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Re: A couple ??'s - for ramy, CEC
From: ramey (anonymous@obgyn.net)
Thu Jul 3 11:27:34 2008
Thanks! Good to hear!
At Thu, 3 Jul 2008, summer wrote:
>
>At Wed, 7 Nov 2007, Tara wrote:
>>
>>Sherri- I had excision surgery by dr sinervo in March... I didnt have a
>>chance to read your whole thread. I must admit that Heather is AMAZING.
>>She will talk to you about whatever you need to... I have her email if
>>you need it just send me an email offline (taygurl82@yahoo.com) I did
>>have some problems with insurance and the CEC if you want I can discuss
>>that with you so that you may go in a little more prepared with
>>questions. Originally my insurance said they would cover 100% but then
>>denied part of my claim. Can I tell you they answered EVERY ONE of my
>>questions before i went down there... I traveled from NY! I may even
>>still have some of the E-mails if you would like,
>>
>>At Wed, 7 Nov 2007, Sherri wrote:
>>>
>>>Nikki,
>>>
>>>Thank you for your kind words! I have been having a pity-party for the
>>>last 2 days. Dr. Sinervo and Heather sound great, though.
>>>Unfortunately, I have become so jaded and cynical that it is really hard
>>>for me to truly believe in anything that sounds "too good to be true"
>>>right now. I'll have to look at the CEC's website again, and find out
>>>if my insurance would cover them. Will Heather just talk to you on the
>>>phone re: your situation and answer questions? That would be a nice
>>>change! Actually, getting info about them before traveling to see them,
>>>and then, being let down, you know?
>>>
>>>Again, thank you for your words. I need to pull myself together and
>>>find the energy to start this whole process over again. I know I will,
>>>I just know it's gonna be hard.
>>>
>>>Love and sympathy to all suffering with endo!!
>>>
>>>At Tue, 6 Nov 2007, niki wrote:
>>>>
>>>>many many (((HUGS)))
>>>>Personally I would give dr sinervo a chance. If my insurance would
>>>>cover them I would go there. Ive talked to Heather as well as Dr
>>>>Sinervo personally and they both are fantastic. Heather is not just his
>>>>office personel she too has endo. she under went 20 something surgeries
>>>>before seeing dr albee and sinervo. Since having her excision surgery
>>>>with them she has been pain free. I know what you mean about being a
>>>>good wife and mother. This disease SUCKS. and It sucks that so many of
>>>>us myself included have been screwed by the medical doctors. im sorry
>>>>things are so rough and hopefully dr perry will be the right doctor for
>>>>you. I am going to see him to. Hopefully he can ease both our pain and
>>>>we can be that strong woman and mother and wife again. Many (((HUGS)))
>>>>
>>>>At Tue, 6 Nov 2007, anonymous@obgyn.net wrote:
>>>>>
>>>>>Today is not a good day...so far. I usually don't really vent that much
>>>>>on here, but today I am going to. I apologize in advance b/c I know
>>>>>this will be long.
>>>>>
>>>>>Nikki, I don't know what is stopping me from trying Dr. Albee or
>>>>>Sinervo. My family continues to tell me that any and all future
>>>>>surgeries will just cause more problems, b/c that has been true in the
>>>>>past. I have trusted and been hurt (physically and emotionally) from so
>>>>>many doctors, I no longer trust the medical community. My lapratomy and
>>>>>pre-sacral neurectomy were both done at the same time, by the head of
>>>>>the reproductive endochronolgy department at Emory. He was rude,
>>>>>arrogant and condescending to me re: my surgery and my post-op pain.
>>>>>When all was said and done, I learned that he had not even done the
>>>>>surgery. It was a student (or resident, or whatever they're called)
>>>>>that actually did the surgery. The main doc was scrubbed in and present
>>>>>for the procedure (that's what it says on my reports), however, whoever
>>>>>did that surgery cut the wrong nerves and now I have constant pain from
>>>>>the nerve damage on top of the endo and IC I have. Mentally, that
>>>>>surgery and the long recovery took a major toll on me.
>>>>>
>>>>>Hell, this whole ordeal has taken a lot out of me. I really just want
>>>>>to be a good, productive mother, wife, person, and I do not know how to
>>>>>do that and have the energy to fight this disease daily. I've been to
>>>>>every type of specialist you can name, including psychiatrists, and this
>>>>>pain and the problems caused by it never stop. I'm in pain managemnet,
>>>>>for all the good that it does. Somedays are better than others, of
>>>>>course, but I am literally sick of living with this. I don't want to be
>>>>>in pain, I don't want to have to see any more doctors since they have no
>>>>>new ideas. This has been going on for the last 13-14 years, and I know
>>>>>it's never gonna stop...but how do I learn to live, really LIVE with
>>>>>this? I had a total abdominal hysterectomy in 2004, and because of that,
>>>>>most doctors either say that they don't know what to offer me, or they
>>>>>say it's in my head, stress, all that jazz. Lovely.
>>>>>
>>>>>Anyone have any ideas?
>>>>>At Mon, 5 Nov 2007, niki wrote:
>>>>>>
>>>>>>I am in Baldwin County Alabama. Trust me when I say Alabama docs are
>>>>>>not that great. If your close to atlanta why dont you see Dr Albee and
>>>>>>Sinervo? Dr Albee trained Dr Redwine in excision from what i have read.
>>>>>>I have had 2 csections.
>>>>>>
>>>>>>At Mon, 5 Nov 2007, Sherri wrote:
>>>>>>>
>>>>>>>Hi Nikki,
>>>>>>>
>>>>>>>My appointment is scheduled for Dec.12. My regular gyn referred me to
>>>>>>>him stating that Dr. Perry is supposed to be a great endo and pelvic
>>>>>>>pain doctor. I truly hope so!! I also have stage IV endo, have had a
>>>>>>>lap to diagnose (years ago), a c-section, and numerous lapratomies, and
>>>>>>>finally a total hysterctomy. Everything was removed (in 2004), but the
>>>>>>>pain never left! I also had a major surgery at Emory in 2002-lapratomy
>>>>>>>with pre-sacral neurctomy. The PSN was supposed to cut nerves in my
>>>>>>>abdomen and pelvis to try and manage the intense pain, but, the doctor
>>>>>>>there cut the wrong nerve and now I have irreversable illio-inguinal
>>>>>>>nerve damage that competes fiercely with the "normal" endo pain. Fun,
>>>>>>>huh?
>>>>>>>
>>>>>>>I'm assuming you live in Georgia since you mentioned Baldwin County.
>>>>>>>Where do you live? I'm in Rome, small town about an hour or so north of
>>>>>>>Atlanta. I've been to soo many doctors here, in Cartersville, Atlanta,
>>>>>>>etc. so I guess now I'll start seeing doc's in Alabama! LOL! I really
>>>>>>>want Dr. Perry to tell me something new...something that will work, you
>>>>>>>know? Please keep me posted on your visit with him. It's so nice to
>>>>>>>talk to someone else going through this, though I am very sorry that any
>>>>>>>of us have to live with endo...if you can call it living! Personally,
>>>>>>>I'm just trying to get through the day, and then get through the night!!
>>>>>>>
>>>>>>>Good luck to you!!
>>>>>>>
>>>>>>>"They must find it difficult...those who accept authority as the truth,
>>>>>>>instead of truth as the authority"-Gerald Massey
>>>>>>>
>>>>>>>At Sun, 4 Nov 2007, niki wrote:
>>>>>>>>
>>>>>>>>Hi Sherry,
>>>>>>>>
>>>>>>>>I have never seen Dr Perry. I came across his info online and called
>>>>>>>>and scheduled a appt as I am so tired of the doctors here in Baldwin
>>>>>>>>County! I have stage iv endo. I have suffered for 14 years and just
>>>>>>>>underwent my 5th laprascopic surgery. My uterus is covered in endo as
>>>>>>>>is the tubes,uterosacral ligament and the cul de sac. Im still having
>>>>>>>>the same pain i had before surgery this past tues. The doctor removed a
>>>>>>>>great deal yet was unable to remove all of it.
>>>>>>>>The paperwork is overwelming and I will be traveling 5 hours to see Dr
>>>>>>>>Perry. I have heard he is a excellent doctor and that you have to wait
>>>>>>>>a long time to be seen. I guess that comes with the territory of seeing
>>>>>>>>a specialist! He runs the International Pelvic Pain so hopefully thats a
>>>>>>>>good thing! Im hoping he will be able to ease some of the pain I have on
>>>>>>>>a daily basis! I have talked with another girl who had surgery with Dr
>>>>>>>>Perry and she seemed pleased but has had some issues with
>>>>>>>>billing/insurance and such.
>>>>>>>>My appointment is on Dec 4th when do you go?
>>>>>>>>
>>>>>>>>t Sat, 3 Nov 2007, Sherri wrote:
>>>>>>>>>
>>>>>>>>>Nikki,
>>>>>>>>>
>>>>>>>>>Hi! My name is Sherri and as I was reading some posts, I came across one
>>>>>>>>>where you had mentioned that you have an appointment with Dr. Perry in
>>>>>>>>>Birmingham in December....me too! Have you ever seen Dr. Perry before?
>>>>>>>>>Would you mind telling me a bit of your history? I have been living with
>>>>>>>>>endo for the past 13 years or so. My symptoms (mainly pain!) began with
>>>>>>>>>my first period and got worse(became constant) as time went by. I had
>>>>>>>>>numerous surgeries that never really helped and certainly didn't stop
>>>>>>>>>this progressive disease. I eventually ended up having a total
>>>>>>>>>abdominal hysterectomy in 2004. Since that time, my pain has continued
>>>>>>>>>unabated. My gyn referred me to Dr.Perry a few weeks ago, and my first
>>>>>>>>>appointment is in December. I'm very anxious for info on this doctor,
>>>>>>>>>and I can't seem to find any... Have you recieved all the paperwork
>>>>>>>>>from Dr. Perry yet? I found it kinda overwhelming, but then again, I am
>>>>>>>>>just soo tired of having to repeat my story and medical history to yet
>>>>>>>>>another doctor that may or may not be able to help me. UGH! I hate this
>>>>>>>>>disease so much!! Anyway, I was just curious about your opinion on this
>>>>>>>>>doctor. Thanks in advance!!
>>>>>>>>>
>>>>>>>>>Wishing pain-free days to all!!-Sherri :)
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