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Re: Endometriocis (Just found out )
From: anonymous (anonymous@obgyn.net)
Mon May 26 23:47:39 2008
google centerforendo.com and endometriosis research association
At Mon, 26 May 2008, Christen99 wrote:
>
>At Mon, 26 May 2008, Alemsha wrote:
>>
>>At Mon, 31 Mar 2008, anonymous wrote:
>>>
>>>At Mon, 31 Mar 2008, anonymous wrote:
>>>>
>I'm sorry you're having to deal with this. I am scheduled for surgery
>#3 on the 12th of June for another Roto Rooter. I actually was diagosed
>as stage 2 about a year before my second son was conceived. I have had
>horrible cramps since my period started, and spent many a day curled up
>with a heating pad or in the bathtub trying to get relief. From what my
>doctor's have said, some people can have horrible endo everywhere and
>not feel a thing, then there are people who have a mild case and feel
>every little thing. I don't have it in any of the usual places, it's
>all over my bowels and peritoneal cavity but it has avoided my uterus,
>tubes, and ovaries. I feel every little twinge, and I always have. The
>only way to diagnose it for sure is to have a laparoscopy to see what is
>going on, and at that point the doctor's can judge the severity of your
>disease. Good luck, I hope you find the answers you are looking for.
>
>Christen
>
>>>>Hello ,
>>>>
>>>>My doctor told me this morning that I may have endometriocis. I have
>>>>experienced almost all symptoms described by her and that in internet
>>>>articles. She gave me some pills for the pain.
>>>>
>>>>I am not so sure what is next. I think I have it a little more than
>>>>mild but not severe. I am less than 25 years old & wish to have
>>>>children in the future. I have done a lot of reading after my visit and
>>>>now know about some issues relating to the issue.
>>>>
>>>>What is Next for me ?
>>>>
>>>>Do I do the laposcopy to know the severity of my condition?
>>>>
>>>>How Do I reduce the chanes of infertility?
>>>>
>>>>What treatment should I take in the interim until I am ready to have
>>>>kids?
>>>>
>>>>Can I know from now the chances of having kids in the future?
>>>>
>>>>Should I just have a child as quickly as possible?
>>>>
>>>>PLease try and address my issues. It would be greatly appreciated Thanks
>>>>
>>>>Ariel
>>>
>>>Hi there Ariel,
>>>I'm sorry you are feeling not so good and that the news from the doctor
>>>was not so good as well. For me, after suffering the pain since 2001, a
>>>doctor finally told me that he suspected I had endo as well. I have to
>>>say in the beginning it scared me so much and I felt so alone. What I
>>>did was I had a laparoscopy (laser). But the laser was no good because
>>>it doesn't remove it properly. Then I had to have another one
>>>(excision) which was better but then this doctor did not find it all. I
>>>am now scheduled to see an incredible specialist in NYC on the 16th. He
>>>is one of the top specialists in this field. Dr. Kanayama.
>>>Google him and read up on him. Also, check out the posts on his site
>>>from all the women that say he changed their lives forever.
>>>My advice to you is to seek out a specialist, it will save you so much
>>>more time and energy and everything else. I swear, I wish I did this
>>>instead of running around all the gyn's up here.
>>>Make sure you do not go on Lupron!!!!! this is a big thing you want to
>>>avoid.
>>>I'm not sure about the fertility thing, but for me, I want to have kids
>>>someday but not right now.
>>>I do think to myself whether i am fertile or not and it makes me a
>>>little sad and worried. But, we can't do that, we need to stay
>>>positive.
>>>Seeking out a specialist is the most important thing. They know way
>>>more than regular Gyn's.
>>>Check out Dr. Kanayama's site. His assistants and receptionists are
>>>the best I have ever spoken with. You can call them and ask them
>>>whatever questions you may have.
>>>I hope this helped some. Good luck with everything Ariel, I wish you
>>>the best.
>>>Please keep us posted, I'd like to know what your plans are with this.
>>>You are never alone here.
>>>Thanks for sharing.
>>>-Nettie
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