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Re: Proctalgia Fugax
From: ampyali (anonymous@obgyn.net)
Mon Jul 14 21:05:20 2008
I have read that appllications of moist heat (a towel soaked in hot
water and wrung out) and siiting with a hard surface against the area
(the edge of a bath tub) can be helpful in relieving the pain. I don't
think this works if endo is the culprit, however. I don't usually take
anything because by the time medication would finally kick in, the pain
is gone. I've found that inserting a tampon too deeply can bring on the
pain, which kind of makes sense if it's being causes by endo of the
cul-de-sac.
At Mon, 14 Jul 2008, anonymous wrote:
>
>Yes, for women it's endo in the cul-de-sac often, and causes SO many
>problems.
>
>Endo does need to be excised, not cauterized. Good luck :)
>
>At Mon, 14 Jul 2008, ampyali wrote:
>>
>>I have had this condition for most of my adult life. I have always been
>>too embarrassed to even talk to a doctor about my symptoms. I was
>>diagnosed with endo of the cul-se-sac in December and am quite certain
>>that it is the cause of my pain. The endo was cauterized at that time,
>>and while I only received short-term relief of my other endo symptoms
>>(pelvic and low back pain) the sudden excruciating anal pain hasn't
>>returned. I am having excision surgery soon and hope to never be
>>embarrassed by it again. Mine doesn't happen in the night, it happens
>>during the day and has caused me to jump out of chairs and nearly scream
>>in public places. Just lovely...
>>
>>At Mon, 14 Jul 2008, anonymous wrote:
>>>
>>>The thing with some of the posts here, the pain MIGHT be related to endo
>>>in the cul-de-sac, which is a woman's hazardous occupation kind of
>>>thing.
>>>
>>>Have you seen a GI? or a urologist? Not trying to be prying, but are you
>>>gay by an chance? (the whole ''sex thing'')
>>>
>>>Proctalgia fugax - Wikipedia, the free encyclopediaProctalgia fugax is a
>>>severe, episodic, anal pain. It can be caused by cramp of the
>>>pubococcygeus or levator ani muscles. [1] ...
>>>en.wikipedia.org/wiki/Proctalgia_fugax - 53k - Cached - Similar pages
>>>
>>>gihealth.com - built for patient satisfactionIf you have been diagnosed
>>>with a condition called Proctalgia Fugax, you already know. ...
>>>Proctalgia Fugax is basically just that - a fleeting rectal pain. ...
>>>http://www.gihealth.com/html/education/proctalgiaFugax.html - 13k - Cached -
>>>Similar pages
>>>
>>>Proctalgia fugax: A cause of episodic rectal pain? -
>>>MayoClinic.comProctalgia fugax is severe, episodic rectal pain that
>>>usually occurs at night.
>>>http://www.mayoclinic.com/health/proctalgia-fugax/AN00237 - 25k - Cached -
>>>Similar pages
>>>
>>>Proctalgia Fugax and Anal Pain - Online Diagnosis. New Treatments
>>>...Online diagnosis of proctalgia fugax and anal pain based on the
>>>patient's symptoms. New Treatments, May 2, 2008.
>>>
>>>http://www.ccspublishing.com/journals/mddx/anorectal_pain_and_itching/1_proctalgia_fugax.htm
>>>- 9k - Cached - Similar pages
>>>
>>>ENDO Messages for June, 2005: Re: Proctalgia FugaxI have had proctalgia
>>>for many years and have tried everything imagninable to relieve the pain
>>>because it is so intense, even a swig of whisky...and I ...
>>>forums.obgyn.net/endo/ENDO.0506/0333.html - Similar pages
>>>
>>>Proctalgia Fugax - Urology - MedHelpAug 10, 2004 ... This is a
>>>discussion on MedHelp about Proctalgia Fugax. Community members of
>>>MedHelp provide help, support, guidance and discussion around ...
>>>http://www.medhelp.org/forums/urology/messages/30939.html - 134k - Cached -
>>>Similar pages
>>>
>>>Proctalgia fugax: a cause of marital dysharmony.Proctalgia Fugax. Br
>>>Med J. 1962 Jul 21;2(5298):164–165. [PubMed]; Thompson WG, Heaton KW
>>>... The psychologic aspects of proctalgia fugax. Dis Colon Rectum. ...
>>>http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=1491073 - Similar
>>>pages
>>>
>>>At Mon, 14 Jul 2008, Peter wrote:
>>>>
>>>>Hi,
>>>>
>>>>I read your message on Obgyn.net, I ended up there somehow, could I ask
>>>>you a question about it? I think I might have it but I'd like to ask you
>>>>more about it. Mine feels like intense gas pain, like something wants
>>>>to come out, but nothing does. Is that similar?
>>>>
>>>>-Peter
>>>>
>>>>At Sun, 19 Jun 2005, anonymous@obgyn.net wrote:
>>>>>
>>>>>At Mon, 20 Dec 2004, Lisa wrote:
>>>>>>
>>>>>>Thank God, thank God I found you guys. I've suffered for my entire
>>>>>>adult life with this nameless condition and I finally found it tonight
>>>>>>here.
>>>>>>
>>>>>>It's horrible to wake up in the middle of the night with a pain so
>>>>>>intense you think you're dying. I've walked the floors, paced, prayed,
>>>>>>cried, begged, passed out. Oh, occasionally it might happen in the
>>>>>>middle of the day, but it almost invariably is a night thing. After I
>>>>>>get an attack, the whole next day I'm lifeless and weak.
>>>>>>
>>>>>>A gastroenterologist I consulted about 8 years ago ran the whole gamut
>>>>>>of tests, internal and external, and could find nothing wrong with me.
>>>>>>He looked at me like I was off my nut when I told him it felt like
>>>>>>someone doing a procto exam with their fist. He finally gave a
>>>>>>frustrated diagnosis of "possibly spastic colon" and put me on a 40
>>>>>>grams of fiber a day regimen! Oh, I followed it for a while, at least
>>>>>>till there was no hide left on my poor raw behind, then I dropped back
>>>>>>to a reasonable amount when not even the fiber stopped the pain. After
>>>>>>all, I've always eaten healthy, and I have no problem with either
>>>>>>diarrhea or constipation.
>>>>>>
>>>>>>So I've lived with this for years, scared he missed something, scared it
>>>>>>could be colon cancer or some other horrible life-threatening illness.
>>>>>>After all, what else could hurt so bad? But tests are expensive, and
>>>>>>even though you don't want to hear you've got something wrong, it's just
>>>>>>as frustrating for you to hear that they can't find anything. You pay
>>>>>>off all those medical bills over the next several months feeling like an
>>>>>>idiot, and it makes you even more inclined not to go back and get more
>>>>>>in debt for nothing.
>>>>>>
>>>>>>All I can say is that if I could reach inside and touch the pain, it
>>>>>>would be a few inches inside the colon. Sometimes it feels almost like
>>>>>>hard period cramps, and it radiates into my tailbone and into my female
>>>>>>organs too. The pain is always, though, centrally in the colorectal
>>>>>>area. I just wish I could reach in and massage away the hurt, but
>>>>>>instead all I can do is pray it's a short spasm and not a long drawn-out
>>>>>>one. I've even had to lay off from work or go in late the next day I'd
>>>>>>be so wrung-out from wrestling with the pain.
>>>>>>
>>>>>>I'm just curious to hear what everyone else does that actually gives
>>>>>>relief. The only medicine I've ever gotten any relief with is plain old
>>>>>>aspirin. Tylenol and other NSAIDS don't seem to bring any, and I'm not
>>>>>>sure if the aspirin actually works or if the pain is subsiding on its
>>>>>>own. At any rate, the time it takes for anything to kick in is an
>>>>>>agonizing wait.
>>>>>>
>>>>>>Anyway, thanks for making your website available to women like me who
>>>>>>have tried everything else and just need to find some common ground.
>>>>>>Maybe I'll get a little better educated from the others on here who have
>>>>>>learned to live with this most bizarre disorder.
>>>>>
>>>>>--
>>>>>Try moist heat. I have had proctalgia for many years and have tried everything imagninable to relieve the pain because it is so intense, even a swig of whisky...and I rarely dring any alchoho...but I was desperate. Then finally I discovered that moist heat relieves the pain very quickly. Many internet resources say to fill a tub with hot water and sit in it. However, by the time you do that the pain is beginning to subside on its own. I heat a moist towel in the microwave and then wrap it in another towel, or in a plastic bag with another towel around it. The moist heat helps the pain to go away much faster than anything I have ever tried.
>>>>>
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