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endo and lupronFrom: julie (anonymous@obgyn.net)Wed Jan 30 19:31:29 2008
this will be my second post on this site. it is soooo helpful to hear from others suffering like me!! I have a few issues going on right now. I had a DVT and a clot in my left leg. I had the filter and stint in place. shortly after i found out i have Factor II deficiency. I have 3 children. My last pregnancy my uterus tore and things went down hill from there. I have had endo for around 8-9 years now. i've had 1 lapo. I did have a partial hysto. The doctor talked me out of removing both ovaries. He seemed to think a complete would be so much worse! Also, i suffer from severe migraines. After being diagnosed with the blood disorder my options became very limited. The only choice left that was a bit safe was the Lupron. I have done about 1 year until last October. I switched doctors (m.d. and my ob left the state)so i have been off since October. The pain is horrible. I have had pain all the way down into my legs and even my feet!! I ache all around my backside, and my hips. Sometimes it hurts to urinate and have bowel movements. I thought something was wrong with me until i read here how others are so tired and exhausted alot. Since there are other issues going on with me i never realized what the pain could be in my legs while i was on the Lupron. My entire family has suffered because of my endo. I have a 16 year old, 1o year old and a 3 year old little girl. I spend way too much of my life laying in bed because of the pain or i'm just wore out. I don't work because of the DVT, endo and migraines. It has always bewildered me how my endo was always the worst on my left side. My ovary which was the worst and removed, was my left side. My DVT is on the left side of my groin area, which they never found out what caused! Today i went to a new ob about getting the Lupron. I am now afraid. Noone has said anything about long term use. My new doctor wants to send me on to UNC-Chapel Hill to have the surgery to remove the ovary. Any surgery is scary but with my blood disorder i am really scared. But, right now i am not living and enjoying life. I wish i had been told a bit more about Lupron before. I am ready to do whatever it takes to end my pain. I now take Percocet for my pain, along with Coumadin and about 9 others RXs each day. I am 37 and feel like this has aged me 10 years. I truly appreciate everyone sharing their experiences and wisdom so others (like me) can bebefit!!!!!!
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Last Updated: Sat Aug 2 03:57:21 2008