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Re: i would love your advice...please

From: ramey (anonymous@obgyn.net)
Sat Jun 28 18:45:13 2008


Yes, New Mexico. I live here, and this guy is apparently the only one recommended in the state to treat it. If I don't like what he has to say, I'm going to shell out the extra bucks for a specialist in Phoenix or Oregon.

Are you seeing an expert now?

At Fri, 27 Jun 2008, summer wrote: >
>Hi, is NM New Mexico?
>
>It's great to get opinions from the experts because they really do
>understand this weird and terrible disease.
>
>At Fri, 27 Jun 2008, anonymous@obgyn.net wrote:
>>
>>Mary,
>>
>>I am very sorry to hear your struggle at 26. I am 25, and I too am
>>going in for surgery, and though it is my first, they anticipate doing
>>work on my bowels in addition to removing a large cyst behind my uterus.
>>I am scared also.
>>
>>I am supposed to be on the operating table right now, but I canceled.
>>Why? I was so terrified, and I realized that I didn't have enough
>>confidence in my surgeon. I've decided to go to a specialist, because I
>>want to get it done RIGHT, without removing more of me than they have
>>to. I have a consult in NM on the 15th, and I'm also sending my records
>>to Dr. Redwine in Oregon for an expert opinion. If you can find a way
>>to make it work, I'd agree with the other ladies here about seeing a
>>specialist.
>>
>>I can't tell you from first-hand experience what it will be like, but my
>>thoughts are with you. My uncle has a colostomy bag (colon cancer), and
>>he has lived a healthy, happy, active life with it for decades.
>>
>>Best of luck, Mary. Our thoughts and best wishes are with you!
>>
>>Ramey
>>
>>At Thu, 26 Jun 2008, Marydoll wrote:
>>>
>>>Hi Ladies,
>>>
>>>This is my first message on this support group.... although I read all
>>>your comments daily and take to heart all your problems and advice.
>>>
>>>I am going into hospital next month to have my 4th surgery. This time
>>>the surgery is different, I am having part of my bowel, rectum, ovary
>>>and one of my tubes taken out. I will end up with a colostomy bag and I
>>>am very scared.
>>>
>>>At 26 this is all very hard to take in... I have not worked since July
>>>last year and lost that job due to the usual problems to many days off
>>>and being to sick when I was there to concentrate....
>>>
>>>I just wanted to know has anyone had surgery like this and how was it
>>>afterwards, with yourself, with your relationship, with your job....
>>>
>>>I feel like this is it, if I don’t get through this I will just give up,
>>>I have had enough....
>>>
>>>Mary (sorry about the moan)




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