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Re: CEC ?
From: heavenlygarcia (anonymous@obgyn.net)
Mon Jun 30 12:17:34 2008
Thank you so much for that huge list of drs I live in Mauldin,
Greenville area in SC. I looked into that diet after someone replyed on
a diffent thread that peanut butter can cause pain, and I already don't
eat wheat due to the bloating it gives me and I'm vegan so I'm afraid I
will starve if I try that. I have already went from 95lbs to 89lbs in 2
months after cutting out wheat. I had to start taking that metimusel to
replace all the fiber I'm not getting, I was getting constipated due to
lack of fiber. It's starting help with that. They took my appendix out
well, I went for my pre op appt. and Dr. Sinvero asked if I wanted it
out since they were going in there so I never had to worry about it, and
that all the inflamation in my pelvis can agrivate it so it would be
best. Then in the post op report it said that my appendix did look
abmormal but it didn't specify exectly what that meant. I emailed the
cec about the surgey not working going back and geting another one with
no co-pay thing, and they said they would reveiw my records and get back
to me about it. I don't know if another surgery will help but what the
hell why not if it's practically free. I still am working out stuff
with my insurace co from the one in december though!!! I would have to
wait till it's all cleared up and settled. I have not eaten peanut
butter since I read about it causeing pain. My body just craves it for
the fat I think b/c I don't eat much b/c I don't feel good, and I don't
have like any carbs. I'll have to find something else to eat to get it.
I'll try to cut out a few things but I can't just eat the same 3 things
the rest of life. I did know that some BC can cause ovarian cysts but I
guess I never really thought about it. They just are trying to prevent
me from having a period b/c it's increadibly painful for me. Thanks for
all the help and advice and anytime any of you want to ask something
feel free, I love to help out.
At Mon, 30 Jun 2008, summer wrote:
>
>http://www.medhelp.org/forums/gastro/archive/732.html
>
>of any help? interesting!
>
>At Mon, 30 Jun 2008, Amanda wrote:
>>
>>Hey heavenlygarcia! I was wondering why they took out your appendix?
>>When I had my last laproscopy, I was told that my appendix was
>>retrocecal (appendix lies behind where it's supposed to be), and I was
>>wondering if that could be the cause of any of my problems I am
>>having???
>>
>>At Sun, 29 Jun 2008, heavenlygarcia wrote:
>>>
>>>I had my surgery with dr. Sinvero. I haven't heard about the policy
>>>about getting surgery again if needed. I'll have to look into that.
>>>They removed endo, took a poylp out of my uterus, took out my apendix,
>>>did a LUNA (cutting of utero sacral ligaments), Took a cyst off my
>>>ovary. I don't think they will still perscribe meds after 3 months,
>>>they did up to then, then dr. sinvero called me to see if I was feeling
>>>better yet since he knew I was not having good results he then told me i
>>>have adeno, I don't know why he waited so long to tell me but whatever.
>>>I think he would be willing to email me back if i emailed him. But, i
>>>don't know how he could help from a state away. After they get your
>>>info they will send you a packet with everything you need to know. I
>>>don't know that all this pain is from adeno, it's more on either side of
>>>my lower abdomen, not in the middle so much, i feel like my ovaries are
>>>trying to escape. I hope I answered all your questions if not write
>>>again.
>>>
>>>At Fri, 27 Jun 2008, summer wrote:
>>>>
>>>>Hi, which doctor did your surgery? Can I ask what they did during
>>>>surgery? Also, I thought their policy was to allow you to have surgery
>>>>again if you needed it, and they would only charge your insurance
>>>>company, and not any co-pay for you?
>>>>
>>>>Have you ever had any relief? HUGS!
>>>>
>>>>At Fri, 27 Jun 2008, heavenlygarcia wrote:
>>>>>
>>>>>I had surgery with the CEC in December 07'. The drs are very very nice
>>>>>and make you feel more comfortable than any others I have met. They
>>>>>listen to you and really care. My only problem was that after my
>>>>>surgery (which was the second one in five months) I have not felt better
>>>>>and in the last 2 weeks have felt so incredibly bad I have no life. But,
>>>>>this is not thier fault at all. They did the surgery needed and did it
>>>>>properly. Though I wish they would of told me they were going to
>>>>>preform a LUNA, I would of said no, it's not covered by my insurance and
>>>>>it's not medically proven that it really does help all that much. I'm
>>>>>just one of the unlucky small percent that don't get relief from a
>>>>>surgery. I do wish they would agree to treat you longer than 3 months
>>>>>post surgery b/c I am too scared to go to another dr. I don't think I
>>>>>trust any other dr. to give me proper treatment. they are all lupron
>>>>>pushers. There are nothing but good things said by everyone about them,
>>>>>and good experiences, I'm just unlucky. Even the receptionist is really
>>>>>nice. I would recommend them. Good luck, and after you send your info
>>>>>to them the dr. calls you personally and is more than happy to email
>>>>>you back and forth with any questions or concerns you may have.
>>>>>
>>>>>At Fri, 27 Jun 2008, Octfire wrote:
>>>>>>
>>>>>>Ok so I was sent to the Center for Ednometriosis Care website. It was
>>>>>>very interesting! I learned a lot about endo that I never knew. I am
>>>>>>curious though. Has anyone gone there? And were you happy with the
>>>>>>doctors? I'm looking for a doctor who won't give up and will continue to
>>>>>>try to figure outt the problem. Or at least get me out of this extreme
>>>>>>pain. If any one has a view point of CEC I would love to hear it. Thank
>>>>>>You
>>
>>--
>>Amanda
>>
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