ENDO Messages for January, 2008: Re: Not sure if I have Endo

Re: Not sure if I have Endo

From: anonymous (anonymous@obgyn.net)
Wed Jan 30 17:51:54 2008

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In reply to: Claire: "Not sure if I have Endo"

Claire,

YEP! It does sound like you have endo. That would explain your pain and even the cysts. Just because you don't have the clotting now, doesn't mean that it can't be endo. Endo is a progressive disease, so you very well could develope the clotting, more cysts, and more pain in the future. I'm sure you know that a lap is the only way to diagnose endo, and even though the tissue that was tested at your lap was inconclusive, does not mean that is was not really endo. If it was a regular ob-gyn that did the lap, she just may not be able to recognize some of the endo, as it has many different appearances. What type of hormones is she suggesting? Lupron? If you are trying to get pregnant, then Lupron is a definite no-no! If you decide to try the hormonal route, and Lupron is suggested, please research as much as possible before trying it. Even 1 shot of that stuff can cause really bad side-effects. Sadly, it is very, very common for doctors to dismiss and minimize the amount of pain endo can cause. Most of us are sent on a wild goose chase when it comes to endo! Usually, the pain from endo does get worse when women stop taking bc pills. Your symptoms sound like classic endo symtoms. Did you say that you do have pain all month long, or is it just when you ovulate and have a period? Is sex painful for you? There are some really good websites that have tons of info on endo.

At Wed, 30 Jan 2008, Claire wrote: >
>Hello, I realize from reading the forum here that most of you have
>already been diagnosed and I am going through the process. I feel that
>the Docs I have seen have been dismissing most of what I am telling
>them, so I was curious if my sypmtoms are similar to anyone else's.
>
>About 3 years ago, I had a strange pain in my side (at the base of my
>ribs, high up from my pelvis) this resulted in an ultrasound at the ER
>as that was the only way to get one within the month. The ER didn't
>find anything and referred me to an OB. This OB was convinced I had
>endo, although the only symptom I had was pain from an unidentified
>source. So she did a lap and found some tissue that was removed and
>biopsied. The tissue was suggestive of, but indeterminate for endo.
>
>So fast forward to 7 months ago, and I went off birth control for the
>first time since I was 14 (I am now 27). About 3 months after going off
>BC I got a terrible pain in my ovary and three days later ended up in
>the ER again and the ultrasound said that there was a pocket of fluid
>that suggests that I had ruptured a cyst. I was then in pain for a full
>month. The pain has now subsided except for having the worst menstral
>cramps I can remember and terrible ovarian pain about when I ovulate. I
>don't have clotting in menstration-at least not like all the paphlets
>say I would if I have endo.
>
>The docs have said that I can either have another lap or go on hormones.
>I don't want hormones as we are trying to conceive. I don't want to go
>on a wild-goose-chase-lap, unless it seems to make sense. In the days
>between the pain, I think "why go through surgery, maybe it's gone away"
>but on the days I'm in pain, I don't care what I have to do to make it
>stop, so I am conflicted.
>
>Does anyone else have simmilar symptoms?
>
>Thanks, sorry its so long.

Next message: Sherri: "Experiences with the CEC in Atlanta"
Previous message: Sherri: "Re: PLEASE help - I can't take it!"
In reply to: Claire: "Not sure if I have Endo"

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