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Re: to Wen...Re: IUI and endometriosis
From: Ally (anonymous@obgyn.net)
Thu Jul 3 10:43:00 2008
Excision didn't work to get me pregnant (yet). Like I said before,
though, it was worth it for the pain relief and for the assurance that I
did everything I could before I pumped my body full of fertility drugs.
At Thu, 3 Jul 2008, Ally wrote:
>
>I was told the only way to tell of a blocked tube is through an HSG.
>They can't see a hydrosalpinx on u/s. I had the HSG done last August.
>You're right; it is not pleasant. The pain only last for 15 sec. or
>less though, so don't let that deter you from it. I was also told that
>I had pain because my tube was blocked. Maybe yours are not blocked,
>you will have no pain, and it will give you reassurance that all is good
>in that area.
>
>At Thu, 3 Jul 2008, Wen wrote:
>>
>>Thanks so much. Yes, you have given me some food for thought. Is the
>>only way to find out about the tubes by the HSG test? I know this month
>>when I was monitored they said everything looked good and I believe they
>>said it had gone through the tube, but I could be wrong. Do you know
>>anyway to tell this for sure? The doctor was willing to check the tubes
>>again if I wanted, and I keep thinking maybe I should. I heard that it
>>is a really unpleasant procedure, though. The last time I had it I was
>>already out for my lap.
>>
>>I've actually had 2 RE's tell me that surgery would be a last resort due
>>to the affect on the eggs. Neither of them are experts in endo though,
>>but do treat endo a lot and the one did my last surgery and has some
>>kind of special skill with laproscopy.
>>
>>This is all so confusing and stressful! Thanks so much for your support
>>and advice.
>>
>>Good luck to you too!
>>
>>At Thu, 3 Jul 2008, Ally wrote:
>>>
>>>Wen,
>>>
>>>Good luck with whatever you decide. It sounds like your tubes are
>>>probably open (due to the fact you were pg in Jan.). I would say too
>>>that it's a good sign that you did get pregnant. Maybe the IUI is all
>>>you need.
>>>I understand about the FSH issue. The problem is, if you can't have
>>>someone that's a skilled excision doc do the surgery, you can do more
>>>harm to the ovaries than it's worth. So, if your doc isn't comfortable
>>>with it, for whatever reason, I definitely would not have him do a lap.
>>>
>>>Here's a thought, what if one of your tubes is open, but the other is
>>>closed? Ask your doc about that. I was told by my RE that some clinics
>>>will not even do IVF if there's a blocked tube. Something about the
>>>fluid leaking down into the womb from the tube. That whole toxic
>>>environment thing. I had one that was blocked and it was removed during
>>>my surgery. It had already been unblocked once and I was told that it
>>>would just close right back up again if they didn't take it out. My RE
>>>said that 1 good tube was better than 1 good tube and 1 bad tube.
>>>
>>>Hope I've given you some food for thought. Babydust :)
>>>
>>>--
>>>Ally
>>>
>>>At Wed, 2 Jul 2008, Wen wrote:
>>>>
>>>>Thank you so much for your replies. And best of luck to both of you!
>>>>You have both given me things to think about. For some background... I
>>>>have had three laproscopies, with the last being in April 2007 and my
>>>>tubes were checked at that time, although I do realize things could
>>>>change. With each one the doctors found things adhered to each other. I
>>>>also got pregnant on our own and had a miscarriage in January at about 5
>>>>weeks. I guess the doctors were optimistic that since I got pregnant
>>>>once I can do it again (as they kept telling me), so until last month we
>>>>did nothing but natural. This past cycle, I did injections,
>>>>progesterone cream, and natural and was monitored the whole time. All
>>>>blood levels and ultrasounds looked good the entire time, so something
>>>>went wrong at the end. So, IUI along with the injectibles and
>>>>progesterone is where I am now at.
>>>>
>>>>We talked about doing another lap. but my FSH is borderline and the doc
>>>>is concerned that the more we go in the more we are hurting the eggs. So
>>>>another lap, in his opinion, would be a last resort. I had never before
>>>>heard anything about the "toxic environment" this creates in the womb.
>>>>That's scarey!
>>>>
>>>>Thanks again!
>>>>
>>>>At Wed, 2 Jul 2008, summer wrote:
>>>>>
>>>>>Yes! And as I just posted, my tubes were adhered to my ovaries, and my
>>>>>uterus was adhered to my colon! Not married or trying to get pregnant,
>>>>>but there can be so much going on in that area! Toxic indeed...pain
>>>>>relief is good! But imagine getting pregnant, and having all those
>>>>>things pulling on each other as the baby grows...
>>>>>
>>>>>a lot of women have things bound up together!
>>>>>
>>>>>At Wed, 2 Jul 2008, Ally wrote:
>>>>>>
>>>>>>I just saw Summer's post too. I should add that my RE recommended
>>>>>>excision surgery before fertility treatments. He said that just the
>>>>>>presence of endo can create a "toxic" like environment in the womb. I
>>>>>>was hesistant for the surgery, but just the pain relief that it has
>>>>>>given me was well worth it.
>>>>>>
>>>>>>At Wed, 2 Jul 2008, Ally wrote:
>>>>>>>
>>>>>>>Hi Wen,
>>>>>>>
>>>>>>>I just saw my RE yesterday, who is also an endo specialist. We are
>>>>>>>doing Clomid/IUI this cycle for the first time. He said we have a 15%
>>>>>>>chance per cycle with it. Unfortunately, we are not in a mandated
>>>>>>>state, so we would have to pay for IVF out of pocket. Take that, along
>>>>>>>with the invasiveness of the procedure, and we are not ready for
>>>>>>>it...yet.
>>>>>>>
>>>>>>>Just a little history on me: Stage IV endo, 1 tube removed. Last
>>>>>>>surgery was in Dec. RE had us trying on our own for the first 5 cycles.
>>>>>>>So, at least for us, the RE thought there was a possibility that we
>>>>>>>could even do it on our own.
>>>>>>>
>>>>>>>IMO, IUI is definitely worth a try. I don't think you're wasting time
>>>>>>>unless your tubes aren't open. Did you have an HSG? I understand your
>>>>>>>frustration with wasting cycles. Who knows, maybe you'll get an IUI
>>>>>>>baby and then be thankful that you didn't have to go through IVF! Best
>>>>>>>of luck and babydust :)
>>>>>>>
>>>>>>>--
>>>>>>>Ally
>>>>>>>
>>>>>>>At Wed, 2 Jul 2008, Wen wrote:
>>>>>>>>
>>>>>>>>Hi-
>>>>>>>>
>>>>>>>>It is finally time to move on to IUI. Has anyone had any experience
>>>>>>>>with it? My doctor is great, one of the best infertility docs in the
>>>>>>>>country, and he's basically told us that IUI is waste for women with
>>>>>>>>endo. because in women with endo they don't just need to bypass the
>>>>>>>>mucus, they need to bypass everything. Unfortunately due to insurance I
>>>>>>>>have to go through 2 or 3 cycles of IUI before we can move on to IVF. I
>>>>>>>>realize that I am VERY fortunate I live in a state that mandates
>>>>>>>>infertility coverage, but it is so frustrating to know I am probably
>>>>>>>>wasting the next few months when I feel I've wasted so many already. If
>>>>>>>>anyone has any advice, experience with this, etc. please respond. I am
>>>>>>>>very down right now and could use support. Thanks for letting me vent!
>>>>>>>
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