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Re: Proctalgia Fugax
From: ampyali (anonymous@obgyn.net)
Mon Jul 14 18:57:01 2008
I have had this condition for most of my adult life. I have always been
too embarrassed to even talk to a doctor about my symptoms. I was
diagnosed with endo of the cul-se-sac in December and am quite certain
that it is the cause of my pain. The endo was cauterized at that time,
and while I only received short-term relief of my other endo symptoms
(pelvic and low back pain) the sudden excruciating anal pain hasn't
returned. I am having excision surgery soon and hope to never be
embarrassed by it again. Mine doesn't happen in the night, it happens
during the day and has caused me to jump out of chairs and nearly scream
in public places. Just lovely...
At Mon, 14 Jul 2008, anonymous wrote:
>
>The thing with some of the posts here, the pain MIGHT be related to endo
>in the cul-de-sac, which is a woman's hazardous occupation kind of
>thing.
>
>Have you seen a GI? or a urologist? Not trying to be prying, but are you
>gay by an chance? (the whole ''sex thing'')
>
>Proctalgia fugax - Wikipedia, the free encyclopediaProctalgia fugax is a
>severe, episodic, anal pain. It can be caused by cramp of the
>pubococcygeus or levator ani muscles. [1] ...
>en.wikipedia.org/wiki/Proctalgia_fugax - 53k - Cached - Similar pages
>
>gihealth.com - built for patient satisfactionIf you have been diagnosed
>with a condition called Proctalgia Fugax, you already know. ...
>Proctalgia Fugax is basically just that - a fleeting rectal pain. ...
>http://www.gihealth.com/html/education/proctalgiaFugax.html - 13k - Cached -
>Similar pages
>
>Proctalgia fugax: A cause of episodic rectal pain? -
>MayoClinic.comProctalgia fugax is severe, episodic rectal pain that
>usually occurs at night.
>http://www.mayoclinic.com/health/proctalgia-fugax/AN00237 - 25k - Cached -
>Similar pages
>
>Proctalgia Fugax and Anal Pain - Online Diagnosis. New Treatments
>...Online diagnosis of proctalgia fugax and anal pain based on the
>patient's symptoms. New Treatments, May 2, 2008.
>
>http://www.ccspublishing.com/journals/mddx/anorectal_pain_and_itching/1_proctalgia_fugax.htm
>- 9k - Cached - Similar pages
>
>ENDO Messages for June, 2005: Re: Proctalgia FugaxI have had proctalgia
>for many years and have tried everything imagninable to relieve the pain
>because it is so intense, even a swig of whisky...and I ...
>forums.obgyn.net/endo/ENDO.0506/0333.html - Similar pages
>
>Proctalgia Fugax - Urology - MedHelpAug 10, 2004 ... This is a
>discussion on MedHelp about Proctalgia Fugax. Community members of
>MedHelp provide help, support, guidance and discussion around ...
>http://www.medhelp.org/forums/urology/messages/30939.html - 134k - Cached -
>Similar pages
>
>Proctalgia fugax: a cause of marital dysharmony.Proctalgia Fugax. Br
>Med J. 1962 Jul 21;2(5298):164–165. [PubMed]; Thompson WG, Heaton KW
>... The psychologic aspects of proctalgia fugax. Dis Colon Rectum. ...
>http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=1491073 - Similar
>pages
>
>At Mon, 14 Jul 2008, Peter wrote:
>>
>>Hi,
>>
>>I read your message on Obgyn.net, I ended up there somehow, could I ask
>>you a question about it? I think I might have it but I'd like to ask you
>>more about it. Mine feels like intense gas pain, like something wants
>>to come out, but nothing does. Is that similar?
>>
>>-Peter
>>
>>At Sun, 19 Jun 2005, anonymous@obgyn.net wrote:
>>>
>>>At Mon, 20 Dec 2004, Lisa wrote:
>>>>
>>>>Thank God, thank God I found you guys. I've suffered for my entire
>>>>adult life with this nameless condition and I finally found it tonight
>>>>here.
>>>>
>>>>It's horrible to wake up in the middle of the night with a pain so
>>>>intense you think you're dying. I've walked the floors, paced, prayed,
>>>>cried, begged, passed out. Oh, occasionally it might happen in the
>>>>middle of the day, but it almost invariably is a night thing. After I
>>>>get an attack, the whole next day I'm lifeless and weak.
>>>>
>>>>A gastroenterologist I consulted about 8 years ago ran the whole gamut
>>>>of tests, internal and external, and could find nothing wrong with me.
>>>>He looked at me like I was off my nut when I told him it felt like
>>>>someone doing a procto exam with their fist. He finally gave a
>>>>frustrated diagnosis of "possibly spastic colon" and put me on a 40
>>>>grams of fiber a day regimen! Oh, I followed it for a while, at least
>>>>till there was no hide left on my poor raw behind, then I dropped back
>>>>to a reasonable amount when not even the fiber stopped the pain. After
>>>>all, I've always eaten healthy, and I have no problem with either
>>>>diarrhea or constipation.
>>>>
>>>>So I've lived with this for years, scared he missed something, scared it
>>>>could be colon cancer or some other horrible life-threatening illness.
>>>>After all, what else could hurt so bad? But tests are expensive, and
>>>>even though you don't want to hear you've got something wrong, it's just
>>>>as frustrating for you to hear that they can't find anything. You pay
>>>>off all those medical bills over the next several months feeling like an
>>>>idiot, and it makes you even more inclined not to go back and get more
>>>>in debt for nothing.
>>>>
>>>>All I can say is that if I could reach inside and touch the pain, it
>>>>would be a few inches inside the colon. Sometimes it feels almost like
>>>>hard period cramps, and it radiates into my tailbone and into my female
>>>>organs too. The pain is always, though, centrally in the colorectal
>>>>area. I just wish I could reach in and massage away the hurt, but
>>>>instead all I can do is pray it's a short spasm and not a long drawn-out
>>>>one. I've even had to lay off from work or go in late the next day I'd
>>>>be so wrung-out from wrestling with the pain.
>>>>
>>>>I'm just curious to hear what everyone else does that actually gives
>>>>relief. The only medicine I've ever gotten any relief with is plain old
>>>>aspirin. Tylenol and other NSAIDS don't seem to bring any, and I'm not
>>>>sure if the aspirin actually works or if the pain is subsiding on its
>>>>own. At any rate, the time it takes for anything to kick in is an
>>>>agonizing wait.
>>>>
>>>>Anyway, thanks for making your website available to women like me who
>>>>have tried everything else and just need to find some common ground.
>>>>Maybe I'll get a little better educated from the others on here who have
>>>>learned to live with this most bizarre disorder.
>>>
>>>--
>>>Try moist heat. I have had proctalgia for many years and have tried everything imagninable to relieve the pain because it is so intense, even a swig of whisky...and I rarely dring any alchoho...but I was desperate. Then finally I discovered that moist heat relieves the pain very quickly. Many internet resources say to fill a tub with hot water and sit in it. However, by the time you do that the pain is beginning to subside on its own. I heat a moist towel in the microwave and then wrap it in another towel, or in a plastic bag with another towel around it. The moist heat helps the pain to go away much faster than anything I have ever tried.
>>>
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