ENDO Messages for July, 2008: Re: Laparotomy for frozen pelvis

Re: Laparotomy for frozen pelvis

From: Jessica (anonymous@obgyn.net)
Wed Jul 30 10:36:55 2008

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At Tue, 3 Jun 2008, Stephanie wrote: >
>Hi... I have just recovered from my first laparoscopy and have since
>learned that I have stage 4 endometriosis and the endo has fused my
>intestines, bowel, and pelvic organs together leaving me with a "frozen
>pelvis." I am scheduled to start lupron this week or next depending on
>insurance issues. I will also need a laparotomy to 'unfreeze' my pelvic
>organs. I love my doctor but would like a second opinion as well,
>consulting other surgeons.
>Please respond if you can suggest a doctor for me in Boston, MA. I
>really would like the best care in Boston, but I have no idea where to
>start. I'd also like to hear from other women with similar stories for
>advice. I'd really like some advice or tips or encouragement. Thank
>you!

Hi Stephanie, I too was diagnosed with frozen pelvis. I had a surgery in June of 07 and the endo had only adhered my colon to my uterus. Within one year (may 2008) I was diagnosed with stage 4 endo after a laparoscopy. My bladder, intestines, colon, fallopian tubes and ovaries were all fused together. My doctor first recommended a hysterectomy. When I refused, he discussed going in with a laparotomy but was careful to warn me that my adhesions were so severe it could be complicated. I had my laparotomy on July 15. He was able to successfully cut away the adhesions and "free up" everything except my left ovary and fallopian tube. I will still be able to try and get pregnant but he did warn of the aggressiveness of frozen pelvis and the high likelihood that the adhesions will come back quickly. I firmly believe that due to the severity, laparotomy was the way to go versus laparoscopy. I am still recovering but am hopeful. Although I do not know any doctors in Boston. I am here for you if you have any other questions. When I was first diagnosed with frozen pelvis, it seemed nobody else had heard of it.

-- Jessica Schneider

shmiley76@hotmail.com

--
Jessica

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