ENDO Messages for April, 2008: Re: Endometriosis in groin region

Re: Endometriosis in groin region

From: Nikki (anonymous@obgyn.net)
Wed Apr 30 22:27:57 2008

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In reply to: Colleen: "Re: Endometriosis in groin region"

Hi Colleen,

Yeah, check out all the info you can on the different drugs available. Maybe you'll find something you like and you can talk it over with your doctor.

I've done some major researching on the web, and these were some of the websites I liked. I even emailed them and asked them specifically if they knew anything about diaphragmic endometriosis. They were nice enough to point me in the right direction. Maybe they'd help you with your research.

http://www.endometriosisfoundation.org/ http://www.endometriosisassn.org/contact.html http://www.endometriosis.org/organisation.html <--- this one's email was hard to find so I'll just give it to you: info "at" endometriosis.org

Endo outside the uterus is very weird, I mean before I had no idea it could grow all the way up into the chest, and down into the groin area. I've suffered from right shoulder pain since my teens, and now I find out its not from playing sports but from endo lesions on my diaphragm -- weird! My doctor actually thinks that there are more endo lesions hiding on my diaghragm behind the liver and this could be why I'm having more trouble than usual... geez, endo sure gets around lol

Well, goodluck with your research! Google "endometriosis organizations" and bug all of them. They're used to it. They like to share their research.

Take care.

-- Nikki

At Wed, 30 Apr 2008, Colleen wrote: >>Hi Nikki, thanks for the response. I feel very alone as I have been told how "rare" it is for it to break out of the uterus area. I have seen my GYN and she wouldn't look me in the eye after I presented her with a surgical report. I am currently waiting to see a new doctor but wanted to find more info. on the other drugs and being I have the blood clot history, I think it presents a major problem. I have been dubbed "gene defect" so I understand the banana comment totally. I appreciate the info. on the other drugs, I will look those up. Have you found any info. on what happens when the endo. gets outside the uterus? I feel knowledge is power and currently I do not have anywhere to go to get this info. >Thanks for sharing your story, I am glad that you shared your endo. >location with me. >Take care, >Colleen

--
"Shopping is my cardio," Carrie Bradshaw

Next message: Nikki: "Re: Pls Help: Uterus attached to ovary, anyone????"
Previous message: nellie: "Pls Help: Uterus attached to ovary, anyone????"
In reply to: Colleen: "Re: Endometriosis in groin region"

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