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Re: i would love your advice...please
From: summer (anonymous@obgyn.net)
Sat Jun 28 23:55:41 2008
Is Atlanta far from you? I guess Phoenix isn't either? The CEC does work
with insurance...I don't know about Dr Redwine...
At Sat, 28 Jun 2008, ramey wrote:
>
>Yes, New Mexico. I live here, and this guy is apparently the only one
>recommended in the state to treat it. If I don't like what he has to
>say, I'm going to shell out the extra bucks for a specialist in Phoenix
>or Oregon.
>
>Are you seeing an expert now?
>
>At Fri, 27 Jun 2008, summer wrote:
>>
>>Hi, is NM New Mexico?
>>
>>It's great to get opinions from the experts because they really do
>>understand this weird and terrible disease.
>>
>>At Fri, 27 Jun 2008, anonymous@obgyn.net wrote:
>>>
>>>Mary,
>>>
>>>I am very sorry to hear your struggle at 26. I am 25, and I too am
>>>going in for surgery, and though it is my first, they anticipate doing
>>>work on my bowels in addition to removing a large cyst behind my uterus.
>>>I am scared also.
>>>
>>>I am supposed to be on the operating table right now, but I canceled.
>>>Why? I was so terrified, and I realized that I didn't have enough
>>>confidence in my surgeon. I've decided to go to a specialist, because I
>>>want to get it done RIGHT, without removing more of me than they have
>>>to. I have a consult in NM on the 15th, and I'm also sending my records
>>>to Dr. Redwine in Oregon for an expert opinion. If you can find a way
>>>to make it work, I'd agree with the other ladies here about seeing a
>>>specialist.
>>>
>>>I can't tell you from first-hand experience what it will be like, but my
>>>thoughts are with you. My uncle has a colostomy bag (colon cancer), and
>>>he has lived a healthy, happy, active life with it for decades.
>>>
>>>Best of luck, Mary. Our thoughts and best wishes are with you!
>>>
>>>Ramey
>>>
>>>At Thu, 26 Jun 2008, Marydoll wrote:
>>>>
>>>>Hi Ladies,
>>>>
>>>>This is my first message on this support group.... although I read all
>>>>your comments daily and take to heart all your problems and advice.
>>>>
>>>>I am going into hospital next month to have my 4th surgery. This time
>>>>the surgery is different, I am having part of my bowel, rectum, ovary
>>>>and one of my tubes taken out. I will end up with a colostomy bag and I
>>>>am very scared.
>>>>
>>>>At 26 this is all very hard to take in... I have not worked since July
>>>>last year and lost that job due to the usual problems to many days off
>>>>and being to sick when I was there to concentrate....
>>>>
>>>>I just wanted to know has anyone had surgery like this and how was it
>>>>afterwards, with yourself, with your relationship, with your job....
>>>>
>>>>I feel like this is it, if I don’t get through this I will just give up,
>>>>I have had enough....
>>>>
>>>>Mary (sorry about the moan)
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