Re: Endo and stomach issues
From: Beverley-ann (anonymous@obgyn.net)
Tue May 27 05:17:28 2008
Hey
I'm 2 and suffered with endo for the last 13 years. I've also suffered
with IBS for majority of that time. The symptoms you both described are
exactly the same as what I suffer with.
I normally move my bowels 2 times a day, but when i'm due on a period i
can go the toilet as many times as i eat something. At times i think
that food has just gone straight through me. I'm alwways bloated and
feeling quite sick.
This month though my symptoms have gone the other way, i've been
constipated now for 3 days!!! We just can't win.
I take buscopan tablets when i have a bout of IBS pain. But i dont
really like taking other meds aswell as all the meds i take for my endo
pain.
hugs
Beverley xx
At Wed, 14 May 2008, Christen99 wrote:
>
>At Tue, 13 May 2008, msizeland wrote:
>>
>>Hi There,
>>
>>I have had endo for the last 8 years that I know of. I've had the
>>laproscopy done twice. It took me about a year to conceive my son, but
>>he was born healthy and my pregnancy was easy.
>>
>>Anyhow, I've had terrible stomach issues for years. The gastro doc
>>keeps saying that I have irritable bowel syndrome. I feel that my endo
>>is causing it. Anyone else with the same issues?
>>
>>I have an upset stomach no matter what I eat. I'm always gassy and
>>bloated.
>>
>>I am on birth control and that has helped tremendously with the pelvic
>>pain during my cycle.
>>
>>Any advice would be greatly appreciated!
>>
>>Thanks!
>
>I have always had issues with my cycles, I remember being in high school
>and laying in the tub in excruciating pain unable to move. The only
>thing that helped was the warm water and meds.
>
>When I was in my mid twenties, I started experiencing cysts on my
>ovaries and horrible doubling over type pain when they ruptured. It
>seemed like it was such a common occurance and my ob/gyn at the time had
>no clue what was going on. His first solution was to put me on bc pills
>to help regulate my cycles (which were very irregular) and help cease
>the production of these cysts. When it was found that this was not
>working, he performed a scope and found nothing. I awoke in horrible
>pain, and found he had only spent a 1/2 hour or so inside and found
>nothing other than a couple of small ovarian cysts.
>
>I ended up conceiving my first ds, and had a horrible time with my
>bowels that seemed to start not long after I delivered him. I had
>absolutely no bowel control and horrible cramps. When he was 3, I had
>started to lose weight and every time I ate I had to run to the
>bathroom. I lost 12 pounds in 2 months, and wasn't trying to lose the
>weight. I assumed it was the stress of being a single mother. I had
>started having hot flashes at 28 not long after delivering him, and on
>my own I found my way to an RE. I was diagnosed as being in early
>menopause, and was fairly devestated because I wanted more children.
>During the course of my consultation and exam the doctor asked me when I
>was diagnosed with endo...I hadn't been. He encouraged me to have an
>exploratory lap, and I woke up to him saying it was all over my bowels
>and he had to perform a fairly extensive surgery to remove it all. He
>was awesome, and he diagnosed me as having stage 3 intestinal endo (and
>I thought it was all in my head)! The recovery was difficult, slow, and
>very painful. But, my bowel problems were GONE and I was starting to
>put on weight. Within a year, I was pregnant with ds #2, and again not
>long after delivering my ds (within the first year) I started having
>issues with eating and running to the bathroom. It took me a while to
>figure out it was related to my cycle, I had even been to a GI who
>diagnosed me as having IBS but couldn't find anything else wrong with
>me. The issues with running to the bathroom, alternating with
>constipation, and painful bm's increased and it was all centered around
>my cycle. Sex became painful, sometimes it hurt to sit down on my
>bottom, and at times I bleed out my bottom during my period.
>
>I had an appointment with my RE yesterday, and he is sending me for a
>surgical consult with Dr. Camran Nezhat at Stanford. My RE was
>actually the doctor who performed my diagnostic lap, but he no longer
>does the surgery instead he focuses on IVF. I'm local to Dr. Cook, but
>we can't afford the fees that our insurance doesn't cover at this point.
>The three names that my doctor gave me were Dr. Redwine in Bend, OR
>(worldwide expert in endo. surgery/research), Dr. Cook (renowned
>surgeon in Los Gatos, CA), and Dr. Camran Nezhat (renowned for
>innovative lap. techniques).
>
>I wouldn't accept IBS as a diagnosis...as my RE says (and I felt this
>way long before yesterday) it simply means they have no idea what is
>actually wrong with you, and they need to give you a label. If you've
>had endo diagnosed previously, and it was on your bowels it's probably
>grown.
>
>Good luck!
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