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My RE does not have a clue - frustrated!From: Terese (anonymous@obgyn.net)Sun Jun 29 18:44:23 2008
Okay, so I have had endo for quite some time now. I have severe pain and can't get pregnant. I have had 2 laps, both of which have not helped with pain. In addition to endo symptoms, I have had a number of other weird symptoms like 2-3 weeks straight of bleeding (like an extremly long period), my hair falls out like crazy, at one point my breasts shrunk down about 1/2 my size (that freaked me out), my progesterone is low, my testerone is slightly elevated, I'm cold all of the time and I have other odd symptoms as well. I explained all of this to my reproductive endocrinologist, but his only concern was putting me on clomid or doing in-vitro. He was not concerned at all with all of my symptoms. Before jumping into all of these costly and possibly unecessary fertility treatments, I asked him to do a thyroid panel. He refused to do a full thyroid panel, but did test my TSH. The TSH came back high and he didn't even say anything about it! I asked for a copy of my test results and found out on my own. During my last appointment, I brought my TSH level up and the nurse practitioner (since my lap, the the nurse has been seeing me instead) and she tried telling me it was "normal". Luckily, I had articles and books that specifically talk about TSH levels (what is high and low) and how it impacts infertility. I presented all of this information to her, she looked shocked and uncomfortable. She excused herself and when she came back she said that she was going to have refer me to an endocrinologist. I mentioned that the doctor was a reproductive endocrinologist and I thought that he would be able to help me. She said that the thyroid was not his area of practice! Hello, if he is a fertility expert wouldn't you think that he should know about other issues/symptoms that impact ferility? So anyway, I'm going to see another doctor about my thyroid as well as some of my other hormone levels that are not right. I have done a lot of reading on the thyroid and how women with endometriosis are at higher risk for thyroid problems. What it has come down to is ME doing all of the reading and finding things on my own! It seems as though I have not had any doctors care enough to look at the root of the problem. Have any of you ladies with endo had issues with your thyroid? If so, who has been able to help treat you? I am hoping that this new doctor that I see next week can have an answer to my problems. I'm just tired of wasting my time with useless doctors!
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