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Hi--new here...I read RisaFrom: Amy (anonymous@obgyn.net)Tue Jul 29 14:44:38 2008
At Fri, 8 Aug 2003, RACHEL wrote: > >Risa - you said you went to Dr. Redwne, did he help you, or is Dr. Rock >the best, I want help, I dont know what else to do, I live in Illinois >and I am willing to go as far as I have to. I was going to try Dr. >Redwine but I have no idea who is the best, or where to go to, please >email me back my email is rachelnerren@hotmail.com >thank you very much > >At Fri, 8 Aug 2003, alex wrote: >> >>At Mon, 20 Jan 2003, Anonymo wrote: >>> >>>Risa -- thank you so much for sharing your experience. >>> >>>Can I ask you in the future, though, to try to use paragraphs because >>>your message is very difficult to read. I found it too painful for my >>>eyes and had to stop, even though I was interested in what you were >>>saying. >>> >>>Thanks! :) >>> >>>At Mon, 20 Jan 2003, Risa wrote: >>>> >>>>I just wanted to provide this forum with some valuable information. I >>>>have done tremendous research and traveled the country in search of the >>>>best resources to cope with endometriosis. I recently underwent surgery >>>>with Dr. John Rock, former president of the World Endometriosis >>>>Society. He is a leading expert and innovator in the research and >>>>treatment of endometriosis. He performed a laparotomy on me in October >>>>2002 and the results have already been remarkable. I am finally >>>>pain-free. I am 23 years old and I have been suffering from >>>>endometriosis since my first menstrual period at age 11. My younger >>>>sister was diagnosed with endometriosis at age 13. She and I have been >>>>treated by the most prestigious medical facilities and doctors in this >>>>country. I have visited the Mayo Clinic in Rochester, Minnesota, the >>>>University of Michigan Hospital in Ann Arbor, Michigan, Dr. Marc Laufer >>>>at Boston Children's Hospital in Boston, Massachusetts and with doctors >>>>such as Dr. Rock at Emory University in Atlanta, Georgia. I have also >>>>consulted with Dr. David Redwine in Bend, Oregon and gynecological >>>>specialists at the University of Miami Medical Center as well. I have >>>>done tremendous research in medical journals and consulted with numerous >>>>other physicians nationwide. It saddens me to hear of the countless >>>>surgeries that you all have undergone and the fact that doctors do not >>>>know how to properly treat endometriosis. I have been in your shoes. >>>>But now with the expertise of Dr. John Rock and his team of >>>>gynecological specialists at Emory University, I am well now and I am >>>>off all hormones and prescription drugs for the first time in 12 years. >>>>Since I was 11, I have been plagued with cramps, lower back pain, cystic >>>>ovaries, gastrointestinal and urological symptoms due to the >>>>endometriosis. There is no cure for endometriosis. But there is help >>>>out there. Dr. Rock has taught me that often times, as with my case, >>>>laparoscopic surgery is not thorough enough in exploring and treating >>>>endometriosis. Often times, the endometriosis is deep within the pelvic >>>>cavity, it is in the retro-peritoneum. The laparoscope is unable to see >>>>all of this deep endometriosis. That is why a laparotomy is often >>>>necessary. I was first diagnosed and treated laparoscopically in 1999 >>>>but my symptoms did not improve, even with continuous birth control >>>>usage to suppress my periods. I have learned that there is a type of >>>>endometriosis that one is born with, like myself and my sister. The >>>>pain is present before one's first menstruation or at the onset of >>>>menstruation. This type of endometriosi is congenital-one is born with >>>>the disease. This is the deep disease that needs to be removed by >>>>laparotomy. I have also learned that hormones do not always suppress >>>>the growth of endometriosis. Often times, hormones are only implemented >>>>to suppress the symptoms, not the growth. In addition to excising, not >>>>lasering or burning the endometriosis, Dr. Rock and his colleagues at >>>>Emory also perform a procedure called a presacral neurectomy to combat >>>>the neurological pathways that transmit pelvic pain. It is important >>>>that young girls and women, like yourselves, realize that painful, >>>>debilitating periods are not normal. It is very important that you find >>>>the right specialists. There are too many myths and misconceptions out >>>>there regrading endometriosis. You owe it to yourselves to find the >>>>best healthcare providers. I consulted with very reputable specialists >>>>in my hometown of Miami, Florida but I was misdiagnosed for nine years >>>>and not treated comprehensively enough with laparoscopic surgery. I >>>>urge those of you out there, both young and old, to find the best >>>>doctors. Endometriosis can only be diagnosed through exploratory >>>>surgery such as laparoscopy and laparotomy. It is not necessary to have >>>>multiple surgeries and radical surgery such as hysterectomy. My >>>>reproductive organs have been spared because I found the best resources >>>>and the best doctors. I have tried everything from hormones to >>>>acupuncture. These treatments only mask the pain-they do not rid you of >>>>the disease. If you have any questions, please contact me via e-mail >>>>and I will get you in touch with the best endometriosis specialists. It >>>>is important that you take an active role in your health-your quality of >>>>life and your fertility are at stake. >> >>-- >>My name is alex newton and I am trying to find the best endometriosis specialist for my girlfriend. She has had the surgery by Dr.Rock but is now experiencing a reoccurance. The doctor who took his place has said she will more than likely have to have a hysterectomy. She is going to try a strong hormone therapy first to see if this will help. We are wanting to start a family and we would like to explore all of our options before we have to settle on this procedure. Any help you could give me would be greatly appreciated. >>
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