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Re: Endo and weird things going on - need advice
From: anonymous (anonymous@obgyn.net)
Fri Feb 29 12:02:24 2008
The best advice I can give you is to go than an endometriosis
speciliast. There are only a handful in the US. You can find them at
endo-resolved.com The only way to get rid of the endo is through
excision, not laser that most drs. do. They do it the same way through
a lap, but use different tools. If you search on here excision or
endometriosis specialists you can hear all the stories of what everyone
has been though. They say removing endo is the hardest surgery even
harder than cancer, since it can effect so many vital organs that most
dr. are affraid to remove too much because if they do not have the
right tools or training they could totally ruin a vital organ. There
are many drs that do excision, but only a few that can truly do it
right. Its the best decision I made in my life.
At Fri, 29 Feb 2008, anonymous wrote:
>
>To add to this post, I forgot to mention that I am not ovulating. Being
>curious, I bought an ovulation kit and it showed that I did not ovulate
>this month. I started testing 7 days after my period started - there
>were 20 strips in the test.
>
>At Fri, 29 Feb 2008, anonymous wrote:
>>
>>History: I was diagnoised with endo when I was 30, I am now 35. I have
>>had miserable pain since I was about 22 years old. I basically told my
>>doctor I wanted to find out through a lap if I had endo (which of course
>>I was right). I was a late bloomer (luckily) and did not have my period
>>until I was 17 years old. To deal with the pain prior to diagnois, my
>>doctor prescribed me birth control pills (Ortho-Novom 777). Aparently,
>>these pills have too high estrogen levels and are bad for endo. I have
>>tried other "endo-friendly" bcp and I get sick from them. I take Motrin
>>and Vicodin for pain, it only BARELY works (takes away about 10% of the
>>pain).
>>
>>What concerns me is that I have had some weird things happen to me in
>>the past. A couple of times I have had a 3 week long period, when this
>>happened my bleeding was heavy almost the whole time. My breasts shrunk
>>down quite a bit (from a D cup to a B cup), my hair was falling out, and
>>the pain of course was very intense.
>>
>>The first time that this happened, I called my gyno's office (I was very
>>scared) and another doctor called me back and told me to go to the
>>emergency room if I that worried. I think that when this happened, I
>>may have had a cyst rupture - not sure. After the first incident, I was
>>frustrated with doctors and just stopped going to the gyno all together
>>(for 2.5 years) because I felt that they really didn't do anything for
>>me. The only reason why I went back to another gyno is that I moved. I
>>did force them to do a hormone test, but they did the test after the
>>incident happened and said that things were fine. I'm thinking that
>>they should have done the test when I was having the problems.
>>
>>Does anyone know what the heck may have been going on? This just bothers
>>me, because what happened to me is just not normal! The last time this
>>same thing happened was a few months ago. I asked my new doctor for
>>something that can actually help with my pain and she just told me to
>>take Motrin, which is totally useless when it comes to my endo pain!
>>
>>Have any of you ladies seen a reproductive endocrinologist? My friend
>>mentioned that I should go see one. There is only one doctor in my area
>>(that my insurance covers) and he specializes in helping women get
>>pregnant. I actually do think that I have problems getting pregnant,
>>although I have not tried for very long, but is this type of doctor the
>>right direction to head in? It seems like the gyno's just throw up their
>>hands and tell me that I'm fine, when I know my body and know that there
>>is something going on. Now I hate going to doctors, so I don't want to
>>waste my time (I'm very busy) with a dead end. I just want to know what
>>is wrong:(
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