|
Re: Any postive feedback about Lupron....to Gloria
From: summer (anonymous@obgyn.net)
Tue Jul 1 13:54:14 2008
I'm a little lost here, but have you had surgery? Is this the area of
the cul-de-sac, where endo is often excised? Or is this something along
the lines of where women have some bowel parts re-sected?
At Tue, 1 Jul 2008, MWA wrote:
>
>Sorry for the delayed response . . . I've been out of town. I was
>having bladder and major intestinal issues prior to surgery/Lupron.
>Apparently the endo is in the wall of the rectum and had caused it to
>only allow an opening of 2cm (and it did not stretch normally to allow
>stool to pass correctly, hence the horrible pain).
>
>At Thu, 12 Jun 2008, anonymous wrote:
>>
>>at least your doctor seems to know how to handle lupron than most!
>>
>>At Thu, 12 Jun 2008, Nicole wrote:
>>>
>>>Were you having bladder problems before Lupron? Frequency or pain
>>>issues?
>>>
>>>At Wed, 11 Jun 2008, MWA wrote:
>>>>
>>>>I also have had a positive experience with Lupron! I've been on it for
>>>>almost 6 months now (post laproscopy) and have 1 more shot before trying
>>>>IVF one more time. The pain prior to Lupron was so excrutiating and
>>>>literally 1 week after my 1st Lupron injection, I was able to go to the
>>>>bathroom like a normal personal again. I've had almost no pain since
>>>>being on the Lupron. I will say though, my doctor was opposed to me
>>>>doing the 3 month dose because she said she had never had a patient with
>>>>good experiences on that one. She recommended either the 3.75mg dose or
>>>>the 7.5mg dose (I've been on the 7.5mg dose and doing a shot every 6
>>>>weeks). After 3 months, they added back Norethindrone, which is a low
>>>>dose progesterone/estrogen. This helped significantly with the hot
>>>>flashes, irritability, lack of sleep, and bone/joint aches. However,
>>>>now I'm retainig water and have gained some weight. . . but, I'm
>>>>still almost pain free.
>>>>
>>>>At Wed, 11 Jun 2008, anonymous wrote:
>>>>>
>>>>>Gloria,
>>>>>
>>>>>Can you tell me more about the endometriosis diet you are on? Is there a
>>>>>website that I can go to and check out this diet?
>>>>>
>>>>>At Wed, 11 Jun 2008, Gloria wrote:
>>>>>>
>>>>>>I have a positive experience with Lupron--yeah! I had read on all the
>>>>>>forums that it was going to be pure hell, etc. etc. . . . but, to
>>>>>>be honest, I loved it! Mind you, the Dr. said that I was rare, but the
>>>>>>Lupron was amazing because it stopped all the excruciating pain that I
>>>>>>was having. Yeah!!!! I was on it for three months. Now, of course,
>>>>>>coming out of menopause was pretty sucky. Yes, it was. But the Lupron
>>>>>>wasn't. My symptoms haven't really come back either . . . but I also
>>>>>>had a second surgery with a specialist right after the Lupron. It has
>>>>>>been about four months and I'm still good--I hope it stays that way. Of
>>>>>>course, I generally eat a strict endometriosis diet, too. I can't tell
>>>>>>you how much that has saved my life.
>>>>>>
>>>>>>I did get hot flashes, etc. with Lupron . . . but as long as you eat
>>>>>>right and drink A LOT of ice water, that stuff really doesn't happen
>>>>>>that much.
>>>>>>
>>>>>>Good luck!
>>>>>>
>>>>>>At Tue, 10 Jun 2008, anonymous wrote:
>>>>>>>
>>>>>>>I've done Lupron several times. It was very tolerable. My final
>>>>>>>thoughts was that it acted as a band-aid and covered things up for a
>>>>>>>while, but once it wears off symptoms back again. Then, who knows what
>>>>>>>kind of side effects we will have inthe future due to this drug.
>>>>>>>
>>>>>>>At Sat, 7 Jun 2008, anonymous wrote:
>>>>>>>>
>>>>>>>>has your doctor used lupron? the side effects can be horrible, at least
>>>>>>>>get the one month shot
>>>>>>>>
>>>>>>>>At Fri, 6 Jun 2008, Wendy wrote:
>>>>>>>>>
>>>>>>>>>Thank you for your encouraging words. I'm just a little bit nervous
>>>>>>>>>about the fact that it's a three-month shot. My doctor and I figure
>>>>>>>>>that I'll be a little bit uncomfotable while I'm on the shot, but maybe
>>>>>>>>>it will be no worse than I feel now.
>>>>>>>>>
>>>>>>>>>At Thu, 5 Jun 2008, anonymous wrote:
>>>>>>>>>>
>>>>>>>>>>I can give you a little bit of positive about the 3-month Lupron shot. I
>>>>>>>>>>had my first 11.25 mg Lupron shot 5/6/08 to see if suppressing remaining
>>>>>>>>>>ovary will help and if I should have it out. I also take the
>>>>>>>>>>norethindrone (teeny tiny dose of estrogen) add-back.
>>>>>>>>>>
>>>>>>>>>>I've definitely had SLIGHTLY concerning issues and questions about the
>>>>>>>>>>Lupron/add-back but I won't bore you with my big ol' long story.
>>>>>>>>>>However, at four weeks in (and I KNOW it can all change and I may be
>>>>>>>>>>singing a different tune at some point in the future) I have practically
>>>>>>>>>>no pain from endo. I'm feeling pretty good - better than in a really
>>>>>>>>>>long time. My little side issues may and may not be from Lupron. As
>>>>>>>>>>sad as it is, if I have to weigh the pros and cons of pre and post
>>>>>>>>>>Lupron, I'd have to go w/Lupron again. (Again, I'm only a little over 4
>>>>>>>>>>weeks in. Please keep that in mind.) I plan on keeping my next Lupron
>>>>>>>>>>injection appointment.
>>>>>>>>>>
>>>>>>>>>>Mood swings are there but tolerable. I just have to keep in mind that
>>>>>>>>>>they were so bad about 2 weeks in that I made my 16-year-old son cry
>>>>>>>>>>(and he NEVER cries). If I think about that, it keeps my mood fairly in
>>>>>>>>>>check. I should be menopausal by now (I believe that's by 3 weeks) but
>>>>>>>>>>i've not had the first hot flash yet (but they may very well be on the
>>>>>>>>>>way!). Mind is foggy (really bad the 2nd and 3rd weeks) but seems to be
>>>>>>>>>>getting better. A little joint pain - not bad. Headache last few days
>>>>>>>>>>but could be allergies or just a plain ol' headache.
>>>>>>>>>>
>>>>>>>>>>Talk to your dr. again about it if you're that worried. That's what I
>>>>>>>>>>did. Good luck with your decision!
>>>>>>>>>>
>>>>>>>>>>At Thu, 5 Jun 2008, niki wrote:
>>>>>>>>>>>
>>>>>>>>>>>I have no positive feedback either. I will tell you the med given to
>>>>>>>>>>>lessen effects is estrogen. Endo feeds on estrogen. So be careful!
>>>>>>>>>>>There are several websites you can research. One is
>>>>>>>>>>>http://www.lupronexposed.com I will tell you lupron does not cure endo. It is
>>>>>>>>>>>a temporary fix to a long term issue. And make sure you are well
>>>>>>>>>>>informed as since lupron I now have several issues im dealing with
>>>>>>>>>>>thanks to lupron. Good luck in your decision and I hope lupron works
>>>>>>>>>>>better for you than for I as I now suffer from fibromyalgia and
>>>>>>>>>>>myofacial pain.
>>>>>>>>>>>
>>>>>>>>>>>At Wed, 4 Jun 2008, Alison wrote:
>>>>>>>>>>>>
>>>>>>>>>>>>I'm sorry, I don't have any positive feedback for you, but I am
>>>>>>>>>>>>wondering about your Dr's plan to give you the 3-month shot to start. I
>>>>>>>>>>>>was under the impression that they always start with the 1 month shot to
>>>>>>>>>>>>see if it is tolerated. That way, if you have any serious side effects
>>>>>>>>>>>>or problems with it, there is a much shorter time you have to tolerate
>>>>>>>>>>>>the symptoms.
>>>>>>>>>>>>
>>>>>>>>>>>>At Wed, 4 Jun 2008, Wendy wrote:
>>>>>>>>>>>>>
>>>>>>>>>>>>>I have been on numrous medications to treat the bleeding that I have
>>>>>>>>>>>>>every single day due to my endometriosis (I've been bleeding for pretty
>>>>>>>>>>>>>much every day since February of last year). Even the depo-provera shot
>>>>>>>>>>>>>did not work ('ve had three injections). My doctor said that she didn't
>>>>>>>>>>>>>know what else to do with me except to put me on Lupron. I am scheled
>>>>>>>>>>>>>to have the Lupron shot this upcoming Monday. It's the three month
>>>>>>>>>>>>>injection. I know there is a lot of negative feedback about Lupron, but
>>>>>>>>>>>>>does anyone have any postive feedback that they could offer me? My
>>>>>>>>>>>>>doctor is also going to put me on some type of other medication (birth
>>>>>>>>>>>>>control?) in order to lessen some of the side effects of Lupron (hot
>>>>>>>>>>>>>flashes, mood swings, etc.).
|
|
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)