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Re: Excision surgery with the 'specialists'

From: Kim (anonymous@obgyn.net)
Sat Feb 23 17:37:44 2008


Hi, not sure how much help I can be to you, but I wanted you to know that after I had my third lap in 5 yrs (and the same yrs of TTC), I was finally able to get pregnant (currently 27 weeks with twins- through IVF). I finally went to another doctor (although not a "specialist" in Endo, but he's wonderful and LISTENED to me). Pregnancy has been great in terms of no endo pain and I hope this last during breast feeding and even after. I wish you all the best.

At Thu, 21 Feb 2008, anonymous wrote: >
>I'm trying to get an idea of how many others have had excision surgery
>with one of the endo specialists (Redwine, Cook, Albee, Sinervo, etc.)
>and still had pain (or other problems i.e, infertility) afterwards, or
>from those that had a period of pain relief after a surgery, but then
>the pain and other problems returned. How long was your period of pain
>relief after excision surgery? Would you honestly refer another endo
>patient to them? Was anyone able to conceive after a surgery? How did
>the specialists/doctors treat you when you returned complaining of the
>same ol' pain again? Was their reaction or attitude in regards to endo
>being the cause again negative or positive? Did they refer you elsewhere
>for treatment? (same or different treatments) How about those who have
>had a total hysterectomy due to endo, and the pain is still a problem
>for you?
>
>Thanks in advance to anyone that responds! I'm trying to make a decision
>about which way to go now, after diagnosis of stage IV endo (had a lap)
>with all the "normal" treatments (bc pills, anti-inflammatories, etc.)
>The websites of these specialists sound almost too good to be true, and
>I have heard from some other endo patients that had excision surgery
>with Redwine and the CEC, whose pain DID return, and then they were
>referred elsewhere by the specialists for treatment. I'm getting the
>feeling that even these "specialists" don't know what they are doing. To
>be practically guaranteed that you will be pain-free and able to get
>pregnant, only to find it was not true, will be more than I can take!
>Thanks!!




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