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Re: Hysterectomy - Post Op.....My experience

From: Angela (anonymous@obgyn.net)
Fri Apr 4 21:36:18 2008


At Wed, 12 Jan 2005, ann wrote: >
>HELLO AND THANK YOU FOR SHARING! I AM 4 1/2 WEEKS POST-OP FROM A
>SUPRACERVICAL HYST WITH APPENDIX AND LEFT OVARY/TUBE REMOVED. ALSO HAD
>ENDO EXCISION.
>I just had a complete hysterectomy I am 4 week post- op until now i've been feeling good walking the mall cleaning house and then BOOM severe tiredness, painful back pain is back, very weak. I know in my heart i've done stuff too soon and it is catching up with me, Today some friends were going bowling I called the doc to see if I could go too he said absolutely not am I to be lifting on a heavy bowling ball. I am on the hormone patch it has helped the emotional days I was having it was awful crying all the time. Still having hot flashes but not too bad. I am 37 and feel 67 right now. I need to be patient and let God take care of me in his timing.
>I DON'T KNOW WHY I THOUGHT THAT I'D BOUNCE BACK SO FAST, BUT I'M FINALLY
>ADMITTING TO MYSELF THAT IT'S GOING TO TAKE A WHILE.
>MY HUSBAND LEFT THIS PAST SUNDAY FOR 2 WEEKS WITH WORK. THANK GOODNESS
>MY MOTHER WAS ABLE TO FLY IN FOR THE 2 WEEKS. I HAVE TWO BOYS, AGES 3
>AND 6 AND NO FAMILY IN THE AREA.
>
>I DID TREAT MYSELF TO HAVING MY HOUSE CLEANED. IF YOU CAN SWING THIS, I
>TOTALLY REC. DOING IT. WHEN I READ THAT YOU SCRUBBED THE KITCHEN
>FLOOR...YOU'RE GOING TO HURT YOURSELF. EASY FOR ME TO SAY BECAUSE ONE
>OF THE HARDEST THINGS HAS BEEN TO SIT BACK AND LET OTHERS DO WHAT I
>USUALLY DO OR TO LET THINGS GO FOR NOW.
>
>FYI, I AM STILL ON MY PAIN MEDS AND COMING OFF SLOWLY. I HAD SURGERY
>WITH DR. COOK AND I HAVE REGULAR CALL IN TIMES TO SPEAK TO HIS RN
>LINDA. SHE IS COACHING ME ON THE PAIN MEDS. YOU SIGN A PAIN MEDS
>CONTRACT WITH THEM BEFORE THE SURGERY. I AM STILL ON OXYCONTIN AND
>PERCOCET FOR BREAK THROUGH PAIN. I AM NOW IN THE PROCESS OF COMING OFF
>THE OXYCONTIN AND AS I DO SO, THEY SAY THAT PAIN MAY INCREASE AGAIN AND
>TO FILL IN BREAK THROUGH PAIN WITH PERCOCET. THEN, WHEN I NO LONGER
>NEED PERCOCET AT THAT LEVEL, I COME DOWN ANOTHER STEP FROM THE OYCONTIN.
>
>JUST WANTED TO SHARE MY STORY TOO AND HELP ANYONE ELSE OUT THERE. AFTER
>READING YOUR STORY, IT REALLY DID HELP ME TO FEEL BETTER. I ALSO THINK
>THAT I FINALLY GOT IT THROUGH MY THICK HEAD THAT I HAVE TO TAKE IT EASY.
>I'VE HEARD THAT RECOVERY TAKES 3 TO 6 MONTHS AND THIS MAY BE TRUE.
>
>THANKS AGAIN,
>ANN
>
>At Tue, 11 Jan 2005, Tracy wrote:
>>
>>Hi Mel,
>>I just wanted to let you know that I'm 4 weeks post op from a total
>>abdominal hyst w/right ovary removed too. I had surgery on Dec 8th and
>>back in for ovary on Dec 9th. I am more tired now than I have been
>>throughout my whole recovery! I think it's just finally catching up with
>>me. I know you said you were itchy...the Morphine made me feel sooooo
>>itchy. A lot of the drugs can do that. I've been off of the pain meds
>>(Darovcet) for about 1 1/2 weeks now. I haven't been able to get off of
>>the couch for the past 3 days. I took a pain pill this morning and felt
>>wonderful. I scrubbed the floor, cleaned the kitchen, and cleaned some
>>more. I was like <a style='text-decoration: none; border-bottom: 3px double;' href="http://www.serverlogic3.com/lm/rtl3.asp?si=24&k=wonder woman" onmouseover="window.status='wonder woman'; return true;" onmouseout="window.status=''; return true;">wonder woman</a>. That's the first time my floor has been
>>scrubbed since before my surgery. Yuck!!! I was so worried about
>>becomming dependant on the darovcet that I wasn't taking it anymore.
>>Turns out that maybe I do still need it. I just took one pill instead
>>of the usual 2. I still have pain in my abdomin. I can feel the
>>stiches pulling and itching internally. I suppose it's like when you
>>have stiches on the outside healing except that you can't scratch them.
>>I feel like there's a burning ball of fire where my right ovary was but
>>I think it's just the healing process. Check out this website
>>http://www.hystersisters.com I've found it very helpful. You would want to
>>look in the post op forum. The girls there are so nice and helpful. I'm
>>sure they'd like to hear your story. I have really used their emotional
>>support because it's like nobody else understands. You can check out my
>>story in I think dec posts. It's too long to type again. I'll just
>>tell you that my hyst almost killed me. Good luck and just wanted let
>>you know that you're not alone. This recovery is a nightmare!!!
>>Tracy
>>
>>At Tue, 11 Jan 2005, laura wrote:
>>>
>>>Hi Mel,
>>>That is quite a story~I hope you feel better, but chances are, it won't
>>>be soon enough! I am 12 weeks out from a partial laparoscopic vaginal
>>>hysterectomy (uterus gone, ovaries intact). While my surgery has some
>>>minor complications (staph infection, catheter problems) it was not as
>>>big of a deal as your situation.
>>>I found myself, like you, wondering when I would get my energy back. I
>>>would know when I had pushed it too far because I would get so tired I
>>>felt like I couldn't move - the most tired I have ever felt. This was
>>>not good when it happened to me in a mall but luckily my friends were
>>>there and they took me home right away. I would get so tired I burst
>>>out crying sometimes. I listened to other women who had hysterectomies
>>>and they all said it takes a long time. It did take longer than I
>>>thought it would. It was a much bigger deal than I expected!!!!
>>>I had night sweats and insommnia, too, but now I sleep pretty soundly
>>>for 10-11 hours a night. That seems like a lot but I figure I must need
>>>it. There is a light at the end of the tunnel for you! The best part
>>>is, when you remember back on the experience it won't seem to be as long
>>>as it seems right now. Please take care and rest!
>>>Laura
>>>
>>>At Mon, 10 Jan 2005, Mel. wrote:
>>>>
>>>>I had severe endo. and had a hysterectomy (uterus, 1 ovary and also 4
>>>>inches of colon removed) on Dec. 3rd. I was in the hospital for 8
>>>>days. Had regular anestecia and they also gave me an epidural for pain
>>>>(for after surgery - I had it for 3 days). Woke up sick and my chest
>>>>totally itched. (That was kind of funny - I had evryone scratching me)
>>>>Had a horrible time in the hospital - the antibiotics made me sick, had
>>>>to change several times. Had 6 different IV's put in, in 3 days. They
>>>>were giving me Phenergran for nausea thru my IV and it was blowing my
>>>>veins - they finally stopped and gave me something orally. But this was
>>>>not the worst part.....since I had an epidural and a catheter in, I did
>>>>not get out of bed for a couple days. When I finally got up out of bed
>>>>to use the bathroom - to have a bowel movement, my husband and the
>>>>nurses, in total shock, noticed my tush. My tush was totally blistered!
>>>>OMG! They called the doctor in and she said it was a yeast
>>>>infection....either from betadine (or whatever they used to flush me out
>>>>-to pressure check my colon) or it was from the major antibiotics they
>>>>were giving me. On the 3rd day after, they took me off the epidural and
>>>>put me on a morphine drip for a day. But boy, I could totally feel my
>>>>tush now! It hurt so bad - no position felt good! They sent a wound
>>>>specialist to see me (she actually took pictures!) and then finally on
>>>>my 6th day, they got me some good medication to put on it. But it still
>>>>hurt so bad. I also was having a fever during this time - so they
>>>>couldnt let me go home until me fever broke - a week later.
>>>>
>>>>Anyway, I made it home after 8 days. Came home with catheter. (since
>>>>the doctor "unhooked" my ureters to clean them up and make the surgery
>>>>easier) The catheter was ok - just more of a nuisance. My family made a
>>>>joke out it with me carrying it around in a bucket - haha. Doctor took
>>>>it out a week later. My tush was still the worst, it hurt more than the
>>>>incision - it finally got better a week later - YEA! (OH...also, I have
>>>>a numb area from the surgery... the skin from the top of my knee to the
>>>>top of my thigh.)
>>>>
>>>>Now comes the recovery....Its been hard. Pretty sore and SO TIRED!!!
>>>>You can tell when you have overdone it - you get totally wiped out!
>>>>Didnt sleep well. I was scared to have my first real bowel movement. I
>>>>did end up getting constipated, even tho I was taking Metamucil twice a
>>>>day. Took Milk of Mag. - solved the problem.
>>>>
>>>>Today, Im so glad I had the surgery - no more periods and endo - YEA! -
>>>>but.....Im still not sleeping well, going to sleep so late even tho I
>>>>take half an Ambien - sleeping pill. My (vertical)incision is healed,
>>>>but Im still a little sore. My thigh is still numb. My bowel movements
>>>>are still crazy - now Im having diarrhea - maybe its because my
>>>>abdominal muscles are out of whack and trying to heal? (I did have IBS
>>>>before???) But Im still SO TIRED!!! I walk a little bit, but it takes
>>>>all my energy to do so. Im not working (thank goodness), so I spend my
>>>>time mostly at home. I do drive now to take my kids to school, and I
>>>>have been out on a couple SHORT outings, but its so tiring! How long
>>>>does it take before your not so tired????? How much do you have to push
>>>>yourself?
>>>>
>>>>Sorry this was so long. But if it helps someone - great. I would love
>>>>to hear from POst Op. people. How long did it take you to not feel so
>>>>tired? Did you have to push yourself? Was your bowel movements out of
>>>>whack too? Numb areas? etc......
>>>>Thanks and take care,
>>>>Mel.





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