ENDO Messages for June, 2008: Re: Please help me - I can't take it anymore!!!!!!!!!!!!!

Re: Please help me - I can't take it anymore!!!!!!!!!!!!!

From: anonymous@obgyn.net
Fri Jun 27 17:00:40 2008

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Sorry you are in so much pain. There shouldn't be any need for two surgeries. The doctor who does your excision surgery is probably very well qualified to do the hysterectomy at the same time if you really need one. Hysterectomy won't relieve endo pain--especially when you have the implants all over the place. I read somewhere that endo is the only disease in the world in which it is considered acceptable to remove an unaffected organ and leave the disease in place. Your endo didn't come back, it was never completely removed in the first place. Your pain sounds very typical for endo pain--if I were to describe my pain it would sound very similar to yours. Hope you get relief soon--the endo specialists have excellent records for success and try to leave organs intact whenever they can. I'm scheduled for my excision in three weeks. Good luck!

At Fri, 27 Jun 2008, anonymous wrote: >
>I had a lap last year in June - and the doc did a partial hysterectomy.
>Removed right tube and part of right ovary [he couldn't get it all
>because it was stuck to my bowel]. I had 6 chocolate cysts removed too.
>I also have had part of my left ovary removed due to a chocolate cyst
>that ruptured.
>
>Since my last surgery, I have been having awful pains in my lower
>back/tailbone area and my mid section - it feels like I am being cut in
>half. I also have terrible gas pain - like you wouldn't beleive. Is
>this normal? My doc seems to think I need a hysterectomy and I am sooooo
>ready for it. I have tried every hormone therapy in the book, and
>nothing seems to help. I was told I have stage IV endo - and it is
>literally everywhere :(
>
>It has gotten so bad, it hurts all the time and I cant bend over.
>
>Lately, I have lost my hope of ever feeling well again. I am setting up
>a hysterectomy as soon as I can, but I was scheduled for excision with
>Dr. Orbuch after I have a colonoscopy. Any advice? I don't think I can
>go through two more surgeries - thus my desire for a hysterectomy. What
>if the excision doesn't work? I am shot and worn out, and I haven't been
>living for quite some time now due to the endo. It is winning.
>
>Thanks for listening.

Next message: summer: "Re: Adenomyosis---Help!!"
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In reply to: anonymous: "Please help me - I can't take it anymore!!!!!!!!!!!!!"
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