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Re: Endometrial Pain extending to BUTTOCK PAIN?From: anonymous (anonymous@obgyn.net)Tue May 27 18:01:44 2008
At Wed, 12 Jul 2006, Dena wrote: > >Hi there Susan, > >I never said you weren't nuts. You might be, we are all just as nutty >right along with you! LOL > >But seriously, to answer your questions, yes I do have help from a pain >management center up in Boston. They have been a blessing! I haven't >done the accupuncture route or anything, but they make me more >comfortable with medication. I had asked about accupuncture a while >back and my pain doctor said "Honestly, your insurance doesn't cover it, >you'd have to go all the time for some relief, and it's short lived >relief. You need to think about the long haul.." So here I am, taking >his advice. If I ever hit the lottery, or come across an insurance plan >that covers it, I'll be quick to try accupuncture, but until then..... > >And regarding the hysterectomy.... I've been there too. I've had six >laparotomies and am most likely facing my seventh in just as many years. >My hyst was in 2004 (I was 31), less than a year after having my son >(insurance does pay for IVF, go figure!). Within months after the hyst >(ovaries included) I was in extreme pain again. Less than a year after >my hyst I was back in surgery. And now it's a year later and.... I'm >baaaack! > >I've had three incisions from hip to hip, and three from the navel down. >My surgeon told me that they can only use the same incision three times, >so I'm left wondering... (please anyone let me know the answer to this) >Will I end up with a giant asterisk on my abdomen? LOL I may have to >join the circus as "Star Woman" or something. "Come look at the scars >on this woman! Has she been abducted by aliens? Used in cult sacrifice >demonstrations? Or is it the mark of the Lord above? Come one, come >all.... See for yourself!" (ok, I guess that's a little silly ;) > >Don't get me wrong, I have heard of some women having relief from a >hysterectomy, I'm just one of the many less fortunate I guess. I know >that desperation that you are feeling. You'd be willing to chew off >your leg if it would mean relief from this disease. It's just something >you have to go into, if you so choose, thinking "This may, or may not >help me. I cannot have this surgery thinking it's a cure, because it's >not. It's a gamble." > >I can see how your kid fix is satisfied by so many nieces and nephews. >Holy cow! 20?! Heck, you have it made. I'm sure their parents are more >than willing to hand them over to you whenever you want them around! And >you get to send them back and not have to pay for college! My oldest (I >only have the two) just graduated from high school and wants to be a >nurse. I hope she's a very good one because she'll have to help me out >once I'm broke from paying for college! :) > >Take care. > >At Tue, 11 Jul 2006, Susan wrote: >> >>Hi Dena - >> >>Thanks for your note - it really is nice to know I'm NOT nuts. You >>know, we talk about it to others, who really have NOT CLUE, that to HAVE >>someone who REALLY does understands just helps! Have you had any >>treatment AT ALL for your pain? I have had and continue at least for now >>trigger point injections into the buttock at the Cleveland Clinic. You >>know, they put a needle long enough for a horse in your butt! Brings >>some relief as it tends to numb it. Botox might be better but insurance >>won't pay (go figure - it's NOT like it's cosmetic!!!) >> >>I have never had children (I am 43, my husband is 54 so we will not have >>them - I get my "kid fix" from my 20 nieces & nephews!!). Possibly a >>hysterectomy will be a consideration, I don't know. I'm to the point >>where they can take anything and everything out! So anyone else reading >>who has had any revelations from doctors about butt relief, please fill >>us in! If you've had a hysterectomy and found or not found relief, would >>be interested to know. Am considering acupuncture if need be. Anybody >>tried that? >> >>I'm am laughing at your "grabbing" your buttock!!! Too funny - I know >>that feeling. It's right there at the center where you can feel the >>bone/nerve meet. I always say if I could "just grab the nerve and give >>it a good "snap!"" I, too, sometimes have the pain all the way to my >>toes! It's not a constant though, as it comes and goes. >> >>Anyway, I hope you ALL are having a "good" week - as good as can be with >>the constant pain (wherever it may be!). >> >>Dena, you sound like you have a GREAT sense of humor - which is how we >>have to try to look at it - laughing more than crying!! :-) It does help >>to have at LEAST ONE good belly laugh a day! >> >>Hang in there!! >> >>-- >>Susan >> >>At Tue, 11 Jul 2006, Dena wrote: >>> >>>Hi Susan, >>> >>>Welcome! I have also had the lower back, buttock, and thigh pain that >>>you are talking about for many years. It's been quite severe lately. I >>>believe it's from pressure on the nerves, the sciatic nerve in >>>particular. The pain doesn't stop at my thigh, it continues down my >>>leg. On a really good day (ha ha) it goes all the way to my ankle! I >>>end up hobbling around because it hurts too much just to bend my leg at >>>the hip or knee. >>> >>>I must say tough that the most irritating is the buttock pain. Maybe >>>because it's so wierd, I don't know. It's just so sharp, almost right >>>in the middle of the "cheek". Some days I find myself just grabbing the >>>spot on my buttock and squeezing it (of course not in public ;) as if it >>>were going to make it go away, like it's a pinched nerve. >>> >>>You're right, we aren't alone with our pain. When you think you have >>>something unique and strange, you get a bunch of replies from others >>>experiencing the same. >>> >>>You have a great week too! >>> >>>At Tue, 11 Jul 2006, Susan wrote: >>>> >>>>Hi - I am a "newbie" at this site and have found so much interesting >>>>information here. I have a question that I wonder if anyone has >>>>experienced or knows anything about. I was diagnosed with endometriosis >>>>about 6 years ago while underdoing a laparoscopy for interstitial >>>>cystitis (bladder). I am sure I've had it almost since I began >>>>mensturating since I had always had such awful periods >>>>(shaking/sweating, etc.) Doctor zapped some of the endo tissue while in >>>>there. For the last 2 years I have had EXTREME and sometimes unbearable >>>>pain in my lower back/right buttock/back of right thigh. I have been to >>>>neurologists, rheumatologists, orthopaedic surgeon, blah, blah, blah - >>>>no-one can diagnosis the root of my pain. Have had MRI, bone scan, EMG, >>>>x-rays. I have taken Elavil, Neurontin, amitriptyline, vicadin, >>>>oxycontin, with nothing really ever working - just band-aids. Only >>>>doctor I have NOT gone to is gyno - which I am scheduled to see next >>>>week (didn't go to him first because of the location of my pain being >>>>back/butt/leg). >>>> >>>>Have any of you experienced this kind of pain in these areas that is >>>>associated with your endometriosis? Hopefully an ultrasound can reveal >>>>if this tissue is somehow strangling my sciatic nerve down in my butt??? >>>>Maybe this sounds far-fetched but I'm desperate. >>>> >>>>Thanks in advance - I'm determined to get to the root of this issue as I >>>>am only 43 yrs. old and this has altered/impacted my life (and >>>>personality) way too much. I am currently have trigger point injections >>>>at the Cleveland Clinic and taking muscle relaxers. I HATE the drug >>>>route, though - can lead to other issues and problems! Thanks in advance >>>>- and thanks to all of you who are so good about taking your time >>>>reading and replying to the others. It's nice to know that we aren't >>>>alone with our pain. Have a great week! >>> >>>-- >>>Dena >>> >-- >Dena >
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