|
Re: Any postive feedback about Lupron....to Gloria
From: MWA (anonymous@obgyn.net)
Tue Jul 1 09:10:38 2008
Sorry for the delayed response . . . I've been out of town. I was
having bladder and major intestinal issues prior to surgery/Lupron.
Apparently the endo is in the wall of the rectum and had caused it to
only allow an opening of 2cm (and it did not stretch normally to allow
stool to pass correctly, hence the horrible pain).
At Thu, 12 Jun 2008, anonymous wrote:
>
>at least your doctor seems to know how to handle lupron than most!
>
>At Thu, 12 Jun 2008, Nicole wrote:
>>
>>Were you having bladder problems before Lupron? Frequency or pain
>>issues?
>>
>>At Wed, 11 Jun 2008, MWA wrote:
>>>
>>>I also have had a positive experience with Lupron! I've been on it for
>>>almost 6 months now (post laproscopy) and have 1 more shot before trying
>>>IVF one more time. The pain prior to Lupron was so excrutiating and
>>>literally 1 week after my 1st Lupron injection, I was able to go to the
>>>bathroom like a normal personal again. I've had almost no pain since
>>>being on the Lupron. I will say though, my doctor was opposed to me
>>>doing the 3 month dose because she said she had never had a patient with
>>>good experiences on that one. She recommended either the 3.75mg dose or
>>>the 7.5mg dose (I've been on the 7.5mg dose and doing a shot every 6
>>>weeks). After 3 months, they added back Norethindrone, which is a low
>>>dose progesterone/estrogen. This helped significantly with the hot
>>>flashes, irritability, lack of sleep, and bone/joint aches. However,
>>>now I'm retainig water and have gained some weight. . . but, I'm
>>>still almost pain free.
>>>
>>>At Wed, 11 Jun 2008, anonymous wrote:
>>>>
>>>>Gloria,
>>>>
>>>>Can you tell me more about the endometriosis diet you are on? Is there a
>>>>website that I can go to and check out this diet?
>>>>
>>>>At Wed, 11 Jun 2008, Gloria wrote:
>>>>>
>>>>>I have a positive experience with Lupron--yeah! I had read on all the
>>>>>forums that it was going to be pure hell, etc. etc. . . . but, to
>>>>>be honest, I loved it! Mind you, the Dr. said that I was rare, but the
>>>>>Lupron was amazing because it stopped all the excruciating pain that I
>>>>>was having. Yeah!!!! I was on it for three months. Now, of course,
>>>>>coming out of menopause was pretty sucky. Yes, it was. But the Lupron
>>>>>wasn't. My symptoms haven't really come back either . . . but I also
>>>>>had a second surgery with a specialist right after the Lupron. It has
>>>>>been about four months and I'm still good--I hope it stays that way. Of
>>>>>course, I generally eat a strict endometriosis diet, too. I can't tell
>>>>>you how much that has saved my life.
>>>>>
>>>>>I did get hot flashes, etc. with Lupron . . . but as long as you eat
>>>>>right and drink A LOT of ice water, that stuff really doesn't happen
>>>>>that much.
>>>>>
>>>>>Good luck!
>>>>>
>>>>>At Tue, 10 Jun 2008, anonymous wrote:
>>>>>>
>>>>>>I've done Lupron several times. It was very tolerable. My final
>>>>>>thoughts was that it acted as a band-aid and covered things up for a
>>>>>>while, but once it wears off symptoms back again. Then, who knows what
>>>>>>kind of side effects we will have inthe future due to this drug.
>>>>>>
>>>>>>At Sat, 7 Jun 2008, anonymous wrote:
>>>>>>>
>>>>>>>has your doctor used lupron? the side effects can be horrible, at least
>>>>>>>get the one month shot
>>>>>>>
>>>>>>>At Fri, 6 Jun 2008, Wendy wrote:
>>>>>>>>
>>>>>>>>Thank you for your encouraging words. I'm just a little bit nervous
>>>>>>>>about the fact that it's a three-month shot. My doctor and I figure
>>>>>>>>that I'll be a little bit uncomfotable while I'm on the shot, but maybe
>>>>>>>>it will be no worse than I feel now.
>>>>>>>>
>>>>>>>>At Thu, 5 Jun 2008, anonymous wrote:
>>>>>>>>>
>>>>>>>>>I can give you a little bit of positive about the 3-month Lupron shot. I
>>>>>>>>>had my first 11.25 mg Lupron shot 5/6/08 to see if suppressing remaining
>>>>>>>>>ovary will help and if I should have it out. I also take the
>>>>>>>>>norethindrone (teeny tiny dose of estrogen) add-back.
>>>>>>>>>
>>>>>>>>>I've definitely had SLIGHTLY concerning issues and questions about the
>>>>>>>>>Lupron/add-back but I won't bore you with my big ol' long story.
>>>>>>>>>However, at four weeks in (and I KNOW it can all change and I may be
>>>>>>>>>singing a different tune at some point in the future) I have practically
>>>>>>>>>no pain from endo. I'm feeling pretty good - better than in a really
>>>>>>>>>long time. My little side issues may and may not be from Lupron. As
>>>>>>>>>sad as it is, if I have to weigh the pros and cons of pre and post
>>>>>>>>>Lupron, I'd have to go w/Lupron again. (Again, I'm only a little over 4
>>>>>>>>>weeks in. Please keep that in mind.) I plan on keeping my next Lupron
>>>>>>>>>injection appointment.
>>>>>>>>>
>>>>>>>>>Mood swings are there but tolerable. I just have to keep in mind that
>>>>>>>>>they were so bad about 2 weeks in that I made my 16-year-old son cry
>>>>>>>>>(and he NEVER cries). If I think about that, it keeps my mood fairly in
>>>>>>>>>check. I should be menopausal by now (I believe that's by 3 weeks) but
>>>>>>>>>i've not had the first hot flash yet (but they may very well be on the
>>>>>>>>>way!). Mind is foggy (really bad the 2nd and 3rd weeks) but seems to be
>>>>>>>>>getting better. A little joint pain - not bad. Headache last few days
>>>>>>>>>but could be allergies or just a plain ol' headache.
>>>>>>>>>
>>>>>>>>>Talk to your dr. again about it if you're that worried. That's what I
>>>>>>>>>did. Good luck with your decision!
>>>>>>>>>
>>>>>>>>>At Thu, 5 Jun 2008, niki wrote:
>>>>>>>>>>
>>>>>>>>>>I have no positive feedback either. I will tell you the med given to
>>>>>>>>>>lessen effects is estrogen. Endo feeds on estrogen. So be careful!
>>>>>>>>>>There are several websites you can research. One is
>>>>>>>>>>http://www.lupronexposed.com I will tell you lupron does not cure endo. It is
>>>>>>>>>>a temporary fix to a long term issue. And make sure you are well
>>>>>>>>>>informed as since lupron I now have several issues im dealing with
>>>>>>>>>>thanks to lupron. Good luck in your decision and I hope lupron works
>>>>>>>>>>better for you than for I as I now suffer from fibromyalgia and
>>>>>>>>>>myofacial pain.
>>>>>>>>>>
>>>>>>>>>>At Wed, 4 Jun 2008, Alison wrote:
>>>>>>>>>>>
>>>>>>>>>>>I'm sorry, I don't have any positive feedback for you, but I am
>>>>>>>>>>>wondering about your Dr's plan to give you the 3-month shot to start. I
>>>>>>>>>>>was under the impression that they always start with the 1 month shot to
>>>>>>>>>>>see if it is tolerated. That way, if you have any serious side effects
>>>>>>>>>>>or problems with it, there is a much shorter time you have to tolerate
>>>>>>>>>>>the symptoms.
>>>>>>>>>>>
>>>>>>>>>>>At Wed, 4 Jun 2008, Wendy wrote:
>>>>>>>>>>>>
>>>>>>>>>>>>I have been on numrous medications to treat the bleeding that I have
>>>>>>>>>>>>every single day due to my endometriosis (I've been bleeding for pretty
>>>>>>>>>>>>much every day since February of last year). Even the depo-provera shot
>>>>>>>>>>>>did not work ('ve had three injections). My doctor said that she didn't
>>>>>>>>>>>>know what else to do with me except to put me on Lupron. I am scheled
>>>>>>>>>>>>to have the Lupron shot this upcoming Monday. It's the three month
>>>>>>>>>>>>injection. I know there is a lot of negative feedback about Lupron, but
>>>>>>>>>>>>does anyone have any postive feedback that they could offer me? My
>>>>>>>>>>>>doctor is also going to put me on some type of other medication (birth
>>>>>>>>>>>>control?) in order to lessen some of the side effects of Lupron (hot
>>>>>>>>>>>>flashes, mood swings, etc.).
|
|
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)