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Re: A couple ??'s - for ramy, CECFrom: summer (anonymous@obgyn.net)Thu Jul 3 03:01:39 2008
At Wed, 7 Nov 2007, Tara wrote: > >Sherri- I had excision surgery by dr sinervo in March... I didnt have a >chance to read your whole thread. I must admit that Heather is AMAZING. >She will talk to you about whatever you need to... I have her email if >you need it just send me an email offline (taygurl82@yahoo.com) I did >have some problems with insurance and the CEC if you want I can discuss >that with you so that you may go in a little more prepared with >questions. Originally my insurance said they would cover 100% but then >denied part of my claim. Can I tell you they answered EVERY ONE of my >questions before i went down there... I traveled from NY! I may even >still have some of the E-mails if you would like, > >At Wed, 7 Nov 2007, Sherri wrote: >> >>Nikki, >> >>Thank you for your kind words! I have been having a pity-party for the >>last 2 days. Dr. Sinervo and Heather sound great, though. >>Unfortunately, I have become so jaded and cynical that it is really hard >>for me to truly believe in anything that sounds "too good to be true" >>right now. I'll have to look at the CEC's website again, and find out >>if my insurance would cover them. Will Heather just talk to you on the >>phone re: your situation and answer questions? That would be a nice >>change! Actually, getting info about them before traveling to see them, >>and then, being let down, you know? >> >>Again, thank you for your words. I need to pull myself together and >>find the energy to start this whole process over again. I know I will, >>I just know it's gonna be hard. >> >>Love and sympathy to all suffering with endo!! >> >>At Tue, 6 Nov 2007, niki wrote: >>> >>>many many (((HUGS))) >>>Personally I would give dr sinervo a chance. If my insurance would >>>cover them I would go there. Ive talked to Heather as well as Dr >>>Sinervo personally and they both are fantastic. Heather is not just his >>>office personel she too has endo. she under went 20 something surgeries >>>before seeing dr albee and sinervo. Since having her excision surgery >>>with them she has been pain free. I know what you mean about being a >>>good wife and mother. This disease SUCKS. and It sucks that so many of >>>us myself included have been screwed by the medical doctors. im sorry >>>things are so rough and hopefully dr perry will be the right doctor for >>>you. I am going to see him to. Hopefully he can ease both our pain and >>>we can be that strong woman and mother and wife again. Many (((HUGS))) >>> >>>At Tue, 6 Nov 2007, anonymous@obgyn.net wrote: >>>> >>>>Today is not a good day...so far. I usually don't really vent that much >>>>on here, but today I am going to. I apologize in advance b/c I know >>>>this will be long. >>>> >>>>Nikki, I don't know what is stopping me from trying Dr. Albee or >>>>Sinervo. My family continues to tell me that any and all future >>>>surgeries will just cause more problems, b/c that has been true in the >>>>past. I have trusted and been hurt (physically and emotionally) from so >>>>many doctors, I no longer trust the medical community. My lapratomy and >>>>pre-sacral neurectomy were both done at the same time, by the head of >>>>the reproductive endochronolgy department at Emory. He was rude, >>>>arrogant and condescending to me re: my surgery and my post-op pain. >>>>When all was said and done, I learned that he had not even done the >>>>surgery. It was a student (or resident, or whatever they're called) >>>>that actually did the surgery. The main doc was scrubbed in and present >>>>for the procedure (that's what it says on my reports), however, whoever >>>>did that surgery cut the wrong nerves and now I have constant pain from >>>>the nerve damage on top of the endo and IC I have. Mentally, that >>>>surgery and the long recovery took a major toll on me. >>>> >>>>Hell, this whole ordeal has taken a lot out of me. I really just want >>>>to be a good, productive mother, wife, person, and I do not know how to >>>>do that and have the energy to fight this disease daily. I've been to >>>>every type of specialist you can name, including psychiatrists, and this >>>>pain and the problems caused by it never stop. I'm in pain managemnet, >>>>for all the good that it does. Somedays are better than others, of >>>>course, but I am literally sick of living with this. I don't want to be >>>>in pain, I don't want to have to see any more doctors since they have no >>>>new ideas. This has been going on for the last 13-14 years, and I know >>>>it's never gonna stop...but how do I learn to live, really LIVE with >>>>this? I had a total abdominal hysterectomy in 2004, and because of that, >>>>most doctors either say that they don't know what to offer me, or they >>>>say it's in my head, stress, all that jazz. Lovely. >>>> >>>>Anyone have any ideas? >>>>At Mon, 5 Nov 2007, niki wrote: >>>>> >>>>>I am in Baldwin County Alabama. Trust me when I say Alabama docs are >>>>>not that great. If your close to atlanta why dont you see Dr Albee and >>>>>Sinervo? Dr Albee trained Dr Redwine in excision from what i have read. >>>>>I have had 2 csections. >>>>> >>>>>At Mon, 5 Nov 2007, Sherri wrote: >>>>>> >>>>>>Hi Nikki, >>>>>> >>>>>>My appointment is scheduled for Dec.12. My regular gyn referred me to >>>>>>him stating that Dr. Perry is supposed to be a great endo and pelvic >>>>>>pain doctor. I truly hope so!! I also have stage IV endo, have had a >>>>>>lap to diagnose (years ago), a c-section, and numerous lapratomies, and >>>>>>finally a total hysterctomy. Everything was removed (in 2004), but the >>>>>>pain never left! I also had a major surgery at Emory in 2002-lapratomy >>>>>>with pre-sacral neurctomy. The PSN was supposed to cut nerves in my >>>>>>abdomen and pelvis to try and manage the intense pain, but, the doctor >>>>>>there cut the wrong nerve and now I have irreversable illio-inguinal >>>>>>nerve damage that competes fiercely with the "normal" endo pain. Fun, >>>>>>huh? >>>>>> >>>>>>I'm assuming you live in Georgia since you mentioned Baldwin County. >>>>>>Where do you live? I'm in Rome, small town about an hour or so north of >>>>>>Atlanta. I've been to soo many doctors here, in Cartersville, Atlanta, >>>>>>etc. so I guess now I'll start seeing doc's in Alabama! LOL! I really >>>>>>want Dr. Perry to tell me something new...something that will work, you >>>>>>know? Please keep me posted on your visit with him. It's so nice to >>>>>>talk to someone else going through this, though I am very sorry that any >>>>>>of us have to live with endo...if you can call it living! Personally, >>>>>>I'm just trying to get through the day, and then get through the night!! >>>>>> >>>>>>Good luck to you!! >>>>>> >>>>>>"They must find it difficult...those who accept authority as the truth, >>>>>>instead of truth as the authority"-Gerald Massey >>>>>> >>>>>>At Sun, 4 Nov 2007, niki wrote: >>>>>>> >>>>>>>Hi Sherry, >>>>>>> >>>>>>>I have never seen Dr Perry. I came across his info online and called >>>>>>>and scheduled a appt as I am so tired of the doctors here in Baldwin >>>>>>>County! I have stage iv endo. I have suffered for 14 years and just >>>>>>>underwent my 5th laprascopic surgery. My uterus is covered in endo as >>>>>>>is the tubes,uterosacral ligament and the cul de sac. Im still having >>>>>>>the same pain i had before surgery this past tues. The doctor removed a >>>>>>>great deal yet was unable to remove all of it. >>>>>>>The paperwork is overwelming and I will be traveling 5 hours to see Dr >>>>>>>Perry. I have heard he is a excellent doctor and that you have to wait >>>>>>>a long time to be seen. I guess that comes with the territory of seeing >>>>>>>a specialist! He runs the International Pelvic Pain so hopefully thats a >>>>>>>good thing! Im hoping he will be able to ease some of the pain I have on >>>>>>>a daily basis! I have talked with another girl who had surgery with Dr >>>>>>>Perry and she seemed pleased but has had some issues with >>>>>>>billing/insurance and such. >>>>>>>My appointment is on Dec 4th when do you go? >>>>>>> >>>>>>>t Sat, 3 Nov 2007, Sherri wrote: >>>>>>>> >>>>>>>>Nikki, >>>>>>>> >>>>>>>>Hi! My name is Sherri and as I was reading some posts, I came across one >>>>>>>>where you had mentioned that you have an appointment with Dr. Perry in >>>>>>>>Birmingham in December....me too! Have you ever seen Dr. Perry before? >>>>>>>>Would you mind telling me a bit of your history? I have been living with >>>>>>>>endo for the past 13 years or so. My symptoms (mainly pain!) began with >>>>>>>>my first period and got worse(became constant) as time went by. I had >>>>>>>>numerous surgeries that never really helped and certainly didn't stop >>>>>>>>this progressive disease. I eventually ended up having a total >>>>>>>>abdominal hysterectomy in 2004. Since that time, my pain has continued >>>>>>>>unabated. My gyn referred me to Dr.Perry a few weeks ago, and my first >>>>>>>>appointment is in December. I'm very anxious for info on this doctor, >>>>>>>>and I can't seem to find any... Have you recieved all the paperwork >>>>>>>>from Dr. Perry yet? I found it kinda overwhelming, but then again, I am >>>>>>>>just soo tired of having to repeat my story and medical history to yet >>>>>>>>another doctor that may or may not be able to help me. UGH! I hate this >>>>>>>>disease so much!! Anyway, I was just curious about your opinion on this >>>>>>>>doctor. Thanks in advance!! >>>>>>>> >>>>>>>>Wishing pain-free days to all!!-Sherri :)
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