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Re: Probable endo, looking for advice
From: Cin (anonymous@obgyn.net)
Wed Jul 30 22:45:49 2008
This is encouraging. Send records to CEC. Will do. Thanks for this
advice!
At Mon, 28 Jul 2008, anonymous wrote:
>
>You have to find out how the doctor would try to remove it. Excision is
>the best way, most often does not recur.
>
>You should not need to take bc pills.
>
>You probably have endo in the cul-de-sac - this can be removed and you
>can be ok.
>
>Send your records to the CEC for a records review, free. many people
>have been helped there. centerforendo.com
>
>At Mon, 28 Jul 2008, anonymous wrote:
>>
>>Hi Everyone,
>>
>>I saw a gynecologic surgeon the other day due to (intense) pain during
>>intercourse that has been misdiagnosed. After having done ultrasound,
>>questioning and pelvic exam he said I most likely have endometriosis. He
>>said there is a cyst anterior to the cervix that is where I am feeling
>>the pain. He recommended surgery to have it removed and a presacral
>>neurectomy to block pain signals from being communicated to my brain. I
>>also think I would have to take birth control for life to keep my
>>estrogen levels low.
>>
>>Now, I knew nothing about this disease prior to yesterday, but after
>>doing some research have found out that even with surgery it comes back.
>>I called the docs office today and spoke with one of his nurses and she
>>said it may or may not, but to me it seems like it always will. She
>>also said if I dont treat it, that it could get worse/spread, which i
>>havent seen any mention of anywhere.
>>
>>So, I am wondering if it is worth it to undergo this surgery, I mean, if
>>it is going to recur anyway? I know they can't know for 100% if it
>>really is endo without going in with a laproscope but he was pretty sure
>>its what I have. I would be interested in hearing from anyone who has
>>had surgery and what the outcome has been, and if you have had the
>>presacral neurectomy, if this eliminates the pain and if it is worth it
>>(I know it has its own side effects/complications as well)?
>>
>>Thanks in advance for any advice you can give, as I am not sure what to
>>do.
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