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To Sheri
From: anonymous (anonymous@obgyn.net)
Sat Feb 23 12:08:58 2008
Hi Sheri
Thanks for your e-mail it helped very much.
About what you said regarding DR.Redwine in Oregon, I actually didn't
see him. It was DR.RObbins in MAine. But, I heard about Dr.Redwine
through someone else saying he is quite good. You heard other people
complain about him cause I was actually thinkng of contacting him.
Hmmmm.
I will keep u posted on whaat happens. I have been going on a wild
goose chase but as it happens, i get stronger about knowing and
believing how i feel. These doctors make me crazy.
Thanks again.
At Thu, 21 Feb 2008, Sherri wrote:
>
>You are very welcome!! I HATE the way that these doctors push Lupron on
>people, when they clearly have no idea what it really does to our bodies
>and minds! Like Debbie said, Dr. Redwine in Bend, Oregon is supposedly
>one of the best endo specialist in the country, but I have heard a lot
>of other women that have had the same experience you did with him. After
>he does his excision surgery, if the same patient comes back to him
>complaining of the same pain, he pretty much dismisses them. Even
>though he himself talks about how hard it is for doctors to get all of
>the disease, and of course it can and does return, so I don't get why he
>gets frustrated and/or defensive about it. I guess it's the God complex
>that most doctors, and especially surgeons have.
>
>I also feel completely alone with this disease when it comes to doctors!
>They do seem to send us all on a wild goose chase for answers and
>support with this. Sadly, I think you're right that most doctors will
>say the same things and treat you the same way you've already been
>treated. At least, that has been my experience. I have pretty much
>been told that my doc does not know what to do with me anymore, so he
>referred me to pain management. Don't get me wrong, I am glad that I,
>at least, get some meds to help "manage" the pain, but it is very
>frustrating to hear different doctors say that there is nothing left for
>me to try, so just take these pills and deal with it. Please let me
>know which herbal tinctures you are trying and the results you get. I
>am also looking into that, holistic medicine and accupunture. I wish I
>could tell you what you can do next, but I don't know either! I have had
>6 surgeries, the last being a total abdominal hysterectomy, and I am
>still in as much, if not more, pain as ever. UGH!! You know your body,
>so if you say there is something wrong, then there is! As for them
>saying if Lupron doesn't work then it's not endo, is pure BS! I have
>heard other women that have been told the same thing, and talked into
>trying Lupron, only to find out that it made things much worse, and it
>WAS endo. You've had 2 laps and been dx with endo, so how can they deny
>it!? I guess it's much easier for these doctors to live with themselves,
>and the harm they cause when they can pretend that us endo patients are
>just nuts wanting pain pills. Please, try not to let them make you
>doubt yourself! I know how hard that is, and I have been treated the
>exact same way, as have many, many others that come to this forum. How
>likely is it that we are all crazy hypochondriacs looking for drugs? We
>see this situation for what it is! It's the doctors that are delusional
>about this disease and Lupron, especially.
>
>Okay, enough of my rant for now. I wish you luck and hope that you can
>get some answers and the help that you deserve and need. Best wishes!
>
>--
>Sherri :)
>
>At Wed, 20 Feb 2008, anonymous wrote:
>>
>>Thank you Niki and Sheri
>>>From the beginning of hearing about Lupron, I came here to this site and
>>everything I heard about Lupron made me never ever want to go that
>>route. Even before the doctors recommended it I knew it wasn't for me.
>>That's why i was shocked they kept pushing it my way. I made it clear
>>from the beginning to the male doctors and then I sought out a female,
>>she said the same thing.
>>It is very hard to find a specialist here in Maine. I found one in
>>Bend, Oregon and I'm sure there are plenty more but unfortunately i have
>>state health insurance.
>>Right now I feel like all OBGYN's are going to say the same thing. I
>>feel very alone (not with everyone here) but with medical professionals.
>>I am trying herbal tinctures, my family is very into that.
>>They said if being on Lupron doesn't work than it isn't endo. Which is
>>crap i think, they just keep sending me around in a circle. I feel like
>>I have to just accept it and accept the pain.
>>I feel like there is something wrong with my pelvic floor, chronic
>>inflamation?
>>I have had 2 laps and what do i do now?
>>Thanks for all your help.
>>-Nettie
>
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