Re: 25 and Newly Diagnosed with Endo/Adhesions, HELP!
From: Nicole (anonymous@obgyn.net)
Fri Feb 29 17:57:40 2008
Hi Lee and Steph,
I just wanted to get on and say once again your are not alone, I am also
25 and was diagnosed with endo 3 years ago. I also have been recently
diagnosed with IC in my bladder. It is helpful to know that there are
people my age going through this too. I have had three surgeries so
far. It is hard knowing what to think the future holds when you feel
awful on a daily basis. I just wanted to say I understand and that
hopefully the forum is helpful to us all. I know in the short amount of
time I have been on here, I have learned alot the doctors have never
told me.
Feel free to email me I would love to chat.
--
Nicole :) nriggs@hotmail.com
At Fri, 29 Feb 2008, Stephanie wrote:
>
>Hello Lee,
>I was just dianosed last April at age 24, im now 25 so i know how you
>feel. I was also diagnosed w/endo stage II, moderate. My doc also
>didnt remove some of the endo that was on my left ureter, and didnt
>release my ovary which is stuck to my tube. Iv been suffering sine i
>was 21 but within these last few years the symptoms just got worse,
>specially after my surgery. I was also diagnosed w/IC (interstitial
>cystitis) and possibly w/IBS (irratable bowl syndrom). And from what iv
>learned these two issues are quite often w/woman who suffer from endo.
>At times, i feel like im 80 years old! Im always tired, in pain. Just
>know, that there are many of us who understand exactly what you are gng
>through!!
>Steph R. :)
>
>At Thu, 28 Feb 2008, Lee wrote:
>>
>>This is day 13 after my diagnostic laparoscopy confirming that I indeed
>>have endometriosis and a very dense adhesion high up on my left side.
>>Part of me is relieved to finally know what's wrong, another part of me
>>is frustrated it has taken this long to get a diagnosis. I have been
>>suffering since I was 14 yrs old. I'm sure many of you can relate to
>>that!
>>
>>My question is the following.... Can you have "mild" endometriosis and
>>very dense/thick adhesions? I was under the assumption that adhesions
>>only occur with stage III or IV Endo? I have yet to have my follow up
>>appointment and am relying on the information that my OB/GYN gave to my
>>mom after the surgery but she said that she removed some endo on my
>>ovaries and cut away some of a very dense adhesion high up on my left
>>side but could not remove it all because it was too close to my bowel.
>>Overall though she said I had mild endometriosis. Is that stage I or
>>II? Any help would be much appreciated! Feeling a little confused!
>>
>>--
>>- Lee
>>
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