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Re: Endometrial Pain extending to BUTTOCK PAIN?
From: deedee (anonymous@obgyn.net)
Tue May 27 19:47:00 2008
yes, i think this is the uterosacral ligament
At Tue, 27 May 2008, anonymous wrote:
>
>At Wed, 12 Jul 2006, Dena wrote:
>>
>>Hi there Susan,
>>
>>I never said you weren't nuts. You might be, we are all just as nutty
>>right along with you! LOL
>>
>>But seriously, to answer your questions, yes I do have help from a pain
>>management center up in Boston. They have been a blessing! I haven't
>>done the accupuncture route or anything, but they make me more
>>comfortable with medication. I had asked about accupuncture a while
>>back and my pain doctor said "Honestly, your insurance doesn't cover it,
>>you'd have to go all the time for some relief, and it's short lived
>>relief. You need to think about the long haul.." So here I am, taking
>>his advice. If I ever hit the lottery, or come across an insurance plan
>>that covers it, I'll be quick to try accupuncture, but until then.....
>>
>>And regarding the hysterectomy.... I've been there too. I've had six
>>laparotomies and am most likely facing my seventh in just as many years.
>>My hyst was in 2004 (I was 31), less than a year after having my son
>>(insurance does pay for IVF, go figure!). Within months after the hyst
>>(ovaries included) I was in extreme pain again. Less than a year after
>>my hyst I was back in surgery. And now it's a year later and.... I'm
>>baaaack!
>>
>>I've had three incisions from hip to hip, and three from the navel down.
>>My surgeon told me that they can only use the same incision three times,
>>so I'm left wondering... (please anyone let me know the answer to this)
>>Will I end up with a giant asterisk on my abdomen? LOL I may have to
>>join the circus as "Star Woman" or something. "Come look at the scars
>>on this woman! Has she been abducted by aliens? Used in cult sacrifice
>>demonstrations? Or is it the mark of the Lord above? Come one, come
>>all.... See for yourself!" (ok, I guess that's a little silly ;)
>>
>>Don't get me wrong, I have heard of some women having relief from a
>>hysterectomy, I'm just one of the many less fortunate I guess. I know
>>that desperation that you are feeling. You'd be willing to chew off
>>your leg if it would mean relief from this disease. It's just something
>>you have to go into, if you so choose, thinking "This may, or may not
>>help me. I cannot have this surgery thinking it's a cure, because it's
>>not. It's a gamble."
>>
>>I can see how your kid fix is satisfied by so many nieces and nephews.
>>Holy cow! 20?! Heck, you have it made. I'm sure their parents are more
>>than willing to hand them over to you whenever you want them around! And
>>you get to send them back and not have to pay for college! My oldest (I
>>only have the two) just graduated from high school and wants to be a
>>nurse. I hope she's a very good one because she'll have to help me out
>>once I'm broke from paying for college! :)
>>
>>Take care.
>>
>>At Tue, 11 Jul 2006, Susan wrote:
>>>
>>>Hi Dena -
>>>
>>>Thanks for your note - it really is nice to know I'm NOT nuts. You
>>>know, we talk about it to others, who really have NOT CLUE, that to HAVE
>>>someone who REALLY does understands just helps! Have you had any
>>>treatment AT ALL for your pain? I have had and continue at least for now
>>>trigger point injections into the buttock at the Cleveland Clinic. You
>>>know, they put a needle long enough for a horse in your butt! Brings
>>>some relief as it tends to numb it. Botox might be better but insurance
>>>won't pay (go figure - it's NOT like it's cosmetic!!!)
>>>
>>>I have never had children (I am 43, my husband is 54 so we will not have
>>>them - I get my "kid fix" from my 20 nieces & nephews!!). Possibly a
>>>hysterectomy will be a consideration, I don't know. I'm to the point
>>>where they can take anything and everything out! So anyone else reading
>>>who has had any revelations from doctors about butt relief, please fill
>>>us in! If you've had a hysterectomy and found or not found relief, would
>>>be interested to know. Am considering acupuncture if need be. Anybody
>>>tried that?
>>>
>>>I'm am laughing at your "grabbing" your buttock!!! Too funny - I know
>>>that feeling. It's right there at the center where you can feel the
>>>bone/nerve meet. I always say if I could "just grab the nerve and give
>>>it a good "snap!"" I, too, sometimes have the pain all the way to my
>>>toes! It's not a constant though, as it comes and goes.
>>>
>>>Anyway, I hope you ALL are having a "good" week - as good as can be with
>>>the constant pain (wherever it may be!).
>>>
>>>Dena, you sound like you have a GREAT sense of humor - which is how we
>>>have to try to look at it - laughing more than crying!! :-) It does help
>>>to have at LEAST ONE good belly laugh a day!
>>>
>>>Hang in there!!
>>>
>>>--
>>>Susan
>>>
>>>At Tue, 11 Jul 2006, Dena wrote:
>>>>
>>>>Hi Susan,
>>>>
>>>>Welcome! I have also had the lower back, buttock, and thigh pain that
>>>>you are talking about for many years. It's been quite severe lately. I
>>>>believe it's from pressure on the nerves, the sciatic nerve in
>>>>particular. The pain doesn't stop at my thigh, it continues down my
>>>>leg. On a really good day (ha ha) it goes all the way to my ankle! I
>>>>end up hobbling around because it hurts too much just to bend my leg at
>>>>the hip or knee.
>>>>
>>>>I must say tough that the most irritating is the buttock pain. Maybe
>>>>because it's so wierd, I don't know. It's just so sharp, almost right
>>>>in the middle of the "cheek". Some days I find myself just grabbing the
>>>>spot on my buttock and squeezing it (of course not in public ;) as if it
>>>>were going to make it go away, like it's a pinched nerve.
>>>>
>>>>You're right, we aren't alone with our pain. When you think you have
>>>>something unique and strange, you get a bunch of replies from others
>>>>experiencing the same.
>>>>
>>>>You have a great week too!
>>>>
>>>>At Tue, 11 Jul 2006, Susan wrote:
>>>>>
>>>>>Hi - I am a "newbie" at this site and have found so much interesting
>>>>>information here. I have a question that I wonder if anyone has
>>>>>experienced or knows anything about. I was diagnosed with endometriosis
>>>>>about 6 years ago while underdoing a laparoscopy for interstitial
>>>>>cystitis (bladder). I am sure I've had it almost since I began
>>>>>mensturating since I had always had such awful periods
>>>>>(shaking/sweating, etc.) Doctor zapped some of the endo tissue while in
>>>>>there. For the last 2 years I have had EXTREME and sometimes unbearable
>>>>>pain in my lower back/right buttock/back of right thigh. I have been to
>>>>>neurologists, rheumatologists, orthopaedic surgeon, blah, blah, blah -
>>>>>no-one can diagnosis the root of my pain. Have had MRI, bone scan, EMG,
>>>>>x-rays. I have taken Elavil, Neurontin, amitriptyline, vicadin,
>>>>>oxycontin, with nothing really ever working - just band-aids. Only
>>>>>doctor I have NOT gone to is gyno - which I am scheduled to see next
>>>>>week (didn't go to him first because of the location of my pain being
>>>>>back/butt/leg).
>>>>>
>>>>>Have any of you experienced this kind of pain in these areas that is
>>>>>associated with your endometriosis? Hopefully an ultrasound can reveal
>>>>>if this tissue is somehow strangling my sciatic nerve down in my butt???
>>>>>Maybe this sounds far-fetched but I'm desperate.
>>>>>
>>>>>Thanks in advance - I'm determined to get to the root of this issue as I
>>>>>am only 43 yrs. old and this has altered/impacted my life (and
>>>>>personality) way too much. I am currently have trigger point injections
>>>>>at the Cleveland Clinic and taking muscle relaxers. I HATE the drug
>>>>>route, though - can lead to other issues and problems! Thanks in advance
>>>>>- and thanks to all of you who are so good about taking your time
>>>>>reading and replying to the others. It's nice to know that we aren't
>>>>>alone with our pain. Have a great week!
>>>>
>>>>--
>>>>Dena
>>>>
>>--
>>Dena
>>
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