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Re: Shoulder pain, etc.
From: Julie_London (anonymous@obgyn.net)
Wed Apr 23 07:04:09 2008
Looks like a long time since anyone added to these comments but I've
found them and feel even more annoyed with my family doctor...
This is my story:
I have had terrible shoulder pain (also gong down to my wrists and
fingers - lots of trigger pionts)for about 2.5 years. It was made worse
by having to carry equipment for my job and I believed it was related to
my long-term general back problems (which have actually eased up since I
took up dancing a few years ago) even though it seemed a different
problem. After complaining to my GP many times, I persuaded him to
refer me to the local hopital for physio. The physiotherapist
originally thought it was related to the curvature and non-movement of
my lower spine but ended up concluding that he didn't think so after all
and wrote to my GP advising referral elsewhere for futher investigation.
(the doctor took no action)Meanwhile he used acupuncture every week for
a couple of months, which was really effective for pain management.
(note his advice re skin colour - apparently, it is less effective the
darker skinned you are - I'm mixed race olive skinned - my African
partner previously wasted a lot of money on treatment that had no
effect)
Anyway, in the meantime I have separately reported these other symptoms
to my doctor: pelvic pain- always in the same place and sometimes really
bad with tha addition of bloating and feeling like my pelvic floor has
gone,painful sex (every time), ovulation pain, bleeding during sex
(occasional), dibilitating fatigue causing lateness for work and
'crashing out' early evening. All the time asking for help so that I
could carry on working. (I gave up in the end) Now all this time I have
continued to keep fit and active studying African dance, swimming and
walking everywhere-dosing up on painkillers as necessary.
A scan showed nothing, but I was told at the time it would not show
endometriosis if I had it. Eventually, my bored doctor, still insisting
there would be nothing wrong with me said I could see a gynocologist if
I wanted a second opinion. I made an appointment, saw a sympathetic
consultant, had a laparoscopy this week and guess what the found and
treated...endometriosis. I have arranged my post op appointment with a
different doctor.
What I don't understand about my condition is that I've found that my
pains are much worse if I'm sedentary like 'relaxing' or working at a
desk but ease up if I am active - in fact the shoulder pain only goes if
I dance/exercise really hard and get very hot.
At Tue, 25 Nov 2003, Julie wrote:
>
>I have suffered from shoulder pain for years and have been diagnosed and
>undergone surgery & medical treatment for endometriosis. It was not
>until after I had surgery and switched doctors, that my Ob-gyn mentioned
>the possibility that I have endometriosis on my diaphragm. I was lucky
>enough to get pregnant through in vitro & the shoulder pain disappeared
>while pregnant, but has started again (while I am nursing).
>Unfortunately, during the surgery that I had in 2001, the doctor did not
>check the diaphragm. I have attached a link below to Dr. Redwine's
>website regarding diaphragmatic endometriosis (Perhaps this information
>will give you a little more leverage when talking to your doctors about
>this...And you should switch doctors if it doesn't)
>
>If the link doesn't work for some reason, do a yahoo search on
>"endometriosis shoulder"
>
>http://www.endometriosistreatment.org/html/reprint9.html
>
>--
>Julie
>
>At Sat, 11 Oct 2003, JudyABall wrote:
>>
>>October 9,2003
>>
>>I have the shoulder pain that all of you described and I know based on
>>conversation with my sisters and friends that many women had suffer both
>>shoulder and pelvic pain the day before or during their menstrual cycle.
>>I know that I have endometriosis because whenever I get pregnant all my
>>pains goes away. The O.B. Gyn. that I am seeing right now agrees with
>>me. At first, my doctors say that people with endometriosis can not
>>have baby. Therefore , if you have baby you don't have endometriosis.
>>He wants me to either do Laprascopopy or taking Lupron to shut down my
>>cycle to avoid having the symptons of endometriosis. I don't want to do
>>the Lapracopopy because it is much more invasive procedure and many
>>women that had it done say the endometriosis comes back anyways after a
>>while. I have read some remedies book that says that during the
>>menstrual cycle stop washing your head completely until the cycle ends
>>and don't drink or eat anything cold during the cycle will alleviate the
>>symptons of endometriosis. I found this to be very effective. However,
>>I think the minute I break the cycle by washing my head or eating
>>something cold the symptons do come back. Then , they go away if I
>>followed the regimen. Hopefully this suggestion will alleviate some
>>suffering from other women.
>>
>>--
>>JudyABall
>>
>>At Wed, 16 Jan 2002, anonymous wrote:
>>>
>>>At Tue, 10 Aug 1999, Kari wrote:
>>>>
>>>>Hi. This is the first time I have ever done this before, but my dear
>>>>co-worker found this site and told me I should check it out. I can't
>>>>believe this. You all have it too! I have been telling doctor after
>>>>doctor about the intense pain in my left sholder during my period, and
>>>>they just laugh me off. They all say, "that's a new one on me.. your
>>>>fine. Take some tylonol." The pain is graphic. I don't even know what
>>>>I am saying when I am in that state. My husband, God bless him, says
>>>>that I just cry out that I want to die. This happens EVERY MONTH!!!
>>>>
>>>>Is there anything I can do? I put ice on it, then heat. I put muscle
>>>>relaxing cream on, I take tylonol and stay immobile. I HATE to lie
>>>>down. The pain doubles! It starts toward the evening of my first day,
>>>>then intensifies over night. The next morning I can't even move. Then
>>>>by the afternoon of day 2 the pain is tolerable.. and gone by the end
>>>>of day 3. It is a 48-72 hour cycle.
>>>>
>>>>Is there anything I can do or anything I can say to the doctor so that
>>>>they might take me seriously.
>>>>
>>>>Thank you. And, sorry this is so long.. I just am so happy to have
>>>>someone to talk to about this!!! Thank you again.
>>>>-kb
>>>>
>>>>t Wed, 14 Apr 1999, Joy Schutzman wrote:
>>>>>
>>>>>Yenta and Cherie,
>>>>> I get almost everything that you just described! I get the
>>>>>chest/diaphragm pain...I even went to my doctor thinking that it was a heart
>>>>>condition, but they couldn't find anything with X-ray, and told me not to
>>>>>exercise for awhile. But it comes and goes. Every once in awhile I have chest
>>>>>pains. I also get pains in my shoulders, like the two of you. I tend to blame
>>>>>them on weird sleeping positions, or tension, but I'm not really sure what they
>>>>>are! I haven't been too concerned with them, as the lower ab and lower back
>>>>>endo pain is on the top of my pain list lately.
>>>>>Hope you get some answers! Joy in CA
>>>>>
>>>>>yenta wrote:
>>>>>
>>>>>> YES!!!!! I, too, have the left shoulder pain as well as an upper left
>>>>>> chest pain which comes and goes -- sometimes severe with flareups,
>>>>>> burning pain under left armpit on left side of chest/diaphragm flares
>>>>>> occasionally, and left and right diaphragmatic pains at lower ribs which
>>>>>> also comes and goes. You are not alone!
>>>>>> Y.
>>>>>>
>>>>>> At Tue, 13 Apr 1999, T wrote:
>>>>>> >
>>>>>> > Six months ago I had my 2nd laporoscopy. I have stage 4 endo and am
>>>>>> >on bcp (not continuous). The last couple of months when I have my
>>>>>> >period, I have the usual lower back pain but now I also have pain in my
>>>>>> >left shoulder blade. Has anyone else had this
>>>>>> >
>>>>>> >Cherie
>>>>>>
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