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Re: Endometrial Pain extending to BUTTOCK PAIN?From: kim (anonymous@obgyn.net)Tue May 27 22:24:04 2008
At Tue, 27 May 2008, anonymous wrote: > >At Wed, 12 Jul 2006, Dena wrote: >> >>Hi there Susan, >> >>I never said you weren't nuts. You might be, we are all just as nutty >>right along with you! LOL >> >>But seriously, to answer your questions, yes I do have help from a pain >>management center up in Boston. They have been a blessing! I haven't >>done the accupuncture route or anything, but they make me more >>comfortable with medication. I had asked about accupuncture a while >>back and my pain doctor said "Honestly, your insurance doesn't cover it, >>you'd have to go all the time for some relief, and it's short lived >>relief. You need to think about the long haul.." So here I am, taking >>his advice. If I ever hit the lottery, or come across an insurance plan >>that covers it, I'll be quick to try accupuncture, but until then..... >> >>And regarding the hysterectomy.... I've been there too. I've had six >>laparotomies and am most likely facing my seventh in just as many years. >>My hyst was in 2004 (I was 31), less than a year after having my son >>(insurance does pay for IVF, go figure!). Within months after the hyst >>(ovaries included) I was in extreme pain again. Less than a year after >>my hyst I was back in surgery. And now it's a year later and.... I'm >>baaaack! >> >>I've had three incisions from hip to hip, and three from the navel down. >>My surgeon told me that they can only use the same incision three times, >>so I'm left wondering... (please anyone let me know the answer to this) >>Will I end up with a giant asterisk on my abdomen? LOL I may have to >>join the circus as "Star Woman" or something. "Come look at the scars >>on this woman! Has she been abducted by aliens? Used in cult sacrifice >>demonstrations? Or is it the mark of the Lord above? Come one, come >>all.... See for yourself!" (ok, I guess that's a little silly ;) >> >>Don't get me wrong, I have heard of some women having relief from a >>hysterectomy, I'm just one of the many less fortunate I guess. I know >>that desperation that you are feeling. You'd be willing to chew off >>your leg if it would mean relief from this disease. It's just something >>you have to go into, if you so choose, thinking "This may, or may not >>help me. I cannot have this surgery thinking it's a cure, because it's >>not. It's a gamble." >> >>I can see how your kid fix is satisfied by so many nieces and nephews. >>Holy cow! 20?! Heck, you have it made. I'm sure their parents are more >>than willing to hand them over to you whenever you want them around! And >>you get to send them back and not have to pay for college! My oldest (I >>only have the two) just graduated from high school and wants to be a >>nurse. I hope she's a very good one because she'll have to help me out >>once I'm broke from paying for college! :) >> >>Take care. >> >>At Tue, 11 Jul 2006, Susan wrote: >>> >>>Hi Dena - >>> >>>Thanks for your note - it really is nice to know I'm NOT nuts. You >>>know, we talk about it to others, who really have NOT CLUE, that to HAVE >>>someone who REALLY does understands just helps! Have you had any >>>treatment AT ALL for your pain? I have had and continue at least for now >>>trigger point injections into the buttock at the Cleveland Clinic. You >>>know, they put a needle long enough for a horse in your butt! Brings >>>some relief as it tends to numb it. Botox might be better but insurance >>>won't pay (go figure - it's NOT like it's cosmetic!!!) >>> >>>I have never had children (I am 43, my husband is 54 so we will not have >>>them - I get my "kid fix" from my 20 nieces & nephews!!). Possibly a >>>hysterectomy will be a consideration, I don't know. I'm to the point >>>where they can take anything and everything out! So anyone else reading >>>who has had any revelations from doctors about butt relief, please fill >>>us in! If you've had a hysterectomy and found or not found relief, would >>>be interested to know. Am considering acupuncture if need be. Anybody >>>tried that? >>> >>>I'm am laughing at your "grabbing" your buttock!!! Too funny - I know >>>that feeling. It's right there at the center where you can feel the >>>bone/nerve meet. I always say if I could "just grab the nerve and give >>>it a good "snap!"" I, too, sometimes have the pain all the way to my >>>toes! It's not a constant though, as it comes and goes. >>> >>>Anyway, I hope you ALL are having a "good" week - as good as can be with >>>the constant pain (wherever it may be!). >>> >>>Dena, you sound like you have a GREAT sense of humor - which is how we >>>have to try to look at it - laughing more than crying!! :-) It does help >>>to have at LEAST ONE good belly laugh a day! >>> >>>Hang in there!! >>> >>>-- >>>Susan >>> >>>At Tue, 11 Jul 2006, Dena wrote: >>>> >>>>Hi Susan, >>>> >>>>Welcome! I have also had the lower back, buttock, and thigh pain that >>>>you are talking about for many years. It's been quite severe lately. I >>>>believe it's from pressure on the nerves, the sciatic nerve in >>>>particular. The pain doesn't stop at my thigh, it continues down my >>>>leg. On a really good day (ha ha) it goes all the way to my ankle! I >>>>end up hobbling around because it hurts too much just to bend my leg at >>>>the hip or knee. >>>> >>>>I must say tough that the most irritating is the buttock pain. Maybe >>>>because it's so wierd, I don't know. It's just so sharp, almost right >>>>in the middle of the "cheek". Some days I find myself just grabbing the >>>>spot on my buttock and squeezing it (of course not in public ;) as if it >>>>were going to make it go away, like it's a pinched nerve. >>>> >>>>You're right, we aren't alone with our pain. When you think you have >>>>something unique and strange, you get a bunch of replies from others >>>>experiencing the same. >>>> >>>>You have a great week too! >>>> >>>>At Tue, 11 Jul 2006, Susan wrote: >>>>> >>>>>Hi - I am a "newbie" at this site and have found so much interesting >>>>>information here. I have a question that I wonder if anyone has >>>>>experienced or knows anything about. I was diagnosed with endometriosis >>>>>about 6 years ago while underdoing a laparoscopy for interstitial >>>>>cystitis (bladder). I am sure I've had it almost since I began >>>>>mensturating since I had always had such awful periods >>>>>(shaking/sweating, etc.) Doctor zapped some of the endo tissue while in >>>>>there. For the last 2 years I have had EXTREME and sometimes unbearable >>>>>pain in my lower back/right buttock/back of right thigh. I have been to >>>>>neurologists, rheumatologists, orthopaedic surgeon, blah, blah, blah - >>>>>no-one can diagnosis the root of my pain. Have had MRI, bone scan, EMG, >>>>>x-rays. I have taken Elavil, Neurontin, amitriptyline, vicadin, >>>>>oxycontin, with nothing really ever working - just band-aids. Only >>>>>doctor I have NOT gone to is gyno - which I am scheduled to see next >>>>>week (didn't go to him first because of the location of my pain being >>>>>back/butt/leg). >>>>> >>>>>Have any of you experienced this kind of pain in these areas that is >>>>>associated with your endometriosis? Hopefully an ultrasound can reveal >>>>>if this tissue is somehow strangling my sciatic nerve down in my butt??? >>>>>Maybe this sounds far-fetched but I'm desperate. >>>>> >>>>>Thanks in advance - I'm determined to get to the root of this issue as I >>>>>am only 43 yrs. old and this has altered/impacted my life (and >>>>>personality) way too much. I am currently have trigger point injections >>>>>at the Cleveland Clinic and taking muscle relaxers. I HATE the drug >>>>>route, though - can lead to other issues and problems! Thanks in advance >>>>>- and thanks to all of you who are so good about taking your time >>>>>reading and replying to the others. It's nice to know that we aren't >>>>>alone with our pain. Have a great week! >>>> >>>>-- >>>>Dena >>>> >>-- >>Dena >>
-- i had hyst in 2000 and still have endo! I have chronic low back/pelvic pain and now but and down the legs! Sounds like im not alone, what is it? I have surgery 6/16 for endo on ureter, so sick of this crap!!!!!!!!! Ive had numerous laps and now this one laporotomy, 4-6 wks recovery!
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