Re: Adenemyosis and hysterectomy
From: anonymous (anonymous@obgyn.net)
Tue Jul 29 00:57:03 2008
What kind of pain killers are you taking?
What kind of surgery did you have?
You don't have to have a hyst - always get another diagnosis. Also, see
how the pain is post-op.
http://centerforendo.com/articles/adenomyosis.htm
At Mon, 28 Jul 2008, kimberly wrote:
>
>At Mon, 23 Aug 2004, Emma wrote:
>>
>>At Fri, 20 Aug 2004, Amy wrote:
>>>
>>>Jude,
>>>
>>>While I am not in the best emotional state myself to give someone advise
>>>on how to cope with all of this, what I can do is tell you that you are
>>>not the only person in the world going through this. As of last week, I
>>>as told the exact same thing from my doctor.
>>>
>>>I know that neither the GnRH or the hysterectomy will provide an end to
>>>this. I have read and talked to a friend about what Lupron, the GnRH my
>>>doctor wants to use and about women that have had hysterectomies but
>>>still experience pain. What kind of solution does either one of those
>>>sound like!!!?
>>>
>>>I was diagnosed in 1992 and am so sick and tired of all of this. And,
>>>as of wednesday, my husband has filed for divorce. Can things get any
>>>worse? I knew that he was frustrated with the pain and doctors and
>>>neverending treatment and pills but I had no idea that he honestly was
>>>such a misunderstanding and selfish person. I am beginning to vent.
>>>
>>>I am 30 and have decided that I will probably try the Lupron for a
>>>temporary fix, which usually my laps are used for that. Like you, I
>>>have just recently had a lap along with removal of a fallopian tube -
>>>june 2004. Since the surgery, I am in more pain than I ever remember
>>
>>Hi Amy, it really is heart wrenching to hear your story, and its like i
>>wrote it myself, I to have had endo for 8 years now and iam 33, married
>>with no children . I have tried all the treatments bar the mirena coil,
>>which iam due to have fitted on the 14th september, iam so hoping that
>>this will give me some sort of relief otherwise like you i will be
>>looking at a hysterectomy.It just seems so extreme does'nt it. Did you
>>try the mirena coil at all?? I so hope that one day they will come up
>>with some sort of miracle drug for this evil endo so that women like us
>>no longer have to put up with this agony and can live a normal life as
>>this is far from normal. I hope that you will soon be rid of this pain
>>i really feel for you and you can be happy... Emma x
>>
>>>being in with this.
>>>
>>>I hope that you receive some help soon and let me know if you need to
>>>talk. ( amcallister03@hotmail.com ) Keep remembering that you're not
>>>alone although I know that is hard to do. Best of luck.
>>>
>>>At Thu, 19 Aug 2004, Jude wrote:
>>>>
>>>>Saw my Gyn today, who advised me on the basis of my symptoms and an
>>>>examination that I am likely to have adenemyosis (spelling?), that the
>>>>endo has got its way into the uterine muscle. His recommendations based
>>>>on my history are either GnRH agonist treatment or hysterectomy. I have
>>>>suffered with this for 3 1/2 years and I am not getting better. It has
>>>>only been three months since my last excision surgery and I already back
>>>>in severe pain.
>>>>
>>>>I have really tried everything from Naturopathy, acupuncture,to excision
>>>>surgery (4 times) and pharmaceuticals (7 times including provera x2,
>>>>depo-provera, dimetriose, zolaex, mirena UID, epilim for neuropathic
>>>>pain).
>>>>
>>>>I am feeling distressed and overwhelmed by this decision as I am 31 and
>>>>have no children. Please, anyone who is in this situation or had gone
>>>>ahead with hysterectomy or GnRH agonist treatement, I would appreciate
>>>>hearing your advice, support and experience. I have been bawling my
>>>>eyes out all morning and I have to get myself together to see my
>>>>clients. Please help,
>>>>
>>>>Thanks, Jude.
>>>
>>>--
>>>Amy
>
>Hello out there. I just had surgery today and they told me that my
>endometriosis has now turned into Adenemyosis. I am in soo much pain
>but I couldn't sleep so I thought i'd look for info, and I found your
>blog/forum. You guys are giving me food for thought. My post- surgical
>consult is in 3 weeks and my doc is supposed to discuss tx then. I have
>a feeling this isn't going to be good. Hope you all find relief.
>>>
>--
>Kimberly
>
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