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Re: Endometriocis (Just found out )
From: Christen99 (anonymous@obgyn.net)
Mon May 26 20:01:22 2008
At Mon, 26 May 2008, Alemsha wrote:
>
>At Mon, 31 Mar 2008, anonymous wrote:
>>
>>At Mon, 31 Mar 2008, anonymous wrote:
>>>
I'm sorry you're having to deal with this. I am scheduled for surgery
#3 on the 12th of June for another Roto Rooter. I actually was diagosed
as stage 2 about a year before my second son was conceived. I have had
horrible cramps since my period started, and spent many a day curled up
with a heating pad or in the bathtub trying to get relief. From what my
doctor's have said, some people can have horrible endo everywhere and
not feel a thing, then there are people who have a mild case and feel
every little thing. I don't have it in any of the usual places, it's
all over my bowels and peritoneal cavity but it has avoided my uterus,
tubes, and ovaries. I feel every little twinge, and I always have. The
only way to diagnose it for sure is to have a laparoscopy to see what is
going on, and at that point the doctor's can judge the severity of your
disease. Good luck, I hope you find the answers you are looking for.
Christen
>>>Hello ,
>>>
>>>My doctor told me this morning that I may have endometriocis. I have
>>>experienced almost all symptoms described by her and that in internet
>>>articles. She gave me some pills for the pain.
>>>
>>>I am not so sure what is next. I think I have it a little more than
>>>mild but not severe. I am less than 25 years old & wish to have
>>>children in the future. I have done a lot of reading after my visit and
>>>now know about some issues relating to the issue.
>>>
>>>What is Next for me ?
>>>
>>>Do I do the laposcopy to know the severity of my condition?
>>>
>>>How Do I reduce the chanes of infertility?
>>>
>>>What treatment should I take in the interim until I am ready to have
>>>kids?
>>>
>>>Can I know from now the chances of having kids in the future?
>>>
>>>Should I just have a child as quickly as possible?
>>>
>>>PLease try and address my issues. It would be greatly appreciated Thanks
>>>
>>>Ariel
>>
>>Hi there Ariel,
>>I'm sorry you are feeling not so good and that the news from the doctor
>>was not so good as well. For me, after suffering the pain since 2001, a
>>doctor finally told me that he suspected I had endo as well. I have to
>>say in the beginning it scared me so much and I felt so alone. What I
>>did was I had a laparoscopy (laser). But the laser was no good because
>>it doesn't remove it properly. Then I had to have another one
>>(excision) which was better but then this doctor did not find it all. I
>>am now scheduled to see an incredible specialist in NYC on the 16th. He
>>is one of the top specialists in this field. Dr. Kanayama.
>>Google him and read up on him. Also, check out the posts on his site
>>from all the women that say he changed their lives forever.
>>My advice to you is to seek out a specialist, it will save you so much
>>more time and energy and everything else. I swear, I wish I did this
>>instead of running around all the gyn's up here.
>>Make sure you do not go on Lupron!!!!! this is a big thing you want to
>>avoid.
>>I'm not sure about the fertility thing, but for me, I want to have kids
>>someday but not right now.
>>I do think to myself whether i am fertile or not and it makes me a
>>little sad and worried. But, we can't do that, we need to stay
>>positive.
>>Seeking out a specialist is the most important thing. They know way
>>more than regular Gyn's.
>>Check out Dr. Kanayama's site. His assistants and receptionists are
>>the best I have ever spoken with. You can call them and ask them
>>whatever questions you may have.
>>I hope this helped some. Good luck with everything Ariel, I wish you
>>the best.
>>Please keep us posted, I'd like to know what your plans are with this.
>>You are never alone here.
>>Thanks for sharing.
>>-Nettie
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