Re: Endo and weird things going on - need advice
From: KimberlyL (anonymous@obgyn.net)
Fri Feb 29 18:24:51 2008
I was diagnosed with endo when I was 26 and am now 28. I had two laps
within 6 months of eachother. My husband and I finally decided to see a
fertility specialist when the pain returned to such a state that I could
barely function, and the docs were telling me surgery AGAIN.
The fertility specialist has put me on a number of vitamins, and has
asked me to consider danzanol. In the meantime my pain has almost
VANISHED due to taking magnesium supplements. The thought is that women
with a history of migraines and pelvic pain sometimes have a defficiency
in magnesium.
I don't know if you have headaches, or if it will work for you. All I
know is that I take ultra-Cal Night (one in the am, 2 in the pm WITH
FOOD), and my pain is SSSOOO much better. I am no longer taking pain
meds like candy. In fact, I only needed pain meds for ONE day my whole
last cycle.
Long periods are not normal, and I was just told it's not normal to stop
then spot a day or two later. I would see a specialist, if I were you.
At Fri, 29 Feb 2008, anonymous wrote:
>
>History: I was diagnoised with endo when I was 30, I am now 35. I have
>had miserable pain since I was about 22 years old. I basically told my
>doctor I wanted to find out through a lap if I had endo (which of course
>I was right). I was a late bloomer (luckily) and did not have my period
>until I was 17 years old. To deal with the pain prior to diagnois, my
>doctor prescribed me birth control pills (Ortho-Novom 777). Aparently,
>these pills have too high estrogen levels and are bad for endo. I have
>tried other "endo-friendly" bcp and I get sick from them. I take Motrin
>and Vicodin for pain, it only BARELY works (takes away about 10% of the
>pain).
>
>What concerns me is that I have had some weird things happen to me in
>the past. A couple of times I have had a 3 week long period, when this
>happened my bleeding was heavy almost the whole time. My breasts shrunk
>down quite a bit (from a D cup to a B cup), my hair was falling out, and
>the pain of course was very intense.
>
>The first time that this happened, I called my gyno's office (I was very
>scared) and another doctor called me back and told me to go to the
>emergency room if I that worried. I think that when this happened, I
>may have had a cyst rupture - not sure. After the first incident, I was
>frustrated with doctors and just stopped going to the gyno all together
>(for 2.5 years) because I felt that they really didn't do anything for
>me. The only reason why I went back to another gyno is that I moved. I
>did force them to do a hormone test, but they did the test after the
>incident happened and said that things were fine. I'm thinking that
>they should have done the test when I was having the problems.
>
>Does anyone know what the heck may have been going on? This just bothers
>me, because what happened to me is just not normal! The last time this
>same thing happened was a few months ago. I asked my new doctor for
>something that can actually help with my pain and she just told me to
>take Motrin, which is totally useless when it comes to my endo pain!
>
>Have any of you ladies seen a reproductive endocrinologist? My friend
>mentioned that I should go see one. There is only one doctor in my area
>(that my insurance covers) and he specializes in helping women get
>pregnant. I actually do think that I have problems getting pregnant,
>although I have not tried for very long, but is this type of doctor the
>right direction to head in? It seems like the gyno's just throw up their
>hands and tell me that I'm fine, when I know my body and know that there
>is something going on. Now I hate going to doctors, so I don't want to
>waste my time (I'm very busy) with a dead end. I just want to know what
>is wrong:(
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