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Re: 25 and Newly Diagnosed with Endo/Adhesions, HELP!
From: Tiffany (anonymous@obgyn.net)
Fri Feb 29 12:14:50 2008
Lee and Steph,
I have been in the same situation as you for the last almost 6 years
now. I am getting ready to have my 7th surgery! I have been diagnoised
with endo, adhesions, PCOS, IC, and on and on. It is a frustrating and
complicated disease. In my last surgery, they did not release my
ovaries and tubes completly stuck and twisted in adhesions because
active endo had returned. I go for surgery to "attempt" to remove the
adhesions and free the ovaries and tubes, but the Dr states that he is
not completly sure they will be able to function properly. Keep your
head up and stay educated about new procedures and treatments. THere
are many days were I just want to have a hysterectomy and be done with
th pain, but I do want children. It is a tough fight. Stay positive! I
am new to reaching out to others with my condition and issues. It is
comforrtaing to know that you are not alone in your battle. I wish you
the best.
At Fri, 29 Feb 2008, Stephanie wrote:
>
>Hello Lee,
>I was just dianosed last April at age 24, im now 25 so i know how you
>feel. I was also diagnosed w/endo stage II, moderate. My doc also
>didnt remove some of the endo that was on my left ureter, and didnt
>release my ovary which is stuck to my tube. Iv been suffering sine i
>was 21 but within these last few years the symptoms just got worse,
>specially after my surgery. I was also diagnosed w/IC (interstitial
>cystitis) and possibly w/IBS (irratable bowl syndrom). And from what iv
>learned these two issues are quite often w/woman who suffer from endo.
>At times, i feel like im 80 years old! Im always tired, in pain. Just
>know, that there are many of us who understand exactly what you are gng
>through!!
>Steph R. :)
>
>At Thu, 28 Feb 2008, Lee wrote:
>>
>>This is day 13 after my diagnostic laparoscopy confirming that I indeed
>>have endometriosis and a very dense adhesion high up on my left side.
>>Part of me is relieved to finally know what's wrong, another part of me
>>is frustrated it has taken this long to get a diagnosis. I have been
>>suffering since I was 14 yrs old. I'm sure many of you can relate to
>>that!
>>
>>My question is the following.... Can you have "mild" endometriosis and
>>very dense/thick adhesions? I was under the assumption that adhesions
>>only occur with stage III or IV Endo? I have yet to have my follow up
>>appointment and am relying on the information that my OB/GYN gave to my
>>mom after the surgery but she said that she removed some endo on my
>>ovaries and cut away some of a very dense adhesion high up on my left
>>side but could not remove it all because it was too close to my bowel.
>>Overall though she said I had mild endometriosis. Is that stage I or
>>II? Any help would be much appreciated! Feeling a little confused!
>>
>>--
>>- Lee
>>
--
Tiff
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