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Re: CEC ?
From: heavenlygarcia (anonymous@obgyn.net)
Sun Jun 29 12:26:22 2008
I had my surgery with dr. Sinvero. I haven't heard about the policy
about getting surgery again if needed. I'll have to look into that.
They removed endo, took a poylp out of my uterus, took out my apendix,
did a LUNA (cutting of utero sacral ligaments), Took a cyst off my
ovary. I don't think they will still perscribe meds after 3 months,
they did up to then, then dr. sinvero called me to see if I was feeling
better yet since he knew I was not having good results he then told me i
have adeno, I don't know why he waited so long to tell me but whatever.
I think he would be willing to email me back if i emailed him. But, i
don't know how he could help from a state away. After they get your
info they will send you a packet with everything you need to know. I
don't know that all this pain is from adeno, it's more on either side of
my lower abdomen, not in the middle so much, i feel like my ovaries are
trying to escape. I hope I answered all your questions if not write
again.
At Fri, 27 Jun 2008, summer wrote:
>
>Hi, which doctor did your surgery? Can I ask what they did during
>surgery? Also, I thought their policy was to allow you to have surgery
>again if you needed it, and they would only charge your insurance
>company, and not any co-pay for you?
>
>Have you ever had any relief? HUGS!
>
>At Fri, 27 Jun 2008, heavenlygarcia wrote:
>>
>>I had surgery with the CEC in December 07'. The drs are very very nice
>>and make you feel more comfortable than any others I have met. They
>>listen to you and really care. My only problem was that after my
>>surgery (which was the second one in five months) I have not felt better
>>and in the last 2 weeks have felt so incredibly bad I have no life. But,
>>this is not thier fault at all. They did the surgery needed and did it
>>properly. Though I wish they would of told me they were going to
>>preform a LUNA, I would of said no, it's not covered by my insurance and
>>it's not medically proven that it really does help all that much. I'm
>>just one of the unlucky small percent that don't get relief from a
>>surgery. I do wish they would agree to treat you longer than 3 months
>>post surgery b/c I am too scared to go to another dr. I don't think I
>>trust any other dr. to give me proper treatment. they are all lupron
>>pushers. There are nothing but good things said by everyone about them,
>>and good experiences, I'm just unlucky. Even the receptionist is really
>>nice. I would recommend them. Good luck, and after you send your info
>>to them the dr. calls you personally and is more than happy to email
>>you back and forth with any questions or concerns you may have.
>>
>>At Fri, 27 Jun 2008, Octfire wrote:
>>>
>>>Ok so I was sent to the Center for Ednometriosis Care website. It was
>>>very interesting! I learned a lot about endo that I never knew. I am
>>>curious though. Has anyone gone there? And were you happy with the
>>>doctors? I'm looking for a doctor who won't give up and will continue to
>>>try to figure outt the problem. Or at least get me out of this extreme
>>>pain. If any one has a view point of CEC I would love to hear it. Thank
>>>You
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