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Re: Proctalgia FugaxFrom: L (anonymous@obgyn.net)Fri Apr 18 21:46:22 2008
At Sun, 19 Jun 2005, anonymous@obgyn.net wrote: > >At Mon, 20 Dec 2004, Lisa wrote: >> >>Thank God, thank God I found you guys. I've suffered for my entire >>adult life with this nameless condition and I finally found it tonight >>here. >> >>It's horrible to wake up in the middle of the night with a pain so >>intense you think you're dying. I've walked the floors, paced, prayed, >>cried, begged, passed out. Oh, occasionally it might happen in the >>middle of the day, but it almost invariably is a night thing. After I >>get an attack, the whole next day I'm lifeless and weak. >> >>A gastroenterologist I consulted about 8 years ago ran the whole gamut >>of tests, internal and external, and could find nothing wrong with me. >>He looked at me like I was off my nut when I told him it felt like >>someone doing a procto exam with their fist. He finally gave a >>frustrated diagnosis of "possibly spastic colon" and put me on a 40 >>grams of fiber a day regimen! Oh, I followed it for a while, at least >>till there was no hide left on my poor raw behind, then I dropped back >>to a reasonable amount when not even the fiber stopped the pain. After >>all, I've always eaten healthy, and I have no problem with either >>diarrhea or constipation. >> >>So I've lived with this for years, scared he missed something, scared it >>could be colon cancer or some other horrible life-threatening illness. >>After all, what else could hurt so bad? But tests are expensive, and >>even though you don't want to hear you've got something wrong, it's just >>as frustrating for you to hear that they can't find anything. You pay >>off all those medical bills over the next several months feeling like an >>idiot, and it makes you even more inclined not to go back and get more >>in debt for nothing. >> >>All I can say is that if I could reach inside and touch the pain, it >>would be a few inches inside the colon. Sometimes it feels almost like >>hard period cramps, and it radiates into my tailbone and into my female >>organs too. The pain is always, though, centrally in the colorectal >>area. I just wish I could reach in and massage away the hurt, but >>instead all I can do is pray it's a short spasm and not a long drawn-out >>one. I've even had to lay off from work or go in late the next day I'd >>be so wrung-out from wrestling with the pain. >> >>I'm just curious to hear what everyone else does that actually gives >>relief. The only medicine I've ever gotten any relief with is plain old >>aspirin. Tylenol and other NSAIDS don't seem to bring any, and I'm not >>sure if the aspirin actually works or if the pain is subsiding on its >>own. At any rate, the time it takes for anything to kick in is an >>agonizing wait. >> >>Anyway, thanks for making your website available to women like me who >>have tried everything else and just need to find some common ground. >>Maybe I'll get a little better educated from the others on here who have >>learned to live with this most bizarre disorder. > >-- >Try moist heat. I have had proctalgia for many years and have tried everything imagninable to relieve the pain because it is so intense, even a swig of whisky...and I rarely dring any alchoho...but I was desperate. Then finally I discovered that moist heat relieves the pain very quickly. Many internet resources say to fill a tub with hot water and sit in it. However, by the time you do that the pain is beginning to subside on its own. I heat a moist towel in the microwave and then wrap it in another towel, or in a plastic bag with another towel around it. The moist heat helps the pain to go away much faster than anything I have ever tried. >
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