups.yahoo.com/group/erc/
>>
>>Info on pain management:
>>http://www.painfoundation.org/
>>

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