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Re: Fibromyalgia side effect from Lupron KARENFrom: raine (anonymous@obgyn.net)Fri May 30 22:02:09 2008
At Mon, 19 May 2008, niki wrote: > >PLEASE see my post just a few down titled ladies suffering from lupron. >we have been in contact with a female lawyer who is looking in to a >class action suit against tap the makers of lupron. the post will tell >you how to contact her. if not go to yahoo groups and type in lupron >victims. the information is there. Please all of you suffering contact >her! The more women suffering will be better for all of us. >unfortunately it has to be said and i hate that we are all in pain and >no dr's will believe us. > >At Sun, 18 May 2008, Karen wrote: >> >>At Thu, 18 Dec 2003, Sandi wrote: >>> >>>I to was sucked into the "wonderful" Lupron shots and I did great the >>>first month so since that went without a hitch we moved to the 3 month >>>dose next and within 24 hours it was all down hill. I was hospiti;ized >>>for possible blood clots I was in so much pain in my legs. They found >>>nothing and that pain ended up going up into my back and recently into >>>my arms. I am now 2 months post Lupron and still in so much pain that >>>they are finally looking at a diagnosis of FIbromyalgia and have me >>>seeing a neurologist next month. But like you I have also lost my job >>>because of this and have barely been able to function as a human being. >>>Your story made me believe that we have a big problem here and I am not >>>talking about what has already been done but what will happen to all of >>>the unsuspecting men and women that go forth on Lupron. It must be >>>stopped. Of all the doctors that I have seen not a single one of them >>>believes me when I tell them it is from the Lupron. I am looking into >>>going after the manufacturer of the Lupron for not making it clearer >>>that such severer side effects exists with Lupron. I am going to try to >>>get someone to help me set up a web page (since I am somewhat clueless >>>in that department and it takes more time then what I can handle sitting >>>from the pain)to find out just how many people have gone through this. >>>If we have enough people maybe we will have enough people to start a >>>class action suite. Its not about the money but the fact that it has to >>>be stopped and not allowed to effect another person in this way. >>> >>>At Wed, 26 Nov 2003, Melissa wrote: >>>> >>>>Hi there everyone. I'm not a active member of this forum, mainly due to >>>>my health issues, but I'm FINALLY coming out of a horrible 6 months >>>>experience on Lupron and I want to warn everyone that reads this about >>>>it. >>>> >>>>This is a BIG warning to all of you taking this drug or considering it. >>>>If I had stopped with just the first 6 months on this stuff, I'd have >>>>been fine. But my body seems to have reacted at the large amount of it, >>>>due to the accumlative affect and the additional 3 month shot. I even >>>>developed a positive ANA (anti-nuclear antibody found in auto-immune >>>>disorders like Lupus). Please, discuss using only the 1 month shot if >>>>you have to take this drug, and only use it for the FDA recommended 6 >>>>months. Because of the cumulative effect, my 9 months of Lupron is >>>>really 1 year, as it stays in your body A LONG TIME. >>>> >>>>I did the recommended 6 months on Lupron with only minor side effects, >>>>then, at the persistance of my OB/GYN, on June 16th of this year, I took >>>>an additional 3 month shot. Within 24 hours my knees began to ache. >>>>Three weeks later and the knee pain had increased to the point of being >>>>unable to walk on them AND it had spread to ALL of my joints, jaw to >>>>toes. I spent 7 weeks on steroids, which helped some, but it is only >>>>now, almost 6 months after that fateful shot, that I am beginning to >>>>find relief from the pain that crippled me for almost half a year. I'm >>>>serious. I had to quit my job, take the semester off from college, >>>>couldn't drive my car (unless on the steroids) or do detailed work with >>>>my hands. I lost weight, mostly muscle, and am now a very unhealthy 110 >>>>pounds without any stamina or ability to even hold heavy things. >>>> >>>>I saw many doctors and, though Fibromyalgia-like symptoms are listed in >>>>the PDR of Lupron as postmarketing side effects, and though Fibromyalgia >>>>and possible arthritis were diagnosed, no doctor would admit I had >>>>developed any of this from Lupron. I am only 27 and aside from the >>>>Endometriosis, had been extremely healthy and strong prior to my Lupron >>>>injections. >>>> >>>>Lupron made me suddenly intolerant to wheat, dairy and corn. After >>>>cutting all of these foods out of my diet, I've managed to almost >>>>eliminate the joint pain (except minor pain in fingers and knees), and >>>>the fibromyalgia muscle pain has gone away in the last 3 weeks, most >>>>likely corresponding with the Lupron leaving my body. >>>> >>>>I had a laparoscopy two weeks ago. My endo had shrunk in the last 11 >>>>months, but was most definitely still there. I also had a large cyst on >>>>my right ovary and adhesions. The Lupron gave me a respite from my >>>>pelvic pain, but did not cure my endometriosis (not that I thought it >>>>would). Sad to see that I also went on Lupron because of a painful >>>>ovarian cyst (couldn't wear most pants or a seat belt). It went >>>>"inactive" on the Lupron but would have started hurting again when my >>>>hormones and ovaries came back into action. >>>> >>>>Long warning, I know, but if I can save ONE WOMAN (or man) from having >>>>to endure this, I have to try. I'm not a religious person, but I am >>>>thanking god that I came out of this. At times, I thought I never >>>>would. Take care everyone. >>>> >>>>-- >>>>Melissa >>>> >>>>-- >>>>"Snow comes last >>>>for it quiets down everything." >>>> - Snow the Last by Joseph Concha >>>> >>-- >>Dear Sandi, >> >>I was astonished to open this website and find so many messages about lupron causing fibromyalgia. Almost 20 years ago, I was as desperate as you with the pain of endometriosis and agreed to a trial of monthly injections. On the second injection, a cerebral edema developed in the back of my head and neck. After it subsided, the muscles in my neck, shoulders and back remained contracted and have never released to this day. The GYN sent me to an internist who told me that he had seen this happen in other lupron patients because it acts on the hypothalamus and I just needed some good physical therapy. Needless to say, it didn't work and neither has a vast array of other treatments during this long medical oddyssey. That was my first symptom of fibromyalgia. As the years went on, I developed many other symptoms of the disease --intractable insomnia, chronic fatigue, flu-like symptoms, total body aching, excessive sweating, and terrible brain fog. I was a University professor who was an award-winning scholar and a gifted teacher, and at the age of 53 I had to give up my tenured associate professor's position due to excruciating pain and sleep deprivation that made me unable to think straight. Now I stay at home and spend all day just trying to keep my symptoms under control. Lupron ruined my life. I lost my career, my marriage, my home, my financial security and my emotional well-being. These people have got to be stopped. If you succeed in opening a class action suit, I will help you in any way I can, symptoms permitting. You can contact me via this forum, and then we'll just have to figure out a way to communicate directly. Since this site does not permit us to exchange e-mail addresses, or at least that is my impression. With hope, Karen >>
-- my Dr. Beleives Just not the ob/gyn that gave me my 2 Lupron shots.
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