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Re: CEC ?
From: Amanda (anonymous@obgyn.net)
Mon Jun 30 12:27:22 2008
Hmmm I will have to talk to him about the appendix when I send in all my
information. Thanks so much.
At Mon, 30 Jun 2008, heavenlygarcia wrote:
>
>Thank you so much for that huge list of drs I live in Mauldin,
>Greenville area in SC. I looked into that diet after someone replyed on
>a diffent thread that peanut butter can cause pain, and I already don't
>eat wheat due to the bloating it gives me and I'm vegan so I'm afraid I
>will starve if I try that. I have already went from 95lbs to 89lbs in 2
>months after cutting out wheat. I had to start taking that metimusel to
>replace all the fiber I'm not getting, I was getting constipated due to
>lack of fiber. It's starting help with that. They took my appendix out
>well, I went for my pre op appt. and Dr. Sinvero asked if I wanted it
>out since they were going in there so I never had to worry about it, and
>that all the inflamation in my pelvis can agrivate it so it would be
>best. Then in the post op report it said that my appendix did look
>abmormal but it didn't specify exectly what that meant. I emailed the
>cec about the surgey not working going back and geting another one with
>no co-pay thing, and they said they would reveiw my records and get back
>to me about it. I don't know if another surgery will help but what the
>hell why not if it's practically free. I still am working out stuff
>with my insurace co from the one in december though!!! I would have to
>wait till it's all cleared up and settled. I have not eaten peanut
>butter since I read about it causeing pain. My body just craves it for
>the fat I think b/c I don't eat much b/c I don't feel good, and I don't
>have like any carbs. I'll have to find something else to eat to get it.
>I'll try to cut out a few things but I can't just eat the same 3 things
>the rest of life. I did know that some BC can cause ovarian cysts but I
>guess I never really thought about it. They just are trying to prevent
>me from having a period b/c it's increadibly painful for me. Thanks for
>all the help and advice and anytime any of you want to ask something
>feel free, I love to help out.
>
>At Mon, 30 Jun 2008, summer wrote:
>>
>>http://www.medhelp.org/forums/gastro/archive/732.html
>>
>>of any help? interesting!
>>
>>At Mon, 30 Jun 2008, Amanda wrote:
>>>
>>>Hey heavenlygarcia! I was wondering why they took out your appendix?
>>>When I had my last laproscopy, I was told that my appendix was
>>>retrocecal (appendix lies behind where it's supposed to be), and I was
>>>wondering if that could be the cause of any of my problems I am
>>>having???
>>>
>>>At Sun, 29 Jun 2008, heavenlygarcia wrote:
>>>>
>>>>I had my surgery with dr. Sinvero. I haven't heard about the policy
>>>>about getting surgery again if needed. I'll have to look into that.
>>>>They removed endo, took a poylp out of my uterus, took out my apendix,
>>>>did a LUNA (cutting of utero sacral ligaments), Took a cyst off my
>>>>ovary. I don't think they will still perscribe meds after 3 months,
>>>>they did up to then, then dr. sinvero called me to see if I was feeling
>>>>better yet since he knew I was not having good results he then told me i
>>>>have adeno, I don't know why he waited so long to tell me but whatever.
>>>>I think he would be willing to email me back if i emailed him. But, i
>>>>don't know how he could help from a state away. After they get your
>>>>info they will send you a packet with everything you need to know. I
>>>>don't know that all this pain is from adeno, it's more on either side of
>>>>my lower abdomen, not in the middle so much, i feel like my ovaries are
>>>>trying to escape. I hope I answered all your questions if not write
>>>>again.
>>>>
>>>>At Fri, 27 Jun 2008, summer wrote:
>>>>>
>>>>>Hi, which doctor did your surgery? Can I ask what they did during
>>>>>surgery? Also, I thought their policy was to allow you to have surgery
>>>>>again if you needed it, and they would only charge your insurance
>>>>>company, and not any co-pay for you?
>>>>>
>>>>>Have you ever had any relief? HUGS!
>>>>>
>>>>>At Fri, 27 Jun 2008, heavenlygarcia wrote:
>>>>>>
>>>>>>I had surgery with the CEC in December 07'. The drs are very very nice
>>>>>>and make you feel more comfortable than any others I have met. They
>>>>>>listen to you and really care. My only problem was that after my
>>>>>>surgery (which was the second one in five months) I have not felt better
>>>>>>and in the last 2 weeks have felt so incredibly bad I have no life. But,
>>>>>>this is not thier fault at all. They did the surgery needed and did it
>>>>>>properly. Though I wish they would of told me they were going to
>>>>>>preform a LUNA, I would of said no, it's not covered by my insurance and
>>>>>>it's not medically proven that it really does help all that much. I'm
>>>>>>just one of the unlucky small percent that don't get relief from a
>>>>>>surgery. I do wish they would agree to treat you longer than 3 months
>>>>>>post surgery b/c I am too scared to go to another dr. I don't think I
>>>>>>trust any other dr. to give me proper treatment. they are all lupron
>>>>>>pushers. There are nothing but good things said by everyone about them,
>>>>>>and good experiences, I'm just unlucky. Even the receptionist is really
>>>>>>nice. I would recommend them. Good luck, and after you send your info
>>>>>>to them the dr. calls you personally and is more than happy to email
>>>>>>you back and forth with any questions or concerns you may have.
>>>>>>
>>>>>>At Fri, 27 Jun 2008, Octfire wrote:
>>>>>>>
>>>>>>>Ok so I was sent to the Center for Ednometriosis Care website. It was
>>>>>>>very interesting! I learned a lot about endo that I never knew. I am
>>>>>>>curious though. Has anyone gone there? And were you happy with the
>>>>>>>doctors? I'm looking for a doctor who won't give up and will continue to
>>>>>>>try to figure outt the problem. Or at least get me out of this extreme
>>>>>>>pain. If any one has a view point of CEC I would love to hear it. Thank
>>>>>>>You
>>>
>>>--
>>>Amanda
>>>
--
Amanda
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