|
Re: i would love your advice...please
From: summer (anonymous@obgyn.net)
Sun Jun 29 18:14:10 2008
Amazing info, for so many women!
At Sun, 29 Jun 2008, Cassie wrote:
>
>Hi Mary
>
>Sorry this is an essay but I have experiened similar things to you. But
>I still have my organs intact!
>
>My name is Cassie I Live in New Zealand i am 25. I am pleased you have
>been getting some feedback and support here. I am also relatively new
>to the forum.
>
>Last year i under went a large 5 hour operation with an expert
>gnyocologist and colrectal surgeon - who both specialise in
>endometrosis. They were not sure how involved my bowel was but put me
>through a full bowel prep (to empty it) just incase hey needed to resect
>a section (remove it).
>
>As others have said surgeons specialising in endometriosis will do all
>they can to leave in place as much of you while removing the disease. My
>surgeons found that the septum bwtween my vagina and bowel was completly
>full of old rock hard endometriosis. They spent a couple of hours
>carefuly dissecting between the two to remove the endo. They
>established that the endo had gone right through the muscle wall of the
>bowel but had not yet gone through the lining (like yours obvioulsy
>has!). My rectum was intact but was imobilised so I have not experieced
>to the same degrww what you go through on th toilet but can certainly
>sympathise with extreme pain. Once they had removed as much endo as
>possible they realised my bowel would not be strong enough to hold once
>full again so needed to remove 5 inches of it. The cut the piece out
>and stuck the raw ends back together. I have been told it was quite
>major surgery but I recovered really well after (my bowel took a bit to
>get going but was vey managable). I still ahve some pain in my
>bowels/with bowel movements and rectum area but the ressection has not
>caused me any major problems. Bowels are a littel unpredictable but I
>can definitely live with it!
>
>Our bodies have a long distance of bowel and we can still manage well
>with quite a lot of it removed far more than I had removed aparetnly. I
>know some people it is necessary to remove everything and get a bag and
>I was told it was he worse case senario but like a million to one
>chance. I know two men who live the bags (obviusly not for endo) but
>they live relatively normal lives they can not eat all things but are a
>lot batter than living the way they were before the operation. I had
>stage IV to V extensive endo in many areas of my pelvis/abdomen even
>inclduing my diaphragm and my surgeons managed to remove it all by
>excision. I am by no means perfact but manage to live a relatively
>normal life and still have majority of my insides. My surgeon told me
>that I could have a massive deposit of endo on an ovary he would be able
>to remove it and I would more than likely still be able to have
>children! He has had sucess with this in severe endo patients.
>
>I know you will be at the absolute point of frustration wanting to do
>anything to make this go away. But I think you realy need to look at
>seeing some sureons who specialise in excision of advanced stage endo
>from these areas maybe in conjunction with a co-rectal surgeon. Even if
>it takes you longer the end result will be much better for you long
>term. Many woman are now traveling to different ares of the world to
>get the best possible care! I know this is not always easy with
>finances, time and health but do not settle for a bulk standard surgeon
>to deal with your endo. I did that with my first operation as I was a
>poor university student and really regret it. I would not have had near
>the problems I have had if I went to an endo specialist surgeon from the
>beginning.
>
>I have seen a lot of people talking about center for endo on here and
>have checked out the website myself. It looks amazing and does have
>people like yourself travelling from all over world. Check out
>http://www.centerforendo.com
>
>I wish you well with this. Remember it is ok to have bad endo days I
>still have them where I do not know what to do with myself and feel like
>an emotional train wreck but it is ok to be upset and moan! Severe endo
>is a lot to deal with at such a young age. My thoughts will be with
>you. Please feel free to email me directly cassiegifkins@hotmail.com
>
>Take Care
>Cassie
>
>At Thu, 26 Jun 2008, Marydoll wrote:
>>
>>Hi Ladies,
>>
>>This is my first message on this support group.... although I read all
>>your comments daily and take to heart all your problems and advice.
>>
>>I am going into hospital next month to have my 4th surgery. This time
>>the surgery is different, I am having part of my bowel, rectum, ovary
>>and one of my tubes taken out. I will end up with a colostomy bag and I
>>am very scared.
>>
>>At 26 this is all very hard to take in... I have not worked since July
>>last year and lost that job due to the usual problems to many days off
>>and being to sick when I was there to concentrate....
>>
>>I just wanted to know has anyone had surgery like this and how was it
>>afterwards, with yourself, with your relationship, with your job....
>>
>>I feel like this is it, if I don’t get through this I will just give up,
>>I have had enough....
>>
>>Mary (sorry about the moan)
|
|
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)