Re: i would love your advice...please
From: ramey (anonymous@obgyn.net)
Sun Jun 29 13:24:16 2008
Oh, I didn't know that the CEC worked with insurance... I'll have to
check on that for sure. Redwine does not... :(
Thanks for letting me know! Phoenix is much closer but I'm more
concerned with getting the best I can find at this point.
At Sat, 28 Jun 2008, summer wrote:
>
>Is Atlanta far from you? I guess Phoenix isn't either? The CEC does work
>with insurance...I don't know about Dr Redwine...
>
>At Sat, 28 Jun 2008, ramey wrote:
>>
>>Yes, New Mexico. I live here, and this guy is apparently the only one
>>recommended in the state to treat it. If I don't like what he has to
>>say, I'm going to shell out the extra bucks for a specialist in Phoenix
>>or Oregon.
>>
>>Are you seeing an expert now?
>>
>>At Fri, 27 Jun 2008, summer wrote:
>>>
>>>Hi, is NM New Mexico?
>>>
>>>It's great to get opinions from the experts because they really do
>>>understand this weird and terrible disease.
>>>
>>>At Fri, 27 Jun 2008, anonymous@obgyn.net wrote:
>>>>
>>>>Mary,
>>>>
>>>>I am very sorry to hear your struggle at 26. I am 25, and I too am
>>>>going in for surgery, and though it is my first, they anticipate doing
>>>>work on my bowels in addition to removing a large cyst behind my uterus.
>>>>I am scared also.
>>>>
>>>>I am supposed to be on the operating table right now, but I canceled.
>>>>Why? I was so terrified, and I realized that I didn't have enough
>>>>confidence in my surgeon. I've decided to go to a specialist, because I
>>>>want to get it done RIGHT, without removing more of me than they have
>>>>to. I have a consult in NM on the 15th, and I'm also sending my records
>>>>to Dr. Redwine in Oregon for an expert opinion. If you can find a way
>>>>to make it work, I'd agree with the other ladies here about seeing a
>>>>specialist.
>>>>
>>>>I can't tell you from first-hand experience what it will be like, but my
>>>>thoughts are with you. My uncle has a colostomy bag (colon cancer), and
>>>>he has lived a healthy, happy, active life with it for decades.
>>>>
>>>>Best of luck, Mary. Our thoughts and best wishes are with you!
>>>>
>>>>Ramey
>>>>
>>>>At Thu, 26 Jun 2008, Marydoll wrote:
>>>>>
>>>>>Hi Ladies,
>>>>>
>>>>>This is my first message on this support group.... although I read all
>>>>>your comments daily and take to heart all your problems and advice.
>>>>>
>>>>>I am going into hospital next month to have my 4th surgery. This time
>>>>>the surgery is different, I am having part of my bowel, rectum, ovary
>>>>>and one of my tubes taken out. I will end up with a colostomy bag and I
>>>>>am very scared.
>>>>>
>>>>>At 26 this is all very hard to take in... I have not worked since July
>>>>>last year and lost that job due to the usual problems to many days off
>>>>>and being to sick when I was there to concentrate....
>>>>>
>>>>>I just wanted to know has anyone had surgery like this and how was it
>>>>>afterwards, with yourself, with your relationship, with your job....
>>>>>
>>>>>I feel like this is it, if I don’t get through this I will just give up,
>>>>>I have had enough....
>>>>>
>>>>>Mary (sorry about the moan)
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