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Re: Pain Control, HELP!From: Beka (anonymous@obgyn.net)Sat May 10 20:08:59 2008
At Sat, 10 May 2008, Nasus wrote: > >At Tue, 6 May 2008, Melissa wrote: >> >>Hi, I was diagnosed with endo 2 years ago & had a lap Feb. 07. I had >>some relief of the pain for about 5 months, and now it's all coming >>back. I have tried many different birth control pills & my Doc wants me >>to go on Lupron. I really do not want to do this right now, I am in the >>middle of full-time nursing school, and I suffer from depression >>already. I am afraid of going on it. Over the past couple months, my >>doc has refused to prescribe me any more pain meds (been on Tylenol #3) >>and will only do the Lupron. Does anyone have any advice? I am in >>extreme pain and haven't taken anything but my naproxen for the past 2 >>months, but have not received any relief! Should I find a new doc or >>what? >>Thank you, >>Melissa > >Hi! I don't any any meds at all for my pain. I guess I'm either being >brave or stupid, probably stupid. HOT BATHS. Hot baths are wonderful, >and they help me so much, and they do completely take the pain away for >a short time. I would find another doctor. I saw several different doctors until I found one who took my pain seriously. You need to let them know how the pain interferes with your life. If you struggle with depression, I would not recommend Lupron. I was on Lupron for about 6 months and that was the hardest time of my life. During that period of time I frequently had thoughts of suicide. My experience with it was awful, you see since it put my body into a state of menopause I had all of the symptoms of menopause. It was like PMS x 1000!! For example, something that may have mildly hurt my feelings before I got on this med, was like.. excruciatingly painful to me. All of my emotions and feelings were magnified and I couldn't tell what feelings were real and which weren't. I basically became a Phsycho B*** for awhile. I had like maybe 4-6 months of relief afterwards..but the hell I went through during the time I was on Lupron was so not worth it. A doctor should NEVER force you to take Lupron or tell you that this is your last hope. It may take some time to find a new doctor who will take your pain seriously but it is so well worth it. A good doctor will put you on a pain management treatment plan and discuss the different pain treatments available. #1 thing that would help is getting into physical therapy. I wish my Obygn had referred me to physical therapy. Endometriosis can cause other issues within the pelvis because of the inflammation and tension. Your pelvic floor muscles are kind of like a hammock with strings that attached to different parts of your pelvis, like the bones, etc. This muscle group is called your pelvic floor. When there is inflammation and tension, these muscles tighten and can pull things like your sacrum and tailbone out of place. Which causes more pain. Only a physical therapist can help you treat this. Search your local area for a physical therapist who treats Pelvic Floor Dysfunction. I never even knew what that was before. I just thought I had endometriosis, but many women with Endo, also have Pelvis Floor Issues. I live with pain every single day but I continue to meditate and work toward healing. I used to feel helpless, and alone. I even used to wonder if it was all in my head since the doc's couldn't find what was wrong. I even had a doctor accuse me of seeking pain medication as a way to self medicate. This hurt me so much. My mother didn't let me give up though. She said I should keep looking until I found a doctor that would find out what was wrong. The doctor who told me that was just ignorant. Only YOU know your body and know what you are feeling. Don't give up, EMPOWER yourself, research research research and continue to knock on doors ntil you find a doctor who will help you and will listen. First research and look for doctors who not only specialize in Endometriosis, but also Pelvic Pain, and Pelvic Floor dysfunction. You deserve to live healthy, and well, and not life a life of constant pain. I am still in physical therapy and it's a daily pain battle, but I continue to trust and believe that I will be healthy and well. I have learned a few things that help me to get through when my pain is really bad and even medication doesn't seem to help. Hot baths really do help so much.. even more so than heat pads or wraps.Heat pads and wraps are also my best friend. I have several and usually have one on at night or while I am home watching tv or laying on the couch resting. Keeping that heat on really helps. If you try heat, and that doesn't work for you, try cold packs. sometime s when the heat doesn't ease my pain, I switch to cold packs and it does the trick. I have a friend who has told me that Acupuncture does wonders for her.. I have not tried it yet, but I plan to. I will let ya'll know if/when I do.. Sending you lots of love and good energy
-- Beka Dreamsphiire@msn.com
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