Re: Probable endo, looking for advice
From: anonymous (anonymous@obgyn.net)
Wed Jul 30 23:21:19 2008
This is another support board, with doctor info.
http://erc.activeboard.com/
The CEC has lots of good info on the site, as does endoexcision.com and
endomtriosissurgeon.com, pelvicpain.com
Depending on where you live you might want to get 1 or more other
records reviews.
At Wed, 30 Jul 2008, Cin wrote:
>
>This is encouraging. Send records to CEC. Will do. Thanks for this
>advice!
>
>At Mon, 28 Jul 2008, anonymous wrote:
>>
>>You have to find out how the doctor would try to remove it. Excision is
>>the best way, most often does not recur.
>>
>>You should not need to take bc pills.
>>
>>You probably have endo in the cul-de-sac - this can be removed and you
>>can be ok.
>>
>>Send your records to the CEC for a records review, free. many people
>>have been helped there. centerforendo.com
>>
>>At Mon, 28 Jul 2008, anonymous wrote:
>>>
>>>Hi Everyone,
>>>
>>>I saw a gynecologic surgeon the other day due to (intense) pain during
>>>intercourse that has been misdiagnosed. After having done ultrasound,
>>>questioning and pelvic exam he said I most likely have endometriosis. He
>>>said there is a cyst anterior to the cervix that is where I am feeling
>>>the pain. He recommended surgery to have it removed and a presacral
>>>neurectomy to block pain signals from being communicated to my brain. I
>>>also think I would have to take birth control for life to keep my
>>>estrogen levels low.
>>>
>>>Now, I knew nothing about this disease prior to yesterday, but after
>>>doing some research have found out that even with surgery it comes back.
>>>I called the docs office today and spoke with one of his nurses and she
>>>said it may or may not, but to me it seems like it always will. She
>>>also said if I dont treat it, that it could get worse/spread, which i
>>>havent seen any mention of anywhere.
>>>
>>>So, I am wondering if it is worth it to undergo this surgery, I mean, if
>>>it is going to recur anyway? I know they can't know for 100% if it
>>>really is endo without going in with a laproscope but he was pretty sure
>>>its what I have. I would be interested in hearing from anyone who has
>>>had surgery and what the outcome has been, and if you have had the
>>>presacral neurectomy, if this eliminates the pain and if it is worth it
>>>(I know it has its own side effects/complications as well)?
>>>
>>>Thanks in advance for any advice you can give, as I am not sure what to
>>>do.
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)