Re: Probable endo, looking for advice
From: Ally (anonymous@obgyn.net)
Mon Jul 28 16:04:51 2008
Oh dear, I'm so sorry for what you're going through. In my opinion, you
do want to have endo removed, but by a specialist only. Cysts can
rupture and spread endo into your pelvic cavity. You didn't give your
age, but are you interested in preserving your fertility? Proper removal
of endo can help with that. I don't know much about the presacral
neurectomy, but I have heard bad things about it.
If you have excision of your endo done by a specialist, there is a
chance that it won't come back and that you will not need to be on birth
control. I know that surgery sucks and that no one wants it. But, if
done properly, it can give you relief and a clear-cut diagnosis. I
would seek a 2nd opinion if you can. If you give us your location,
perhaps we can help you find a specialist in your area. Endo
specialists are few and far between.
Good luck!
--
Ally
At Mon, 28 Jul 2008, anonymous wrote:
>
>Hi Everyone,
>
>I saw a gynecologic surgeon the other day due to (intense) pain during
>intercourse that has been misdiagnosed. After having done ultrasound,
>questioning and pelvic exam he said I most likely have endometriosis. He
>said there is a cyst anterior to the cervix that is where I am feeling
>the pain. He recommended surgery to have it removed and a presacral
>neurectomy to block pain signals from being communicated to my brain. I
>also think I would have to take birth control for life to keep my
>estrogen levels low.
>
>Now, I knew nothing about this disease prior to yesterday, but after
>doing some research have found out that even with surgery it comes back.
>I called the docs office today and spoke with one of his nurses and she
>said it may or may not, but to me it seems like it always will. She
>also said if I dont treat it, that it could get worse/spread, which i
>havent seen any mention of anywhere.
>
>So, I am wondering if it is worth it to undergo this surgery, I mean, if
>it is going to recur anyway? I know they can't know for 100% if it
>really is endo without going in with a laproscope but he was pretty sure
>its what I have. I would be interested in hearing from anyone who has
>had surgery and what the outcome has been, and if you have had the
>presacral neurectomy, if this eliminates the pain and if it is worth it
>(I know it has its own side effects/complications as well)?
>
>Thanks in advance for any advice you can give, as I am not sure what to
>do.
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