Re: First Lupron injection for endometriosis 3 days ago and feelin' fine - NOT ANYMORE - NEW QUESTIONS
From: Nicole (anonymous@obgyn.net)
Thu May 22 12:34:20 2008
I noticed that you said something about thinking you had a bladder
infection, but it didn't show up. Get to a Urologist ASAP. Check to
make sure you do not have IC. Lupron will not cure this condition, and
it will only get worse over time. It is the evil twin of Endo. I let
my thought of a bladder infection pass me by and I ended up in horrible
pain from the IC. Worse than the endo. Alot of patients dont realize
it could be something other than the endo causing the pain down there.
I was on lupron before and my symptoms only got worse. I stopped after
my 3rd injection. Hope you have better luck.
Wishing you the best! feel better :)
At Thu, 22 May 2008, endoquestions wrote:
>
>Well, as I noted before, not more than a few hours after my original
>post, it was quite apparent I hadn't gotten lucky. Pain, pain, pain. It
>has gotten better (now three weeks after first injection) but still have
>some disturbing pain that, to tell you the truth, is still worse than
>originally (with just the endo.). However, some of the other pains seem
>to have improved (keeping my fingers crossed and knocking on wood!).
>Still incredibly painful and worrisome. I've had this sharp pain in the
>center of my low abdomen (about where uterus used to be). It shoots
>through to vagina area. I thought it may have been a bladder infection
>but had GP check it - nope. Hmmm.
>
>I was concerned about starting the "add back" because I heard that's
>what REALLY packs the pounds on. In fact, I didn't even take it for the
>first week. However, 2 weeks after finally starting that AND with the
>Lupron in my system, I'm losing weight. Yes, I know that could all
>change and I could start an upturn at any moment. Knowing that this
>whole situation could cause a weight gain (and I have ALWAYS gained
>weight on birth control pills, Norplant, and depo Prover), I took this
>as an opportunity to REALLY watch what I'm eating and drinking and being
>VERY careful.
>
>I have noticed what have to be side effects of the Lupron (not
>considering the increased/different pain a side effect). Funny metallic
>taste in my mouth - seems to originate directly from the middle of my
>tongue. Cokes don't even taste right to me now (which, I suppose, is a
>good thing because that means I'll have to drink water). Sharp,
>stabbing, feels like my AC joint in my shoulder area is breaking when I
>move my left arm. That had never happened before the Lupron shot. My
>jaw on the right side sometimes feels like it's going to pop out of
>joint - literally makes a noise. Yes, I've considered TMJ problems, but
>this had NEVER happened before the Lupron shot. Dizzy sometimes. You're
>right, too, eyesight seems a little off. I was supposed to get bifocals
>a few months ago (before Lupron). I'll be able to get my new glasses in
>a couple of weeks (when I can finally afford them!). I wonder if I
>should have my eyes checked again (just had that done in February, I
>think - yes, the memory is going on the Lupron!!!). Maybe the
>optometrist could tell me if the Lupron (even only at about 4 weeks post
>injection) has affected my eyesight. That might be a fun test. And,
>yes, the memory is an issue. It was before Lupron, but not quite this
>bad. I was standing at the deli counter the other day and couldn't even
>figure out that I could read the label on the meat I wanted to tell the
>deli person what to get for me. I had to apologize to her as I stood
>there looking like an idiot about to cry because I couldn't think to
>read the label. Duh!!!! Have noticed a few headaches but I can't tell
>if it's the Lupron or allergies. The headache seems to be all in my
>forehead area. Sound Lupron-y to you? Acne is bad. Have noticed whole
>strands of hair coming out of my head. Hands are incredibly dried out
>(palms are peeling!). Nails are EXTREMELY brittle. Chunks just crack
>off the ends. I ALWAYS use lotion but it doesn't help anymore.
>
>At 3.5 weeks post first shot, would I be having the hot flashes yet? I
>think I may have noticed a few but then again it could be just that I'm
>fat and was overworking myself. Even if it is hot flashes, I figure
>maybe that'll burn off a few calories!!! :)
>
>All-in-all, at this point, I'd have to say things are better than before
>Lupron/add back. Pain in some areas is much better. (Yes, pain in some
>areas is worse.) Maybe the pain issue seems more tolerable because I
>have pain meds to get through it, too. Side effects aren't unbearable
>(yet). And, yes, I realize that all the side effects may just get worse
>over time and that new ones may pop up.
>
>Thank you so much for YOUR insight. Your advice is appreciated. How
>long were you on Lupron? Did you do the 11.25?
>
>At Thu, 22 May 2008, stacey wrote:
>>
>>i thought i was in the same pool, give it three months. not only will
>>the hotflashes be totally annoying at this point but the headaches will
>>get worst. the first 10lbs you will gain seem like nothing, but now it
>>will be like a pound a week until you are done with the treatment. i
>>wouldn't finish the treatment if i were you. when you are done your
>>vision will never be the same, your memory won't come back and the fat
>>on you belly will join you for the rest of your life (just like real
>>menopause). woo hoo! lupron sux!
>>
>>At Fri, 9 May 2008, anonymous wrote:
>>>
>>>I had my first Lupron 11.25 injection three days ago. If I was going to
>>>have the nasty endo. surge I've read about (increased pain), would it
>>>have happened by now? I woke up the second night and had a little bit of
>>>pain but nothing like usual my usual endo pain. What I HAVE noticed are
>>>the usual bowel issues (diarrhea, having to run to the potty) that
>>>normally come during menstruation time. Have I just gotten lucky? At
>>>this point, I don't feel like I had ANY kind of medicine put in my body
>>>a few days ago. In fact, I feel better. Maybe my remaining endo. is
>>>more bowel-related??????
>>>
>>>I had a LAVH a couple of months ago but left one ovary hoping to avoid
>>>menopause because of my age. After the LAVH, I've still had a cyst on
>>>the remaining ovary and MISERABLE times during what would have been my
>>>period times (back pain, pelvic pain/cramping, joint pain, bloating)
>>>leading my dr. to think she may not have seen/gotten all of the endo.
>>>That's the reason for the Lupron.
>>>
>>>I guess my real test will be during what would have been period time for
>>>me this month. I'll have to see if the misery is there.
>>>
>>>Thanks for any ideas.
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