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Re: Adenemyosis and hysterectomyFrom: kimberly (anonymous@obgyn.net)Mon Jul 28 22:26:19 2008
At Mon, 23 Aug 2004, Emma wrote: > >At Fri, 20 Aug 2004, Amy wrote: >> >>Jude, >> >>While I am not in the best emotional state myself to give someone advise >>on how to cope with all of this, what I can do is tell you that you are >>not the only person in the world going through this. As of last week, I >>as told the exact same thing from my doctor. >> >>I know that neither the GnRH or the hysterectomy will provide an end to >>this. I have read and talked to a friend about what Lupron, the GnRH my >>doctor wants to use and about women that have had hysterectomies but >>still experience pain. What kind of solution does either one of those >>sound like!!!? >> >>I was diagnosed in 1992 and am so sick and tired of all of this. And, >>as of wednesday, my husband has filed for divorce. Can things get any >>worse? I knew that he was frustrated with the pain and doctors and >>neverending treatment and pills but I had no idea that he honestly was >>such a misunderstanding and selfish person. I am beginning to vent. >> >>I am 30 and have decided that I will probably try the Lupron for a >>temporary fix, which usually my laps are used for that. Like you, I >>have just recently had a lap along with removal of a fallopian tube - >>june 2004. Since the surgery, I am in more pain than I ever remember > >Hi Amy, it really is heart wrenching to hear your story, and its like i >wrote it myself, I to have had endo for 8 years now and iam 33, married >with no children . I have tried all the treatments bar the mirena coil, >which iam due to have fitted on the 14th september, iam so hoping that >this will give me some sort of relief otherwise like you i will be >looking at a hysterectomy.It just seems so extreme does'nt it. Did you >try the mirena coil at all?? I so hope that one day they will come up >with some sort of miracle drug for this evil endo so that women like us >no longer have to put up with this agony and can live a normal life as >this is far from normal. I hope that you will soon be rid of this pain >i really feel for you and you can be happy... Emma x > >>being in with this. >> >>I hope that you receive some help soon and let me know if you need to >>talk. ( amcallister03@hotmail.com ) Keep remembering that you're not >>alone although I know that is hard to do. Best of luck. >> >>At Thu, 19 Aug 2004, Jude wrote: >>> >>>Saw my Gyn today, who advised me on the basis of my symptoms and an >>>examination that I am likely to have adenemyosis (spelling?), that the >>>endo has got its way into the uterine muscle. His recommendations based >>>on my history are either GnRH agonist treatment or hysterectomy. I have >>>suffered with this for 3 1/2 years and I am not getting better. It has >>>only been three months since my last excision surgery and I already back >>>in severe pain. >>> >>>I have really tried everything from Naturopathy, acupuncture,to excision >>>surgery (4 times) and pharmaceuticals (7 times including provera x2, >>>depo-provera, dimetriose, zolaex, mirena UID, epilim for neuropathic >>>pain). >>> >>>I am feeling distressed and overwhelmed by this decision as I am 31 and >>>have no children. Please, anyone who is in this situation or had gone >>>ahead with hysterectomy or GnRH agonist treatement, I would appreciate >>>hearing your advice, support and experience. I have been bawling my >>>eyes out all morning and I have to get myself together to see my >>>clients. Please help, >>> >>>Thanks, Jude. >> >>-- >>Amy
Hello out there. I just had surgery today and they told me that my
endometriosis has now turned into Adenemyosis. I am in soo much pain
but I couldn't sleep so I thought i'd look for info, and I found your
blog/forum. You guys are giving me food for thought. My post- surgical
consult is in 3 weeks and my doc is supposed to discuss tx then. I have
a feeling this isn't going to be good. Hope you all find relief.
>>
-- Kimberly
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