Re: Dian Shepperson-Mills some real results!
From: Nicole (anonymous@obgyn.net)
Mon Feb 25 17:45:31 2008
Sherri,
Please let me know how the appointment goes. If you would like to email
me what state you are in, I would be glad to ask my Urologist if he has
anyone he knows in your state. He is very well-known in the midwest. I
totally know what you mean with Dr.'s in a group. I went to the one my
GYN recommended and he was terrible. Best of luck and I will hope that
maybe he takes the list to heart!
--
Nicole :)
nriggs@hotmail.com
At Mon, 25 Feb 2008, Sherri wrote:
>
>Nicole,
>
>Thank you for the info you gave re: IC and the meds your urologist has
>you on. I have an appointment with my uro tomorrow, so I'm gonna print
>out your post and take that with me. I really do not like this uro at
>all, but for whatever reason, I can't seem to change uro's. It's
>ridiculous in my opinion, but the small town I live in has one medical
>office that all the urologists are in, and once you see one, they will
>not let you change docs! My insurance will, but the medical office
>won't. It's getting really bad, b/c the uro I see has no clue when it
>comes to IC, and he has no bedside manner either! He seems to only be
>interested in doing surgeries, and when I complain about my bladder pain
>and problems from the IC, he always tells me to go see my gyn.....who
>tells me it is NOT a gyn problem, with which I agree totally. This uro
>just keeps trying to get me to take Elmiron, claiming that most of his
>IC patients don't experience any side-effects from it; however, the
>patients that I have talked to, do in fact have issues with this drug. I
>think your uro is right about it being a very strong drug, and hair-loss
>can be a side-effect from it. Of course, my uro claims that never
>actually happens, but I have talked with other IC patients that HAVE had
>that side-effect among many others. My uro also tells me that IC can
>not cause as much pain as I "claim" to have, which is just crazy, when I
>know how I feel and from the info I have read online and on the IC
>brochures that HE gives out!! The only other "treatment" that this man
>seems to know about for IC, is the DMSO injections, which I have done in
>the past. I never really noticed any improvement after the DMSO. Has
>anyone else had the DMSO and had improvements because of it? I'd love to
>hear others' opinions on that and the Elmiron also.
>
>Yes, unfortunately, I am well aware of what I can't have to eat or drink
>due to IC! It cuts out a lot, doesn't it? Between that and the Mills
>diet, what I CAN still eat gets kinda boring! LOL! Oh, well, if it stops
>the pain then it is well worth it!
>
>Anyway, thanks for your info and I hope that you continue to feel
>better!
>
>--
>Sherri :)
>
>At Fri, 22 Feb 2008, Nicole wrote:
>>
>>Sherri,
>>You're right when you say it is not easy to follow both diets for the IC
>>and the endo. I am sure you are aware of the items that cause IC to get
>>worse. My urologist has suggested the normal stuff- citrus fruits,
>>avoid coffee, soda. http://www.ichelp.com has the whole list. I have cut all
>>of those items out, then with the Mill's diet all wheat and gluten,
>>limited dairy. Between the two, it is difficult but I do eat alot of
>>salads with grilled chicken, shrimp, and fish. I have found some good
>>alternatives to wheat at the health food stores. (rice flour) They make
>>rice tortillas, some cookies with rice instead of wheat. I am now
>>getting used to it and trying to plan ahead each day so I stay on track
>>with it. If I have to eat something fast food- Wendy's makes a good
>>salad!
>>
>>In the surgery I had this week, my bladder looked awful. It is
>>completely inflammed and full of irritation. I just recently started
>>seeing this urologist this month, so that is to be expected. However, I
>>am on a new treatment plan for the IC. This is the list of meds he has
>>me on to try and reduce the symptoms first:
>>
>>Hydroxyzine Hcl 25 mg - 1 a day at bedtime
>>Sanctura Xr 60 mg - 1 a day in the morning before any food
>>Feldene 20 mg- 1 a day
>>Macrodantin 100 mg- 1 daily
>>Utira C .12mg- 3 times a day (turns urine blue)
>>
>>He has told me that he wants to try and "calm" things first and see how
>>I feel. Also he told me that Elmiron is a very strong drug and he likes
>>to try alternatives to using that first. The combo above is alot, but I
>>am already starting to feel better and am able to sleep at night for the
>>first time in months.
>>
>>I understand totally what you mean by not knowing where the pain is
>>really coming from. For me, knowing how bad my bladder is at this
>>point, I think that is where most of my pain is coming from at the
>>moment.
>>
>>I hope this helps in explaining things. Please feel free to email me at
>>nriggs@hotmail.com if you would like any more info! Thank you for your
>>positive remarks! After all the negative remarks that started last month
>>on here about the Mill's diet, I never know what to expect.
>>
>>Have a good one!
>>Nicole
>>
>>At Thu, 21 Feb 2008, Sherri wrote:
>>>
>>>Nicole,
>>>
>>>Congratulations! I'm really happy for you that you have figured out what
>>>works for you! So, it has only taken you 6 months to get such a great
>>>result? I also have both endo and IC, and I try so hard to follow the IC
>>>diet, which is no easy feat. What is the differences between the IC
>>>diet and the endo diet that Mills describes? How did your bladder/IC
>>>look? Do you still have pain b/c of IC or endo even while following the
>>>diet? I seem to still have a lot of pain, even with all the changes I've
>>>made, so that makes me very frustrated. The docs can't ever decide if
>>>my pain is mainly IC, endo, or the nerve damage I have due to all the
>>>surgeries I've had, or a combo af all 3. UGH!
>>>
>>>OOPS! I just re-read your post, so I see what you said about your
>>>bladder. What meds does your urologist have you on? Do you take Elmiron
>>>or Elavil? These are the only meds my uro has ever mentioned to me, so I
>>>wanted to see if yours was different.
>>>
>>>I don't see why anyone would give you negative feedback regarding your
>>>post. I think it's GREAT that you have found what works for your body!
>>>Good for you!!
>>>
>>>--
>>>Sherri :)
>>>
>>>At Thu, 21 Feb 2008, Nicole wrote:
>>>>
>>>>Just thought I would post some recent info on my surgery.
>>>>
>>>>I just had a Lap Surgery on Monday. This was not focused on my endo,
>>>>but an orange-sized cyst that had developed off my left ovary. Since
>>>>the size was so large my doc wanted it removed ASAP. While she was
>>>>doing this, I had he take a look at the state of my endo as well as the
>>>>IC in my bladder.
>>>>
>>>>Here comes some good news for a change! I had no signs of my endo this
>>>>time around!!!!! I had another lap about 6 months ago for my endo and my
>>>>uterus was covered in stage 2 endo.
>>>>
>>>>I am sure I am going to get some negative feedback on this, but I wanted
>>>>to let people know what I changed. I changed my diet right after I had
>>>>my last surgery. I have followed the Mills diet page by page as well as
>>>>started taking the Vemma vitamins.
>>>>
>>>>This is the only thing I have changed and now I am finally seeing some
>>>>results! I dont think I have ever been so happy coming out of surgery.
>>>>Normally it is the dreaded conversation with my doctor about how much
>>>>the endo has progressed, but not this time.
>>>>
>>>>I did find out how bad my bladder really was, completely inflamed so I
>>>>am hoping the meds from the urologist will start helping.
>>>>
>>>>Although it has required alot of work to be on the diet (both Mills and
>>>>the IC diet) that moment was worth it for me.
>>>>
>>>>I hope this will provide some insight on other possible ways to deal. I
>>>>am not saying this works for all, but it has for me.
>>>
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