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Re: Probable endo, looking for advice
From: anonymous (anonymous@obgyn.net)
Mon Jul 28 21:59:50 2008
You have to find out how the doctor would try to remove it. Excision is
the best way, most often does not recur.
You should not need to take bc pills.
You probably have endo in the cul-de-sac - this can be removed and you
can be ok.
Send your records to the CEC for a records review, free. many people
have been helped there. centerforendo.com
At Mon, 28 Jul 2008, anonymous wrote:
>
>Hi Everyone,
>
>I saw a gynecologic surgeon the other day due to (intense) pain during
>intercourse that has been misdiagnosed. After having done ultrasound,
>questioning and pelvic exam he said I most likely have endometriosis. He
>said there is a cyst anterior to the cervix that is where I am feeling
>the pain. He recommended surgery to have it removed and a presacral
>neurectomy to block pain signals from being communicated to my brain. I
>also think I would have to take birth control for life to keep my
>estrogen levels low.
>
>Now, I knew nothing about this disease prior to yesterday, but after
>doing some research have found out that even with surgery it comes back.
>I called the docs office today and spoke with one of his nurses and she
>said it may or may not, but to me it seems like it always will. She
>also said if I dont treat it, that it could get worse/spread, which i
>havent seen any mention of anywhere.
>
>So, I am wondering if it is worth it to undergo this surgery, I mean, if
>it is going to recur anyway? I know they can't know for 100% if it
>really is endo without going in with a laproscope but he was pretty sure
>its what I have. I would be interested in hearing from anyone who has
>had surgery and what the outcome has been, and if you have had the
>presacral neurectomy, if this eliminates the pain and if it is worth it
>(I know it has its own side effects/complications as well)?
>
>Thanks in advance for any advice you can give, as I am not sure what to
>do.
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