Re: CEC ?
From: summer (anonymous@obgyn.net)
Sun Jun 29 13:52:42 2008
I am very sorry to read of your pain and problems. Yes, Dr S told me
that if you need to have surgery again, they just charge your insurance,
and you don't pay a co-pay. That is the way I understand things, maybe
I misheard - I don't think so ???? :)
Did you ok the LUNA before? If not, why did they do it, I wonder? Is
that supposed to help with adeno? Adeno is not easy to diagnose without
a hyst, and then you've lost the uterus...so...they can sometimes tell
from pictures, how enlarged the uterus is...
If you're still in pain (as you are), I am sure he'd offer some
suggestions at this point...Would you want a hyst? I wouldn't, and it's
hard when it's mentioned, because I still do have pain.
I forget, did you mention if you have IC? i read somewhere that a woman
wanted a hyst, but the doctor (not the CEC) suggested she first try an
IC diet and IC medication. Along with excision. It helped!
Have you had a sonogram lately? Can your local doctor prescribe one? You
might find out if you have ovarian cysts again, or maybe even endo has
returned in that location? Are you on the pill?
take care, keep working on the pain, I feel very bad for women with this
(and me!)
Oh, one more thing. Have you considerd pelvic physical therapy?
At Sun, 29 Jun 2008, heavenlygarcia wrote:
>
>I had my surgery with dr. Sinvero. I haven't heard about the policy
>about getting surgery again if needed. I'll have to look into that.
>They removed endo, took a poylp out of my uterus, took out my apendix,
>did a LUNA (cutting of utero sacral ligaments), Took a cyst off my
>ovary. I don't think they will still perscribe meds after 3 months,
>they did up to then, then dr. sinvero called me to see if I was feeling
>better yet since he knew I was not having good results he then told me i
>have adeno, I don't know why he waited so long to tell me but whatever.
>I think he would be willing to email me back if i emailed him. But, i
>don't know how he could help from a state away. After they get your
>info they will send you a packet with everything you need to know. I
>don't know that all this pain is from adeno, it's more on either side of
>my lower abdomen, not in the middle so much, i feel like my ovaries are
>trying to escape. I hope I answered all your questions if not write
>again.
>
>At Fri, 27 Jun 2008, summer wrote:
>>
>>Hi, which doctor did your surgery? Can I ask what they did during
>>surgery? Also, I thought their policy was to allow you to have surgery
>>again if you needed it, and they would only charge your insurance
>>company, and not any co-pay for you?
>>
>>Have you ever had any relief? HUGS!
>>
>>At Fri, 27 Jun 2008, heavenlygarcia wrote:
>>>
>>>I had surgery with the CEC in December 07'. The drs are very very nice
>>>and make you feel more comfortable than any others I have met. They
>>>listen to you and really care. My only problem was that after my
>>>surgery (which was the second one in five months) I have not felt better
>>>and in the last 2 weeks have felt so incredibly bad I have no life. But,
>>>this is not thier fault at all. They did the surgery needed and did it
>>>properly. Though I wish they would of told me they were going to
>>>preform a LUNA, I would of said no, it's not covered by my insurance and
>>>it's not medically proven that it really does help all that much. I'm
>>>just one of the unlucky small percent that don't get relief from a
>>>surgery. I do wish they would agree to treat you longer than 3 months
>>>post surgery b/c I am too scared to go to another dr. I don't think I
>>>trust any other dr. to give me proper treatment. they are all lupron
>>>pushers. There are nothing but good things said by everyone about them,
>>>and good experiences, I'm just unlucky. Even the receptionist is really
>>>nice. I would recommend them. Good luck, and after you send your info
>>>to them the dr. calls you personally and is more than happy to email
>>>you back and forth with any questions or concerns you may have.
>>>
>>>At Fri, 27 Jun 2008, Octfire wrote:
>>>>
>>>>Ok so I was sent to the Center for Ednometriosis Care website. It was
>>>>very interesting! I learned a lot about endo that I never knew. I am
>>>>curious though. Has anyone gone there? And were you happy with the
>>>>doctors? I'm looking for a doctor who won't give up and will continue to
>>>>try to figure outt the problem. Or at least get me out of this extreme
>>>>pain. If any one has a view point of CEC I would love to hear it. Thank
>>>>You
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)