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Re: Big decission, need your help please.
From: anonymous (anonymous@obgyn.net)
Thu Apr 24 07:15:32 2008
Hello
My last laps were done my regular gyn's. I didn't know enough back then
to really first find a specialist. One was laser the other excision.
The new specialist is in NY. I live in Florida.
At Thu, 24 Apr 2008, C wrote:
>
>At Wed, 23 Apr 2008, anonymous wrote:
>>
>>Hi, I just went to well known specialist last week after leaving all my
>>other doctors who couldn't help me. I'll start with this: I have Endo,
>>and had 2 laps last year. My last doctor sent me away after stating he
>>removed it all and others now want me to go on Lupron (which i kept
>>saying no, but they kept offering it). Anyway, I decided to seek out a
>>specialist to really help me. He was great, thorough and comforting. I
>>told him my pain level, symptoms and aweful pain during intercourse. We
>>then did the exam. There were so many places that were more tender than
>>before. After that, he did the ultrasound. My uterus was tilted 50
>>degrees to the right, possibly attached to my right ovary. He said the
>>reason for the bend was because of very deep endo pulling it down. I
>>became very sad because when i was first diagnosed with endo he said my
>>uterus was shifted to the right. But this was even more than last time.
>>This is also where I mainly have all my pain, including major lower back
>>pain. What I am confused about (as well as the specialist) is that
>>between my symptoms, exam (with ultrasound) and the past pathology
>>reports is inconsistantsy. Many of the last Lap findings came back as
>>just chronic inflammation except in the cul-de-sac area which was
>>positive for endo. But what if my last doctor was not cutting deep
>>enough where the pain was and didn't reach the endo, would that be why
>>it came back normal? or maybe it was the wrong area. I am just so
>>incredibly confused by this. What else could it be if it is not endo? I
>>spoke with the specialist on the phone after the appointment. He really
>>asked me questions about how much pain i am in and if it is really
>>interfearing with my life. I said it is and I am so tired of it. I
>>told him that I am going away to grad school in August and want this
>>done with so obviously i don't want to wait on it. He gave me the
>>choice if i wanted to go ahead with the surgery or if I wanted to wait
>>and see if the pain went away. What confused me about this is that
>>nothing can fix my uterus being possibly attached to my ovary, maybe
>>attached to my sidewall, except to surgically de-attach them, right?
>>Wouldn't it get worse if I waited on that and wouldn't the endo grow
>>more if I waited? wouldn't the chance of becoming infertile grow if i
>>waited? It kind of made me think that this was in my head or something.
>>Why would he ask if i wanted to wait if he knew something was wrong?
>>Maybe he was just giving me the choice if i wanted to do this to my body
>>again and also because it is such an expencive procedure. What do you
>>guys think? It makes me think that he isn't sure I have it. But doing
>>the procedure with his expertise with deep endo would really determine
>>it! What would any of you think and do, would you go ahead with it even
>>if you thought he wasn't sure if you had it but YOU know that he is the
>>most qualified surgeon to find it if you did have it? Thanks for all
>>your time. This is the biggest decission i need to make and I really
>>need input from other women who know what it is like and who have been
>>through this. Thank you. Nellie
>>
>>p.s. I also don't have health insurance which the cost would be about
>>$30,000-40,000.
>
>Can I ask a few questions first. Were your Lap's done by a specialist
>back then? Meaning a true Endo specialist not just a regular general
>OBGYN/GYNO(no insult but they are not cutting edge and specialist in
>this area). This last Dr. you refered to as a specialist, who was he
>if you don't mind me asking, and is he a true specialist in Endo? And
>last was your prior lap's with cortorix=zing the Endo or excision? Oh
>where do you live?
>
>Ok from there I would love to then share my experience with you and
>share anything else that may help you. My Specialist is in NYC but I
>have learned through my Endo many things. Most recent through this
>forum,thank you to whom ever helped me! Anyway please respond and maybe
>we can share good info together with the rest of the forum.
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