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Re: Looking For A Good GYN Endo Dr. For My Teen In WA
From: ampyali (anonymous@obgyn.net)
Tue Jul 22 22:43:17 2008
I understand your situation and feel fortunate that I was able to afford
this surgery. I would say that knowledge is power. There is plenty of
information on the web about endo and teens--in fact there is a web site
completely devoted to supporting teens with endo (can't remember the web
site's name--just had surgery--can anyone help me here?). If you can't
see a specialist, arm yourself with knowledge and research studies. That
way, when a doctor tells you teens don't get endo, you can hand them the
numbers that show that they do. There may be other doctors who do
excision surgery in the Pacific Northwest, I'm just not sure who they
are, or how well-trained they are. I know when it comes to our
daughters, it just tears out hearts out to see them hurting. Best
wishes!
At Tue, 22 Jul 2008, Cathy wrote:
>
>Thank you Ampyali for replying to my request for help finding a gyn for
>my daughter. We live in Northwest WA. I have been to Dr. Redwines
>internet site and was impressed but I don't think he can be an option in
>our financial situation. My daughter is on state health insurance. That
>is why I'm focused on finding a gyn in WA State. Thanks again for your
>reply.
>
>At Tue, 22 Jul 2008, ampyali wrote:
>>
>>I have just had excision surgery for endo with a specialist who KNOWS
>>that teens get endo. In fact, he is fairly certain that we are born
>>with it. You didn't say if you were in Northern or Southern Washington
>>State, but I'm in Portland, Oregon, and if my daughter were having the
>>kind of problems you are describing I would run, not walk, to see Dr.
>>Redwine in Bend. He is one of the foremost experts in the world on
>>endo. His staff is wonderful and very supportive. You will be amazed
>>at the difference in how you and your daughter are treated. Many of his
>>patients only need 1 laparoscopy to be completely rid of the
>>endometriosis. He isn't cheap and doesn't accept insurance (although my
>>insurance covered part of his fee) but has way to work with you for the
>>charges. Best wishes and I will keep you and your daughter in my
>>prayers.
>>
>>At Tue, 22 Jul 2008, Cathy wrote:
>>>
>>>I am in the process of looking for a good GYN Dr. for my daughter in
>>>Washington State. A Dr. that beleives it is posible to have endo as
>>>and adolecent or teen and is willing to help. My 14 year old daughter
>>>has been suffering for almost 3 years now and I am in deperate need of
>>>help in finding someone to help her. Her symptoms include a constant
>>>ache in her low abdomen, pelvic area that never goes away. Sometimes
>>>her low back aches and sometimes she also aches in her kidney area. Her
>>>abdomen is very tender in the low right side and if pressed produces
>>>very sharp pain that take a long time to subside. This very sharp pain
>>>is also produced with excersize especially with running and jumping. Her
>>>pain also gets worse when she lies down flat, so she has been sleeping
>>>propped up for a couple of years. Sometimes her pain will get worse for
>>>no known reason and sometimes the pain will double her over and she gets
>>>nausiated or vomits. She is also fatigued most of the time. Recently,
>>>over the past few months, she has started to get menstrual cramping. She
>>>has never had menstrual cramping before and it can get so bad that it
>>>puts her to bed. She has a long history and story so I am trying to
>>>keep it short here but the just of it is that 9 months ago she saw a
>>>gynecologist for the second time because of an ovarian cyst that was
>>>causing terrible pain (2.7cm) and this gyn told her that her small cyst
>>>was not the cause of such pain, and when I asked her about endno she
>>>said that teens don't get endo. Her pcp also says the same. Her cyst
>>>has shrunk since then but she continues to suffer. Because she is
>>>unable to take hormonal therapy (tested positive for Factor V Leiden)
>>>both of these drs say there is nothing they can do for her, just take
>>>ibuprophen and deal with the pain. I think they think it is
>>>phycosomatic because they said she should see a phycologist because they
>>>can not find anything wrong with her. She has not seen a Dr. for over
>>>6 months now, hoping that it will just all go away and trying to ignore
>>>the pain and work through it. She no longer likes Drs., she has seen
>>>too many that can not figure out her problem (PCP, Several ER Drs., 1
>>>Surgeon, 2 Gastroerologist, and 2 Gynogologists) and the fact that she
>>>feels that they don't beleive she realy is in any pain, that it is all
>>>in her head doesn't help. I can't watch her go through this pain and
>>>suffering any longer, I want her to have a more normal life with out
>>>pain, just be a teen and enjoy life. We have done some extensive
>>>research on the internet and think that it is very possible that she may
>>>be suffering from Endometriosis. So I am looking for a gynecologist in
>>>Washington State that specializes in endo and maybe even
>>>adolescents/teens. We need someone that that won't be closed minded
>>>about the possiblity of endo in a teenager. If any of you know of a
>>>good Dr. in Washington State or know where I can get this information
>>>It would be greatly appreciated.
>>>
>>>--
>>>Desperate Mother
>>>
>--
>Desperate Mother
>
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